Abstract
This study’s objective was to assess which caring recruitment behaviors correlate with the successful recruitment of older African-American adults—a two-step cross-sectional design employing a vignette-based survey methodology. Kristen Swanson’s middle-range theory of caring was used to guide the examination of African-American adults’ (65 years of age and older) perceptions of research-study-recruiter recruitment behaviors. This study’s main findings are twofold: Step 1: Seven of ten invited experts identified major revisions of the two core vignettes, written at an eighth-grade reading level and high school comprehension. Step 2: A 51% response rate yielded findings that this methodology successfully captured older African-American adults’ perception of research study recruiters’ behavioral characteristics during the recruitment process. Older African-Americans who received the hypothetical caring vignette were twice as likely to indicate their willingness to enroll in a research study with a high commitment (i.e., brain donation) compared to their counterparts who received the hypothetical uncaring recruitment scenario. Vignette-based survey methodology holds promise as a tool for informing the recruitment of older African-American adults and other minorities into federally funded health-related research studies.
Similar content being viewed by others
References
Barrett NJ, Ingraham KL, Vann TH, Moorman PG. Engaging African Americans in research: the recruiter’s perspective. Ethn Dis. 2017;27(4):453–62. https://doi.org/10.18865/2Fed.27.4.453.
Oh S, Galanter J, Thakur N, et al. Diversity in clinical and biomedical research: a promise yet to be fulfilled. PLoS Med. 2015;12(12):e1001918. https://doi.org/10.1371/journal.pmed.1001918.
Epstein S. The rise of recruitmentology’ clinical research, racial knowledge, and the politics of inclusion and difference. Soc Stud Sci. 2008;38(5):801–32. https://doi.org/10.1177/0306312708091930.
McSweeney JC, Pettey CM, Fischer EP, Spellman A. Going the distance: overcoming challenges in recruitment and retention of black and white women in a multisite, longitudinal study of predictors of coronary heart disease. Res Gerontol Nurs. 2011;2(4):256–64. https://doi.org/10.3928/19404921-20090803-01.
Gul RB, Ali PA. Clinical trials: the challenge of recruitment and retention of participants. J Clin Nurs. 2010;19(1-2):227–33. https://doi.org/10.1111/j.1365-2702.2009.03041.x.
Agoritsas T, Deom M, Perneger TV. Study design attributes influenced patients’ willingness to participate in clinical research: a randomized vignette-based study. J Clin Epidemiol. 2011;64(1):107–15. https://doi.org/10.1016/j.jclinepi.2010.02.007.
Gamboa CJ, Julion WA. Caring in the recruitment of older African American adults with chronic health disease: an integrative review. Chronic Illness. 2020 Feb;25:1742395320905666. https://doi.org/10.1177/1742395320905666.
Peters MD, Godfrey CM, Khalil H, McInerney P, Parker D, Soares CB. Guidance for conducting systematic scoping reviews. Int J Evid-Based Healthc. 2015;13(3):141–6. https://doi.org/10.1097/xeb.0000000000000050.
Williams IC, Corbie-Smith G. Investigator beliefs and reported success in recruiting minority participants. Contemp ClinTrials. 2006;27(6):580–6. https://doi.org/10.1016/j.cct.2006.05.006.
Fouad MN, Johnson RE, Nagy MC, Person SD, Partridge EE. Adherence and retention in clinical trials: a community-based approach. Cancer. 2014;120(S7):1106–12. https://doi.org/10.1002/cncr.28572.
Matsuda Y, Brooks JL, Beeber LS. Guidelines for research recruitment of underserved populations (EERC). Appl Nurs Res. 2016;32:164–70. https://doi.org/10.1016/j.apnr.2016.07.009.
Orsmond GI, Cohn ES. The distinctive features of a feasibility study: objectives and guiding questions. OTJR. 2015;35(3):169–77. https://doi.org/10.1177/1539449215578649.
McHenry JC, Insel KC, Einstein GO, Vidrine AN, Koerner KM, Morrow DG. Recruitment of older adults: success may be in the details. The Gerontologist. 2012;55(5):845–53. https://doi.org/10.1093/geront/gns079.
