Abstract
Online resources such as YouTube® can serve as the go-to resource for patients and their caregivers after a life-changing diagnosis of pancreatic cancer. There is a need to analyze the content and educational value of these videos for patients with pancreatic cancer. The top 100 most viewed videos on pancreatic cancer on YouTube® were assessed and data were collected on various variables such as views, likes, dislikes, and comments. Videos categorized as patient educational videos were further analyzed for their content, source, and educational value. Videos uploaded by patients were the most discussed (p = 0.014) and liked (p = 0.0028) videos on YouTube®. The content of the videos (personal experience, advertisement, patient education, medical professional education, alternative treatments, and increased pancreatic cancer awareness) varied depending on the uploader (patients, healthcare providers, professional societies, media) of the videos (p = 0.0007). Patient education videos were poor in being comprehensive on their education of pancreatic cancer based on our rubric (mean score of 7.67 ± 2.63 of 20 possible points). The current study shows that the educational values of YouTube® videos related to pancreatic cancer remain limited. There is significant room for healthcare providers to use the platform to develop and share comprehensive videos that can be used as more effective sources of patient education.
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References:
Worldwide cancer data (2018) World Cancer Research Fund. Available from: https://www.wcrf.org/dietandcancer/cancer-trends/worldwide-cancer-data. Accessed 03/01/2022
Cancer of the pancreas - cancer stat facts (2021) SEER. Available from: https://seer.cancer.gov/statfacts/html/pancreas.html. Accessed 03/01/2022
Cancer survival rates (2018) The Nuffield Trust. Available from: https://www.nuffieldtrust.org.uk/resource/cancer-survival-rates. Accessed 03/01/2022
Watson EK, Brett J, Hay H et al (2019) Experiences and supportive care needs of UK patients with pancreatic cancer: a cross-sectional questionnaire survey. BMJ Open 9(11):e032681
World Internet Users Statistics and 2020 World Population Stats "World internet users statistics and 2020 world population stats" (2021) Internetworldstats.Com. Available from: https://www.internetworldstats.com/stats.htm. Accessed 03/01/2022
De Groot L, Harris I, Regehr G, Tekian A, Ingledew PA (2019) Quality of online resources for pancreatic cancer patients. J Cancer Educ 34(2):223–228
Storino A, Castillo-Angeles M, Watkins AA et al (2016) Assessing the accuracy and readability of online health information for patients with pancreatic cancer. JAMA Surg 151(9):831–837
The most visited internet sites Of 2020. Broadbandsearch.Net, 2021. Available from: https://www.broadbandsearch.net/blog/most-visited-popular-websites. Accessed 03/01/2022
Liu M, Cardenas V, Zhu Y, Enguidanos S (2019) YouTube® videos as a source of palliative care education: a review. J Palliat Med 22(12):1568–1573
Brachtenbach T, Cardenas R, Pate H et al (2020) YouTube: searching for answers about breast cancer. Breast Dis 39(2):85–90
Loeb S, Reines K, Abu-Salha Y et al (2021) Quality of bladder cancer information on YouTube. Eur Urol 79(1):56–59
Szmuda T, Alkhater A, Albrahim M et al (2020) YouTube® as a source of patient information for stroke: a content-quality and an audience engagement analysis. J Stroke Cerebrovasc Dis 29(9):105065
Dahodwala M, Geransar R, Babion J, de Grood J, Sargious P (2018) The impact of the use of video-based educational interventions on patient outcomes in hospital settings: a scoping review. Patient Educ Couns 101(12):2116–2124
Goobie GC, Guler SA, Johannson KA, Fisher JH, Ryerson CJ (2019) YouTube® videos as a source of misinformation on idiopathic pulmonary fibrosis. Ann Am Thorac Soc 16(5):572–579
Loeb S, Sengupta S, Butaney M et al (2019) Dissemination of misinformative and biased information about prostate cancer on YouTube. Eur Urol 75(4):564–567
Qi J, Trang T, Doong J, Kang S, Chien AL (2016) Misinformation is prevalent in psoriasis-related YouTube® videos. Dermatol Online J 22(11):13030-qt7qc9z2m5
Mukewar S, Mani P, Wu X, Lopez R, Shen B (2013) YouTube® and inflammatory bowel disease. J Crohns Colitis 7(5):392–402
Munigala S, Gardner TB, OʼReilly EM et al (2018) Understanding pancreatic diseases using animated pancreas patient: informing patients for better health outcomes with visual formats of learning. Pancreas 47(10):1256–1261
Coleman J, Olsen SJ, Sauter PK et al (2005) The effect of a Frequently Asked Questions module on a pancreatic cancer Web site patient/family chat room. Cancer Nurs 28(6):460–468
Andolfi C, Plana A, Kania P, Banerjee PP, Small S (2017) Usefulness of three-dimensional modeling in surgical planning, resident training, and patient education. J Laparoendosc Adv Surg Tech A 27(5):512–515
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The current analysis was presented as a scientific poster at the Annual Meeting of the American College of Gastroenterology, 2020.
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Garikipati, S.C., Grewal, U.S., Gaddam, S.J. et al. Assessing the Educational Value of Pancreatic Cancer Videos on YouTube®. J Canc Educ 38, 1134–1139 (2023). https://doi.org/10.1007/s13187-022-02239-8
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DOI: https://doi.org/10.1007/s13187-022-02239-8