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Empowering Women with Intellectual and Developmental Disabilities to Resist Abuse in Interpersonal Relationships: Promising Interventions and Practices

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Religion, Disability, and Interpersonal Violence

Abstract

Women with intellectual and developmental disabilities (IDD) experience heightened rates of domestic violence and all forms of abuse in their interpersonal relationships (e.g., Barger et al. Intellect Dev Disabil 47(4):249–262, 2009; Ward et al. Intellect Dev Disabil 48(2):89–98, 2010). After reviewing studies conducted between 2000 and 2010, Hughes et al. (Rehabil Psychol 56(4):302–319, 2011) reported that up to 90% of women with IDD experience some form of abuse during their lifetime. Almost all of the abuse is perpetrated by someone who is known to the victim, including intimate partners, family members, and paid caregivers (e.g., Stevens. J Ment Health Res Intellect Disabil 5:168–186, 2012). In the present chapter, the terms abuse and maltreatment are used interchangeably to refer to the full range of intentional harm experienced by individuals with IDD. This encompasses the various terms appearing in the literature to describe sexual abuse, physical abuse, and verbal/emotional abuse.

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References

  • Allen, B., & Borgen, K. (1994). Multimodal therapy for survivors of sexual abuse with developmental disabilities: An evaluation of treatment effectiveness. Sexuality and Disability, 12(3), 201–206.

    Article  Google Scholar 

  • Baladerian, N. J. (2009). Domestic violence and individuals with disabilities: Reflections on research and practice. Journal of Aggression, Maltreatment & Trauma, 18, 153–161.

    Article  Google Scholar 

  • Ballan, M. S., & Freyer, M. B. (2012). Self-defense among women with disabilities: An unexplored domain in domestic violence cases. Violence Against Women, 18(9), 1083.

    Article  Google Scholar 

  • Ballan, M. S., Freyer, M. B., Marti, C. N., Perkel, J., Webb, K. A., & Romanelli, M. (2014). Looking beyond prevalence: A demographic profile of survivors of intimate partner violence with disabilities. Journal of Interpersonal Violence, 29(17), 3167–3179.

    Article  Google Scholar 

  • Barber, M., Jenkins, R., & Jones, C. (2000). A survivor’s group for women who have learning disability. British Journal of Developmental Disabilities, 46, 31–41.

    Article  Google Scholar 

  • Barger, E., Wacker, J., Macy, R., & Parish, S. (2009). Sexual assault prevention for women with intellectual disabilities: A critical review of the evidence. Intellectual and Developmental Disabilities, 47(4), 249–262.

    Article  Google Scholar 

  • Bowman, R. A., Scotti, J. R., & Morris, T. L. (2010). Sexual abuse prevention: A training program for developmental disabilities service providers. Journal of Child Sexual Abuse, 19(2), 119–127.

    Article  Google Scholar 

  • Carter, E. W., Boehm, T. L., Annandale, N. H., & Taylor, C. E. (2016). Supporting congregational inclusion for children and youth with disabilities and their families. Exceptional Children, 82(3), 372–389.

    Article  Google Scholar 

  • Chang, J. C., Martin, S. L., Moracco, K. E., Dulli, L., Scandlin, D., Loucks-Sorrel, M. B., … Bou-Saada, I. (2003). Helping women with disabilities and domestic violence: Strategies, limitations, and challenges of domestic violence programs and services. Journal of Women’s Health, 12(7), 699.

    Google Scholar 

  • Cooke, L. B. (2003). Treating the sequelae of abuse in women with learning disabilities. British Journal of Developmental Disabilities, 49, 23–28.

    Article  Google Scholar 

  • Craig, L. A., Lindsay, W. R., & Browne, K. D. (Eds.). (2010). Assessment and treatment of sexual offenders with intellectual disabilities: A handbook. London, UK: Wiley-Blackwell.

    Google Scholar 

  • Eastgate, G., Scheermeyer, E., van Driel, M. L., & Lennox, N. (2012). Intellectual disability, sexuality and sexual abuse prevention. Australian Family Physician, 41(3), 135–139.

    Google Scholar 

  • Eastgate, G., van Driel, M. L., Lennox, N., & Scheermeyer, E. (2011). Women with intellectual disabilities: A study of sexuality, sexual abuse and protection skills. Australian Family Physician, 40(4), 226–230.

