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Perpetual Silence, Not Silence for Moments: Hearing Loss of Children as Perceived by Hearing Bedouin Mothers

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Abstract

The Negev Bedouin population in southern Israel, a minority undergoing great social change, has a higher incidence of hearing loss than that reported elsewhere but has hardly been studied. Caring for a child with hearing loss often engenders parental stress because of the many tasks involved. Difficulty in accessing information and services, the lack of public transportation nearby, and other aspects of the living conditions of Negev Bedouin parents present additional challenges. These difficulties are further compounded by the unique socio-demographic and cultural characteristics of this indigenous population. This article presents the parenting experience of 20 hearing Bedouin mothers of children with hearing loss, explored in a qualitative phenomenological study. The findings indicate that the mothers’ perceptions of the child’s hearing loss affect how they cope with the birth and rearing of the child, their view of the child, and their attitude toward medical interventions. These findings, which portray an experience that is unique in many ways, contribute to the understanding of how an underserved, indigenous, and traditional population responds to congenital hearing loss. The findings also reveal the importance of the terminology with which parents describe their child’s hearing loss and the unique meanings it may have. Such knowledge is of particular importance for culturally sensitive and effective provision of social services and therapeutic interventions.

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References

  • Al-Krenawi, A., Graham, G. R., Maimon, I., Hallaq, E., & Merrick, L. (2013). Parenting a child with intellectual disability in Bedouin families. In J. Merrick, A. Al-Krenawi, & S. Elbedour (Eds.), Bedouin health perspectives from Israel (pp. 219–230). New York: Nova Science Publishers, Inc.

    Google Scholar 

  • Al-Krenawi, A., & Lightman, E. S. (2000). Learning achievement, social adjustment, and family conflict among Bedouin-Arab children from polygamous and monogamous families. Journal of Social Psychology, 140(3), 345–355. https://doi.org/10.1080/00224540009600475.

    Article  PubMed  Google Scholar 

  • Al-Krenawi, A., & Slonim-Nevo, V. (2005). Nisu’im polygami’im ve-monogami’im: Hashpa’atam al ha-matsav ha-nafshi ve-ha-hevrati shel nashim Beduiyot-Araviyot [Polygamous and monogamous marriages: Their effect on the emotional and social status of Bedouin-Arab women]. In R. Lev-Wiesel, G. Zwickel & B. Nevo (Eds.), Shimri nafshekh: Briyut nafshit be-kerev nashim be-yisrael [Take care of your mental health: Mental health of women in Israel] (pp. 149–168). Beersheba: Ben-Gurion University of the Negev (in Hebrew).

    Google Scholar 

  • Al-Krenawi, A., & Slonim-Nevo, V. (2009). Tfisat ha-yeled he-harig ba-mishpaha ha-Bedouit ve-hashpa’ata al dimuya ve-tifkuda shel ha-yehida ha-mishpahtit [The perception of the exceptional child in the Bedouin Arab family and its effect on the family’s function and self-image]. Beit Dagan, Israel: Keren Shalem & Beersheba, Israel: Ben-Gurion University of the Negev (in Hebrew).

  • Allassad Alhuzail, N. (2012). Ha-mashma’ut ha-kfula shel ha-hagana be-hayei shlosha dorot shel nashim Beduiyot [The double meaning of protection in the lives of three generations of Bedouin women]. Sugiyot hevarityot be-yisrael: ktav et le-nos’ei hevra [Social issues in Israel: A sociology journal], 15, pp. 58–86 (in Hebrew).

  • Allassad Alhuzail, N. (2013). “I earn therefore I exist": Impoverished bedouin mothers who become entrepreneurs. Israel Studies Review, 28(2), 174–191.

    Google Scholar 

  • Allassad Alhuzail, N. (2017). A place of many names: How three generations of Bedouin women express the meaning of home. Journal of Housing and the Built Environment. https://doi.org/10.1007/s10901-017-9546-5.

    Article  Google Scholar 

  • Barlow, J. H., & Ellard, D. R. (2006). The psychosocial well-being of children with chronic disease, their parents and siblings: An overview of the research evidence base. Child: Care, Health and Development, 32, 19–31. https://doi.org/10.1111/j.1365-2214.2006.00591.x.