Ibrahim S, Sidani S. Strategies to recruit minority persons: a systematic review. J Immigr Minor Health. 2014;16(5):882–8. https://doi.org/10.1007/s10903-013-9783-y.
Lee RE, McGinnis KA, Sallis JF, Castro CM, Chen AH, Hickmann SA. Active vs. passive methods of recruiting ethnic minority women to a health promotion program. Ann Behav Med. 1997;19(4):378–84. https://doi.org/10.1007/bf02895157.
Webb FJ, Khubchandani J, Striley CW, Cottler LB. Black–White differences in willingness to participate and perceptions about health research: results from the population-based Health Street study. J Immigr Minor Health. 2018;21:1–7. https://doi.org/10.1007/s10903-018-0729-2.
Swanson KM. Empirical development of a middle range theory of caring. Nurs Res. 1991;40(30):161–6. https://pubmed.ncbi.nlm.nih.gov/2030995/. Accessed 4 Feb 2020.
Swanson KM. Nursing as informed caring for the well-being of others. Image. 1993;25(4):352–7. https://doi.org/10.1111/j.1547-5069.1993.tb00271.x.
Andershed B, Olsson K. Review of research related to Kristen Swanson’s middle-range theory of caring. Scand J Caring Sci. 2009;23(3):598–610. https://doi.org/10.1111/j.1471-6712.2008.00647.x.
Ham LS, Wiersma-Mosley JD, Wolkowicz NR, Jozkowski KN, Bridges AJ, Melkonian AJ. Effect of alcohol intoxication on bystander intervention in a vignette depiction of sexual assault. J Stud Alcohol Drugs. 2019 Mar;80(2):252–60. https://doi.org/10.15288/jsad.2019.80.252.
Jackson M, Harrison P, Swinburn B, Lawrence M. Using a qualitative vignette to explore a complex public health issue. Qual Health Res. 2015 Oct;25(10):1395–409. https://doi.org/10.1177/1049732315570119.
Evans SC, Roberts MC, Keeley JW, Blossom JB, Amaro CM, Garcia AM, et al. Vignette methodologies for studying clinicians’ decision-making: validity, utility, and application in ICD-11 field studies. Int J Clin Health Psychol. 2015;15(2):160–70. https://doi.org/10.1016/j.ijchp.2014.12.001.
Sullivan KA, Edmed SL, Cunningham LC. A comparison of new and existing mild traumatic brain injury vignettes: recommendations for research into post-concussion syndrome. Brain Inj. 2013;27(1):19–30. https://doi.org/10.3109/02699052.2012.698360.
Hilton P, Buckley BS, McColl E, Howel D, Tincello DG, Brennand C. Understanding variations in patient screening and recruitment in a multicentre pilot randomised controlled trial: a vignette-based study. Trials. 2016;17(1):522. https://doi.org/10.1186/s13063-016-1652-2.
Atzmüller C, Steiner PM. Experimental vignette studies in survey research. Methodol Eur J Res Methods Behav Soc Sci. 2010;6(3):128–38. https://doi.org/10.1027/1614-2241/a000014.
Hughes R, Huby M. The construction and interpretation of vignettes in social research. Soc Work Soc Sci Rev. 2012;11(1):36–51. https://doi.org/10.1921/17466105.11.1.36.
Hughes R, Huby M. The application of vignettes in social and nursing research. J Adv Nurs. 2002;37(4):382–6. https://doi.org/10.1046/j.1365-2648.2002.02100.x.
Aguinis H, Bradley KJ. Best practice recommendations for designing and implementing experimental vignette methodology studies. Organ Res Methods. 2014;17(4):351–71. https://doi.org/10.1177/1094428114547952.
Barnes LL, Shah RC, Aggarwal NT, Bennett DA, Schneider JA. The Minority Aging Research Study: ongoing efforts to obtain brain donation in African Americans without dementia. Curr Alzheimer Res. 2012;9(6):734–45. https://doi.org/10.2174/156720512801322627.
Sullivan KA, Edmed SL. New vignettes for the experimental manipulation of injury cause in prospective mild traumatic brain injury research. Brain Inj. 2016;30(13-14):1699–707. https://doi.org/10.1080/02699052.2016.1202448.