    Google Scholar 

  • Egemo-Helm, K. R., Miltenberger, R. G., Knudson, P., Finstrom, N., Jostad, C., & Johnson, B. (2007). An evaluation of in situ training to teach sexual abuse prevention skills to women with mental retardation. Behavioral Interventions, 22, 99–119.

    Article  Google Scholar 

  • Faccini, L., & Saide, M. A. (2011). Psychologists’ experience with interviewing and analyzing abuse allegations of adults with intellectual disabilities. Sexuality and Disability, 29(3), 291–296. doi:10.1007/s11195-011-9206-8.

    Article  Google Scholar 

  • Fisher, M. H., Burke, M. M., & Griffin, M. M. (2013). Teaching young adults with disabilities to respond appropriately to lures from strangers. Journal of Applied Behavior Analysis, 46(2), 528–533.

    Article  Google Scholar 

  • Focht-New, G., Barol, B., Clements, P. T., & Milliken, T. F. (2008). Persons with developmental disability exposed to interpersonal violence and crime: Approaches for intervention. Perspectives in Psychiatric Care, 44(2), 89–98.

    Article  Google Scholar 

  • Fortune, M. M., Abusideiri, A. E., & Dratch, R. M. (2010). A commentary on religion and domestic violence. In L. L. Lockhart & F. S. Danis (Eds.), Domestic violence: Intersectionality and culturally competent practice (pp. 318–342). New York, NY: Columbia University Press.

    Google Scholar 

  • Foster, K., & Sandel, M. (2010). Abuse of women with disabilities: Toward and empowerment perspective. Sexuality and Disability, 28, 177–186.

    Article  Google Scholar 

  • Friedman, C., Arnold, C. K., Owen, A. L., & Sandman, L. (2014). “Remember our voices are our tools:” Sexual self-advocacy as defined by people with intellectual and developmental disabilities. Sexuality and Disability, 32(4), 515–532.

    Article  Google Scholar 

  • Fyson, R., & Kitson, D. (2007). Independence or protection – Does it have to be a choice? Reflections on the abuse of people with learning disabilities in Cornwall. Critical Social Policy, 27(3), 426–436.

    Google Scholar 

  • Granqvist, P., Forslund, T., Fransson, M., Springer, L., & Lindberg, L. (2014). Mothers with intellectual disability, their experiences of maltreatment, and their children’s attachment representations: A small-group matched comparison study. Attachment & Human Development, 16(5), 417–436. doi:10.1080/14616734.2014.926946.

    Article  Google Scholar 

  • Greenspan, S., Switzky, H. N., & Woods, G. W. (2011). Intelligence involves risk-awareness and intellectual disability involves risk-unawareness: Implications of a theory of common sense. Journal of Intellectual and Developmental Disability, 36, 246–257.

    Article  Google Scholar 

  • Griffin, M. M., Kane, L. W., Taylor, C., Francis, S. H., & Hodapp, R. M. (2012). Characteristics of inclusive faith communities: A preliminary survey of inclusive practices in the United States. Journal of Applied Research in Intellectual Disabilities, 25, 383–391.

    Article  Google Scholar 

  • Harris, J. C. (2006). Intellectual disability: Understanding its development, causes, classification, evaluation, and treatment. New York, NY: Oxford University Press.

    Google Scholar 

  • Hassouneh-Phillips, D., & Curry, M. A. (2002). Abuse of women with disabilities: State of the science. Rehabilitation Counseling Bulletin, 45(2), 96–104.

    Article  Google Scholar 

  • Hewitt, O. (2014). A survey of experiences of abuse. Tizard Learning Disability Review, 19(3), 122–129.

    Article  Google Scholar 

  • Hickson, L., Golden, H., Khemka, I., Urv, T., & Yamusah, S. (1998). A closer look at interpersonal decision making in adults with and without mental retardation. American Journal on Mental Retardation, 103, 209–224.

    Article  Google Scholar 

  • Hickson, L., & Khemka, I. (2016). Prevention of maltreatment of adults with intellectual and developmental disabilities. In J. R. Lutzker, K. Guastaferro, & M. L. Benka-Coker (Eds.). Maltreatment of people with intellectual and developmental disabilities (pp. 233–261). Washington, DC: American Association on Intellectual and Developmental Disabilities.