    Article  Google Scholar 

  • Ben-David, J. (2004). Ha-Bedouim be-yisrael—hebetim hevrati’im ve-karkai’im [The Bedouins in Israel: Social and land aspects]. Jerusalem: The Institute for the Study of Land Policy and the Jerusalem Institute (in Hebrew).

    Google Scholar 

  • Bruner, J. (1986). Actual minds, possible worlds. Cambridge, MA: Harvard University Press.

    Google Scholar 

  • Bystrov, E., & Soffer, A. (2007). Yisrael 2007–2020: Al demografia ve-tsfifut [Israel 2007–2020: On demography and density]. Haifa: Reuven Chaikin Chair of Geostrategy, University of Haifa (in Hebrew).

    Google Scholar 

  • Bystrov, E., & Soffer, A. (2010). Yisrael: Demografia 2010–2030—ba-derekh le-medina datit [Israel: Demography 2010–2030—On the way to a religious state]. Haifa: Reuven Chaikin Chair in Geostrategy, University of Haifa (in Hebrew).

    Google Scholar 

  • Calderon, R., & Greenberg, M. (1999). Stress and coping in hearing mothers of children with hearing loss: Factors affecting mother and child adjustment. American Annals of the Deaf, 144(1), 7–18. https://doi.org/10.1353/aad.2012.0153.

    Article  PubMed  Google Scholar 

  • Cavallo, S., Feldman, D. E., Swaine, B., & Meshefedjian, G. (2009). Is parental coping associated with the level of function in children with physical disabilities? Child: Care, Health and Development, 35(1), 33–40. https://doi.org/10.1111/j.1365-2214.2008.00884.x.

    Article  Google Scholar 

  • Central Bureau of Statistics. (2017). Population of Israel on the Eve of 2018—8.8 Million. Retrieved January 1, 2018, from http://www.cbs.gov.il/reader/cw_usr_view_Folder?ID=141.

  • Christiansen, J. B., & Leigh, I. W. (2005). Cochlear implants in children: Ethics and choices. Washington, DC: Gallaudet University Press.

    Google Scholar 

  • Corradi, C. (1991). Text, context and individual meaning: Re-thinking life stories in a hermeneutic frame. Discourse and Society, 2(1), 105–118.

    Article  Google Scholar 

  • Creswell, J. W. (1998). Qualitative inquiry and research design. Newbury Park, CA: Sage.

    Google Scholar 

  • Denzin, N. K., & Lincoln, Y. S. (Eds.). (1994). Handbook of qualitative research. Thousand Oaks, CA: Sage.

    Google Scholar 

  • Duvdevany, I., & Abboud, S. (2003). Stress, social support and well-being of Arab mothers of children with intellectual disability who are served by welfare services in northern Israel. Journal of Intellectual Disability Research, 47(4–5), 264–272. https://doi.org/10.1046/j.1365-2788.2003.00488.x.

    Article  PubMed  Google Scholar 

  • Galil, A., Carmel, S., Lubetzky, H., Vered, S., & Heiman, N. (2001). Compliance with home rehabilitation therapy by parents of children with disabilities in Jews and Bedouin in Israel. Developmental Medicine and Child Neurology, 43(4), 261–268. https://doi.org/10.1111/j.1469-8749.2001.tb00200.x.

    Article  PubMed  Google Scholar 

  • Ginat, Y. (1966). Ha-beduim [The Bedouins]. Jerusalem: Akademon (in Hebrew).

    Google Scholar 

  • Glaser, B., & Strauss, A. (1967). The discovery of grounded theory. Chicago: Aldine.

    Google Scholar 

  • Green, S., Davis, C., Karshmer, E., Marsh, P., & Straight, B. (2005). Living stigma: The impact of labeling, stereotyping, separation, status loss, and discrimination in the lives of individuals with disabilities and their families. Sociological Inquiry, 75(2), 197–215. https://doi.org/10.1111/j.1475-682X.2005.00119.x.

    Article  Google Scholar 

  • Gur-Ziv, H. (1997). Shivyon hizdamnuyot ve-dikui: Ha-mikre shel ha-hirshim [Equal opportunity and oppression: The case of the deaf]. Iyunim be-hinuch, 2(2), 205–219 (in Hebrew).