Kavanaugh K, Moro TT, Savage T, Mehendale R. Enacting a theory of caring to recruit and retain vulnerable participants for sensitive research. Res Nurs Health. 2006;29(3):244–52. https://doi.org/10.1002/nur.20134.
Mcneill LH, Reitzel LR, Escoto KH, et al. Engaging Black churches to address cancer health disparities: project CHURCH. Front Public Health. 2018;6 https://doi.org/10.3389/fpubh.2018.00191.
Hertzog MA. Considerations in determining sample size for pilot studies. Res Nurs Health. 2008;31(2):180–91. https://doi.org/10.1002/nur.20247.
Julious SA. Sample size of 12 per group rule of thumb for a pilot study. Pharm Stat J Appl Stat Pharm Ind. 2005;4(4):287–91. https://doi.org/10.1002/pst.185.
Viechtbauer W, Smits L, Kotz D, Budé L, Spigt M, Serroyen J, et al. A simple formula for the calculation of sample size in pilot studies. J Clin Epidemiol. 2015;68(11):1375–9. https://doi.org/10.1016/j.jclinepi.2015.04.014.
Levin K. Study design III: cross-sectional studies. Evidence-Based Dentistry. 2006;7(1) https://doi.org/10.1038/sj.ebd.6400375.
Riedl MO, León C. Toward vignette-based story generation for drama management systems. In Workshop on Integrating Technologies for Interactive Stories-2nd International Conference on INtelligent TEchnologies for interactive entertainment. 2008;(pp. 8-10). https://doi.org/10.1007/978-3-540-89454-4_23
Gamboa CJ, Julion WA. Proactive recruitment of older African-Americans for Alzheimer’s research with brain donation: a cohort case study of success. J Racial Ethn Health Disparities. 2020:1–12. https://doi.org/10.1177/1742395320905666.
Ajrouch KJ, Antonucci TC, Janevic MR. Social networks among blacks and whites: the interaction between race and age. J Gerontol Ser B Psychol Sci Soc Sci. 2001;56(2):S112–8. https://doi.org/10.1093/geronb/56.2.s112.
Acknowledgements
Thank you to Michael Schoeny, Ph.D., and Deborah Gross, DNSc, RN, FAAN, for working through the research design for this pilot work. Julian S. Gamboa, J.D., for structural guidance on the manuscript. Tania Rivero, reference librarian, for assistance in developing the key terms and retrieving the literature. Advanced Clinical Research Practicum Committee Jen’nea Sumo, Ph.D., R.N.; Karen Kavanaugh, Ph.D., R.N., FAAN; Ana Capuano, M.P.S., M.S., Ph.D. A special thank you to Olimpia Paun, PhD, PMHCNS-BC, for introducing the author to the theoretical framework. Dr. Kristen Swanson RN, Ph.D., FAAN, for authorization to modify and utilize Swanson’s middle range theory of caring as the theoretical framework and the Caring Professional Scale used in this study. Mr. Franklin Cosey-Gay, Ph.D., MPH, for his invaluable contribution to the culturally appropriate laguage used in the vignettes. We all have a great appreciation for the Minority Aging Research Study Principal Investigator, Lisa L. Barnes, Ph.D., and the participants of the Minority Aing Research Study who agreed to participate and the individuals who refused to participate in this study.
Funding
Rush University College of Nursing Golden Lamp Society — awarded the Diane Cronin-Stubbs Award.
Author information
Authors and Affiliations
Corresponding author
Ethics declarations
Institution Review Board
This study was approved by the Rush University Medical Center Institutional Review Board.
Additional information
Publisher’s Note
Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.
Rights and permissions
About this article
Cite this article
Gamboa, C.J., Julion, W.A., Fogg, L. et al. Using Vignette-Based Methodology to Examine Study Recruitment in Older African American Adults: A Methods Paper. J Urban Health 98 (Suppl 2), 103–114 (2021). https://doi.org/10.1007/s11524-021-00567-6
Accepted:
Published:
Issue Date:
DOI: https://doi.org/10.1007/s11524-021-00567-6