    Google Scholar 

  • Hickson, L., Khemka, I., Golden, H., & Chatzistyli, A. (2008). Profiles of women with mental retardation with and without a documented history of abuse. American Journal on Mental Retardation, 113(2), 133–142.

    Article  Google Scholar 

  • Hickson, L., Khemka, I., Golden, H., & Chatzistyli, A. (2013). Views and values of developmental disabilities and domestic violence/sexual assault support professionals regarding the prevention and handling of situations of abuse. Journal of Policy and Practice in Intellectual Disabilities, 10(3), 207–214.

    Article  Google Scholar 

  • Hickson, L., Khemka, I., Golden, H., & Chatzistyli, A. (2015). Randomized controlled trial to evaluate an abuse prevention curriculum for women and men with intellectual and developmental disabilities. American Journal on Intellectual and Developmental Disabilities, 120(6), 490–503.

    Article  Google Scholar 

  • Hobbs, R., Bonham, C. E., & Fogo, J. (2016). Individuals with disabilities: Critical factors that facilitate integration in Christian religious communities. Journal of Rehabilitation, 82(1), 36–46.

    Google Scholar 

  • Horner-Johnson, W., & Drum, C. E. (2006). Prevalence of maltreatment of people with intellectual disabilities: A review of recently published research. Mental Retardation and Developmental Disabilities Research Reviews, 12, 57–69.

    Article  Google Scholar 

  • Horton, T. V., & Wallander, J. L. (2001). Hope and social support as resilience factors against psychological distress of mothers who care for children with chronic physical conditions. Rehabilitation Psychology, 46(4), 382–399.

    Article  Google Scholar 

  • Hughes, K., Bellis, M. A., Jones, L., Wood, S., Bates, G., Eckley, L., … Officer, A. (2012). Prevalence and risk of violence against adults with disabilities: A systematic review and meta-analysis of observational studies. The Lancet, 379, 1621–1629.

    Google Scholar 

  • Hughes, R. B., Lund, E. M., Gabrielli, J., Powers, L. E., & Curry, M. A. (2011). Prevalence of interpersonal violence against community-living adults with disabilities: A literature review. Rehabilitation Psychology, 56(4), 302–319.

    Article  Google Scholar 

  • Hughes, R. B., Robinson-Whelen, S., Pepper, A. C., Gabrielli, J., Lund, E. M., Legerski, J., et al. (2010). Development of a safety awareness group intervention for women with diverse disabilities: A pilot study. Rehabilitation Psychology, 55(3), 263–271.

    Article  Google Scholar 

  • Jenkinson, J. C. (1999). Factors affecting decision-making by young adults with intellectual disabilities. American Journal on Mental Retardation, 104(4), 320–329.

    Article  Google Scholar 

  • Kerker, B. D., Owens, P. L., Zigler, E., & Horwitz, S. M. (2004). Mental health disorders among individuals with mental retardation: Challenges to accurate prevalence estimates. Public Health Reports, 119, 409–417.

    Article  Google Scholar 

  • Khemka, I. (2000). Increasing independent decision-making skills of women with mental retardation in simulated interpersonal situations of abuse. American Journal on Mental Retardation, 105, 387–401.

    Article  Google Scholar 

  • Khemka, I., & Hickson, L. (2000). Decision making by adults with mental retardation in simulated situations of abuse. Mental Retardation, 38, 15–26.

    Article  Google Scholar 

  • Khemka, I., & Hickson, L. (2015). ESCAPE-NOW: An effective strategy-based curriculum for abuse prevention and empowerment for individuals with developmental disabilities – NOW. New York, NY: Teachers College, Columbia University.

    Google Scholar 

  • Khemka, I., Hickson, L., & Mallory, S. B. (2016). Evaluation of a decision-making curriculum for teaching adolescents with disabilities to resist negative peer pressure. Journal of Autism and Developmental Disorders, 46(7), 2372–2384.

    Article  Google Scholar 

  • Khemka, I., Hickson, L., & Reynolds, G. (2005). Evaluation of a decision-making curriculum designed to empower women with mental retardation to resist abuse. American Journal on Mental Retardation, 110(3), 193–204.