    Google Scholar 

  • Hassall, R., Rose, J., & McDonald, J. (2005). Parenting stress in mothers of children with an intellectual disability: The effects of parental cognitions in relation to child characteristics and family support. Journal of Intellectual Disability Research, 49(6), 405–418. https://doi.org/10.1111/j.1365-2788.2005.00673.x.

    Article  PubMed  Google Scholar 

  • Hintermair, M. (2000). Hearing impairment, social networks and coping: The need for families with hearing-impaired children to relate to other parents and to hearing-impaired adults. American Annals of the Deaf, 145(1), 41–53. https://doi.org/10.1353/aad.2012.0244.

    Article  PubMed  Google Scholar 

  • Hintermair, M. (2006). Parental resources, parental stress, and socioemotional development of deaf and hard of hearing children. Journal of Deaf Studies and Deaf Education, 11(4), 493–513. https://doi.org/10.1093/deafed/enl005.

    Article  PubMed  Google Scholar 

  • Hyde, M., Punch, R., & Komesaroff, L. (2010). Coming to a decision about cochlear implantation: Parents making choices for their deaf children. Journal of Deaf Studies and Deaf Education, 15(2), 162–178. https://doi.org/10.1093/deafed/enq004.

    Article  PubMed  Google Scholar 

  • Jackson, C. W., Traub, R. J., & Turnbull, A. P. (2008). Parents’ experiences with childhood deafness: Implications for family-centered services. Communication Disorders Quarterly, 29(3), 82–98. https://doi.org/10.1177/1525740108314865.

    Article  Google Scholar 

  • Jackson, C. W., & Turnbull, A. (2004). Impact of deafness on family life: A review of the literature. Topics in Early Childhood Special Education, 24(1), 15–29. https://doi.org/10.1177/02711214040240010201.

    Article  Google Scholar 

  • Jackson, C. W., Wegner, J. R., & Turnbull, A. P. (2010). Family quality of life following early identification of deafness. Language, Speech, and Hearing Services in Schools, 41(2), 194–205. https://doi.org/10.1044/0161-1461(2009/07-0093).

    Article  PubMed  Google Scholar 

  • Jones, J., & Passey, J. (2004). Family adaptation, coping and resources: Parents of children with developmental disabilities and behavior problems. Journal on Developmental Disabilities, 11(1), 31–46.

    Google Scholar 

  • Kisch, S. (2007). Disablement, gender and deafhood among the Negev Arab-Bedouin. Disability Studies Quarterly, 27(4), 1–22. https://doi.org/10.18061/dsq.v27i4.45.

    Article  Google Scholar 

  • Kisch, S. (2012). Deafness among the Negev Bedouin: An interdisciplinary dialogue on deafness, marginality and context. Unpublished PhD thesis, Amsterdam Institute for Social Science Research Amsterdam.

  • Kurtzer-White, E., & Luterman, D. (2003). Families and children with hearing loss: Grief and coping. Mental Retardation and Developmental Disabilites, 9(4), 232–235. https://doi.org/10.1002/mrdd.10085.

    Article  Google Scholar 

  • LeCompte, M. D., & Preissle, J. (1994). Qualitative research: What it is, what it isn’t, and how it’s done. In B. Thompson (Ed.), Advances in social science methodology (Vol. 3, pp. 41–163). Greenwich, CT: JAI Press.

    Google Scholar 

  • Lederberg, A. R., & Golbach, T. (2002). Parenting stress and social support in hearing mother of deaf and hearing children: A longitudinal study. Journal of Deaf Studies and Deaf Education, 7(4), 330–345. https://doi.org/10.1093/deafed/7.4.330.

    Article  PubMed  Google Scholar 

  • Lieblich, A., Tuval-Mashiach, R., & Zilber, T. (1995). Mehapsim u-motz’im: Hachlala ve-havhana be-sippurei hayim [Seeking and finding: Generalization and distinction in life-stories]. Psychologia, 5(1), 84–95 (in Hebrew).

    Google Scholar 

  • Lieblich, A., Tuval-Mashiach, R., & Zilber, T. (1998). Narrative research. Thousand Oaks, CA: Sage.

    Book  Google Scholar 

  • Lubetzky, H., Shvarts, S., Merrick, J., Vardi, G., & Galil, A. (2004). The use of developmental rehabilitation services. Comparison between Bedouins and Jews in the south of Israel. The Scientific World Journal, 15(4), 186–192. https://doi.org/10.1100/tsw.2004.18.

