Abstract
Most newborns in Dutch neonatal intensive care units (NICUs) die after a medical end-of-life decision is made. Research in the last few decades has focussed mainly on decision-making in neonatal units and not on provision of palliative care. However, practice and research have changed after the introduction of the concept of neonatal palliative care a few years ago. A multidisciplinary palliative care plan is now used, which includes advance care planning, symptom management and parental education and family support. In addition, a multidisciplinary team checklist based on a needs analysis among parents whose baby died on NICU was created in addition to developing the care concept: “What parents need”.
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Bergman, K.A., Wedzinga-de Vries, A.T., Verhagen, A.A.E. (2020). The Netherlands. In: Mancini, A., Price, J., Kerr-Elliott, T. (eds) Neonatal Palliative Care for Nurses. Springer, Cham. https://doi.org/10.1007/978-3-030-31877-2_23
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