    Article  Google Scholar 

  • Lightfoot, E., & Williams, O. (2009). The intersection of disability, diversity, and domestic violence: Results of national focus groups. Journal of Aggression, Maltreatment & Trauma, 18(2), 133–152.

    Article  Google Scholar 

  • Lotan, G., & Ells, C. (2010). Adults with intellectual and developmental disabilities and participation in decision making: Ethical considerations for professional-client practice. Intellectual and Developmental Disabilities, 48(2), 112–125.

    Article  Google Scholar 

  • Lund, E. M. (2011). Community-based services and interventions for adults with disabilities who have experienced interpersonal violence: A review of the literature. Trauma, Violence, & Abuse, 12(4), 171–182.

    Article  Google Scholar 

  • Lund, E. M., & Hammond, M. (2014). Single-session intervention for abuse awareness among people with developmental disabilities. Sexuality and Disability, 32(1), 99–105. doi:10.1007/s11195-013-9335-3.

    Article  Google Scholar 

  • Mahoney, A., & Poling, A. (2011). Sexual abuse prevention for people with severe developmental disabilities. Journal of Developmental and Physical Disabilities, 23, 369–376.

    Article  Google Scholar 

  • Mansell, S., Sobsey, D., & Calder, P. (1992). Sexual abuse treatment for persons with developmental disabilities. Professional Psychology: Research and Practice, 23(5), 404.

    Article  Google Scholar 

  • Mansell, S., Sobsey, D., Wilgosh, L., & Zawallich, A. (1997). The sexual abuse of young people with disabilities: Treatment considerations. International Journal for the Advancement of Counselling, 19, 293–302.

    Article  Google Scholar 

  • Marotta, P. L. (2017). A systematic review of behavioral health interventions for sex offenders with intellectual disabilities. Sexual Abuse: A Journal of Research and Treatment, 29(2), 148–185.

    Article  Google Scholar 

  • Mikton, C., Maguire, H., & Shakespeare, T. (2014). A systematic review of the effectiveness of interventions to prevent and respond to violence against persons with disabilities. Journal of Interpersonal Violence, 29(17), 3207–3226.

    Article  Google Scholar 

  • Mitra, M., & Mouradian, V. E. (2014). Intimate partner violence in the relationships of men with disabilities in the United States: Relative prevalence and health correlates. Journal of Interpersonal Violence, 29(17), 3150–3166.

    Article  Google Scholar 

  • Nettelbeck, T., & Wilson, C. (2001). Criminal victimization of persons with mental retardation: The influence of interpersonal competence. In L. M. Glidden (Ed.), International review of research in mental retardation (vol. 24, pp. 137–169). New York, NY: Academic Press.

    Google Scholar 

  • Owen, A., Arnold, K., Friedman, C., & Sandman, L. (2016). Nominal group technique: An accessible and interactive method for conceptualizing the sexual self-advocacy of adults with intellectual and developmental disabilities. Qualitative Social Work, 15(2), 175–189. doi:10.1177/1473325015589803.

    Article  Google Scholar 

  • Peckham, N. G., Corbett, A., Howlett, S., McKee, A., & Pattison, S. (2007). The delivery of a survivors’ group for learning disabled women with significant learning disabilities who have been sexually abused. British Journal of Learning Disabilities, 35(4), 236–244.

    Article  Google Scholar 

  • Peckham, N. G., Howlett, S., & Corbett, A. (2007). Evaluating a survivors group pilot for women with significant intellectual disabilities who have been sexually abused. Journal of Applied Research in Intellectual Disabilities, 20, 308–322.

    Article  Google Scholar 

  • Plummer, S. B., & Findley, P. A. (2012). Women with disabilities’ experience with physical and sexual abuse review of the literature and implications for the field. Trauma, Violence & Abuse, 13(1), 15–29.

    Article  Google Scholar 

  • Powers, L. E., Curry, M. A., Oschwald, M., Maley, S., Saxton, M., & Eckels, K. (2002). Barriers and strategies in addressing abuse: A survey of disabled women’s experiences. Journal of Rehabilitation, 68(1), 4–13.