    Article  Google Scholar 

  • Manchaiah, V. K., & Stephens, D. (2013). Perspectives on defining ‘hearing loss’ and its consequences. Hearing, Balance and Communication, 11(1), 6–16. https://doi.org/10.3109/21695717.2012.756624.

    Article  Google Scholar 

  • Manor-Binyamini, I. (2007). Special education in the Bedouin community in Israel’s Negev region. International Journal of Special Education, 22(2), 109–118.

    Google Scholar 

  • Manor-Binyamini, I. (2011). Mothers of children with developmental disorders in the Bedouin community in Israel: Family functioning, caregiver burden, and coping abilities. Journal of Autism and Developmental Disorders, 41(5), 601–617. https://doi.org/10.1007/s10803-010-1080-1.

    Article  Google Scholar 

  • Marriage Age Law. (1950). Retrieved July 9, 2016 from https://he.wikisource.org/wiki/%D7%97%D7%95%D7%A7_%D7%92%D7%99%D7%9C_%D7%94%D7%A0%D7%99%D7%A9%D7%95%D7%90%D7%99%D7%9F (in Hebrew).

  • Meadow-Orlans, K. P., Mertens, D. M., & Sass-Lehrer, M. D. (2003). Parents and their deaf children: The early years. Washington DC: Gallaudet University Press.

    Google Scholar 

  • Meir, A. (1997). As nomadism ends: The Israeli Bedouin of the Negev. New York: Westview Press.

    Google Scholar 

  • Morad, M., Morad, T., Kandel, I., & Merrick, J. (2004). Attitudes of Bedouin and Jewish physicians towards the medical care for persons with intellectual disability in the Bedouin Negev community. A pilot study. Scientific World Journal, 13(4), 649–654. https://doi.org/10.1100/tsw.2004.125.

    Article  Google Scholar 

  • Morton, D. D. (2000). Beyond parent education: The impact of extended family dynamics in deaf education. American Annals of the Deaf, 145(4), 359–365. https://doi.org/10.1353/aad.2012.0069.

    Article  PubMed  Google Scholar 

  • Moustakas, C. (1994). Phenomenological research methods. Thousand Oaks, CA: Sage.

    Book  Google Scholar 

  • Ngui, E. M., & Flores, G. (2006). Satisfaction with care and ease of using health care services among parents of children with special health care needs: The roles of race/ethnicity, insurance, language, and adequacy of family-centered care. Pediatrics, 117(4), 1184–1196. https://doi.org/10.1542/peds.2005-1088.

    Article  PubMed  Google Scholar 

  • Nikolaraizi, M., & Makri, M. (2004/2005). Deaf and hearing individuals’ beliefs about the capabilities of deaf people. American Annals of the Deaf, 149(5), 404–414. https://doi.org/10.1353/aad.2005.0015.

  • Onoda, R. M., de Azevedo, M. F., & Nunes dos Santos, A. M. (2011). Neonatal Hearing Screening: Failures, hearing loss and risk indicators. Brazilian Journal of Otorhinolaryngology, 77(6), 775–783. https://doi.org/10.1590/S1808-86942011000600015.

    Article  PubMed  Google Scholar 

  • Padgett, D. K. (1998). Qualitative methods in social work research: Challenges and rewards. Thousand Oaks, CA: Sage.

    Google Scholar 

  • Patton, M. Q. (1980). Qualitative evaluation methods. Beverly Hills, CA: Sage.

    Google Scholar 

  • Patton, M. Q. (2002). Qualitative research evaluation methods (3rd ed.). Beverly Hills, CA: Sage.

    Google Scholar 

  • Pipp-Siegel, S., Sedey, A. L., & Yoshinaga-Itano, C. (2002). Predictors of parental stress in mothers of young children with hearing loss. The Journal of Deaf Studies and Deaf Education, 7(1), 1–17. https://doi.org/10.1093/deafed/7.1.1.

    Article  PubMed  Google Scholar 

  • Plotkin, R. M., Brice, P. J., & Reesman, J. H. (2013). It is not just stress: Parent personality in raising a deaf child. Journal of Deaf Studies and Deaf Education, 19(3), 347–357. https://doi.org/10.1093/deafed/ent057.

    Article  PubMed  Google Scholar 

  • Quitner, A. L., Barker, D. H., Cruz, I., Snell, C., Grimley, M. E., Botteri, M., & CDaCI Investigative Team. (2010). Parenting stress among parents of deaf and hearing children: Associations with language delay and behavior problems. Parenting: Science and Practice, 10(2), 136–155. https://doi.org/10.1080/15295190903212851.

    Article  Google Scholar 

  • Robert Arnow Center for Bedouin Studies and Development. (2010). Sefer ha-netunim ha-statisti’im 2010 [The book of statistical data 2010]. Jerusalem: The Van Leer Jerussalem Institute (in Hebrew).

    Google Scholar 

  • Saetermoe, C. L., Scattone, D., & Kim, K. H. (2001). Ethnicity and the stigma of disabilities. Psychology & Health, 16(6), 699–713. https://doi.org/10.1080/08870440108405868.

    Article  Google Scholar 

  • Skelton, T., & Valentine, G. (2003).‘It feels like being Deaf is normal’: An exploration into the complexities of defining D/deafness and young D/deaf people’s identities. The Canadian Geographer/Le Géographe canadien, 47(4), 451–466. https://doi.org/10.1111/j.0008-3658.2003.00035.x.

    Article  Google Scholar 

  • Strauss, A., & Corbin, J. (1990). Basics of qualitative research: Grounded theory procedures and techniques. Newbury Park, CA: Sage.

    Google Scholar 

  • Strosbourg, N., Denise, N., & Ziv, A. (2008). Yeladim im tzrachim meyuhadim ba-uchlusiya ha-beduit ba-negev: Me’afyenim, defusei shimush be-sherutim, ve-hashlachot ha-tippul ba-hem al ha-imahot [Special-needs children in the Bedouin population of the Negev: Characteristics, patterns of service use, and the impact on the mothers of caring for the children]. Jerusalem: Myers, JDC, Brookdale Institute (in Hebrew).

  • Tattersall, H., & Young, A. (2006). Deaf children identified through newborn hearing screening: Parents’ experiences of the diagnostic process. Child: Care, Health and Development, 32(1), 33–45. https://doi.org/10.1111/j.1365-2214.2006.00596.x.

    Article  Google Scholar 

  • Tesch, R. (1990). Qualitative research: Analysis types and software tools. New York: The Falmer Press.

    Google Scholar 

  • Tutty, L. M., Rothery, M. A., & Grinnell, R. M. (1996). Qualitative research for social workers. Boston: Allyn and Bacon.

    Google Scholar 

  • van Driessche, A., Jotheeswaran, A. T., Murthy, G. V., Pilot, E., Sagar, J., Pant, H., … Dpk, B. (2014). Psychological well-being of parents and family caregivers of children with hearing impairment in south India: Influence of behavioural problems in children and social support. International Review of Psychiatry, 26(4), 500–507. https://doi.org/10.3109/09540261.2014.926865.

    Article  PubMed  Google Scholar 

  • Weiss, R. S. (1994). Learning from strangers: The art and method of qualitative interview studies. New York: The Free Press.

    Google Scholar 

  • Young, A., & Tattersall, H. (2005). Parents’ of deaf children evaluative accounts of process and practice of universal newborn hearing screening. The Journal of Deaf Studies and Deaf Education, 10(2), 134–145. https://doi.org/10.1093/deafed/eni014.

    Article  PubMed  Google Scholar 

  • Zaidman-Zait, A. (2007). Parenting a child with a cochlear implant: A critical incident study. The Journal of Deaf Studies and Deaf Education, 12(2), 221–241. https://doi.org/10.1093/deafed/enl032.

    Article  PubMed  Google Scholar 

  • Zaidman-Zait, A., Most, T., Tarrasch, R., Haddad-eid, E., & Brand, D. (2016). The impact of childhood hearing loss on the family: Mothers’ and fathers’ stress and coping resources. The Journal of Deaf Studies and Deaf Education, 21(1), 23–33. https://doi.org/10.1093/deafed/env038.

    Article  PubMed  Google Scholar 

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Alhuzail, N.A., Levinger, M. Perpetual Silence, Not Silence for Moments: Hearing Loss of Children as Perceived by Hearing Bedouin Mothers. Child Adolesc Soc Work J 35, 377–389 (2018). https://doi.org/10.1007/s10560-018-0533-9

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