    Google Scholar 

  • Razza, N. J., & Tomasulo, D. J. (2005). Healing trauma: The power of group treatment for people with intellectual disabilities. Washington, DC: American Psychological Association.

    Book  Google Scholar 

  • Robinson, S., & Chenoweth, L. (2011). Preventing abuse in accommodation services: From procedural response to protective cultures. Journal of Intellectual Disabilities, 15(1), 63–74.

    Article  Google Scholar 

  • Robinson-Whelen, S., Hughes, R. B., Gabrielli, J., Lund, E. M., Abramson, W., & Swank, P. R. (2014). A safety awareness program for women with diverse disabilities a randomized controlled trial. Violence Against Women, 20(7), 846–868.

    Article  Google Scholar 

  • Rosenthal, L. (2016). Incorporating intersectionality into psychology: An opportunity to promote social justice and equity. American Psychologist, 71(6), 474–485.

    Article  Google Scholar 

  • Roswell, A. C., Clare, I. C. H., & Murphy, G. H. (2013). The psychological impact of abuse on men and women with severe intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 26(4), 257–270.

    Article  Google Scholar 

  • Sinason, V. (2002). Treating people with learning disabilities after physical or sexual abuse. Advances in Psychiatric Treatment, 8(6), 424–431.

    Article  Google Scholar 

  • Stevens, B. (2012). Examining emerging strategies to prevent sexual violence: Tailoring to the needs of women with intellectual and developmental disabilities. Journal of Mental Health Research in Intellectual Disabilities, 5, 168–186.

    Article  Google Scholar 

  • Walter-Brice, A., Cox, R., Priest, H., & Thompson, F. (2012). What do women with learning disabilities say about their experiences of domestic abuse within the context of their intimate partner relationships? Disability & Society, 27(4), 503–517.

    Article  Google Scholar 

  • Ward, K., & Atkinson, J. (2013). Preventing interpersonal violence for adults with developmental disabilities in Alaska. Circumpolar Health Supplements, Supplement, 1(72), 246–247.

    Google Scholar 

  • Ward, K. M., Atkinson, J. P., Smith, C. A., & Windsor, R. (2013). A friendships and dating program for adults with intellectual and developmental disabilities: A formative evaluation. Intellectual and Developmental Disabilities, 51(1), 22–32.

    Article  Google Scholar 

  • Ward, K. M., Bosek, R. L., & Trimble, E. L. (2010). Romantic relationships and interpersonal violence among adults with developmental disabilities. Intellectual and Developmental Disabilities, 48(2), 89–98.

    Article  Google Scholar 

  • Wehmeyer, M. L., & Palmer, S. B. (2003). Adult outcomes for students with cognitive disabilities three-years after high school: The impact of self-determination. Education and Training in Developmental Disabilities, 38(2), 131–144.

    Google Scholar 

  • Wilczynski, S. M., Connolly, S., Dubard, M., Henderson, A., & Mcintosh, D. (2015). Assessment, prevention, and intervention for abuse among individuals with disabilities. Psychology in the Schools, 52(1), 9–21.

    Article  Google Scholar 

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Authors and Affiliations

  1. Department of Education Specialties, The School of Education, St John’s University, Queens, NY, USA

    Ishita Khemka

  2. Teachers College, Columbia University, New York, NY, USA

    Linda Hickson

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  1. Ishita Khemka
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  2. Linda Hickson
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Correspondence to Ishita Khemka .

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  1. Department of Psychology, Bethel University, St. Paul, Minnesota, USA

    Andy J. Johnson

  2. Department of Psychology, Bethel University, St. Paul, Minnesota, USA

    J. Ruth Nelson

  3. Center for Psychiatric Rehabilitation, Boston University, Boston, Massachusetts, USA

    Emily M. Lund

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Khemka, I., Hickson, L. (2017). Empowering Women with Intellectual and Developmental Disabilities to Resist Abuse in Interpersonal Relationships: Promising Interventions and Practices. In: Johnson, A., Nelson, J., Lund, E. (eds) Religion, Disability, and Interpersonal Violence. Springer, Cham. https://doi.org/10.1007/978-3-319-56901-7_5

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  • DOI: https://doi.org/10.1007/978-3-319-56901-7_5

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