Abstract
The assessment of quality of life (QoL) in patients with schizophrenia is an area of growing concern since it is considered an essential distal outcome for clinical trials and patient management (Auquier et al. 2003; Awad and Voruganti 2012) according to the patient-reported outcome (PRO) movement in medicine (see Fig. 5.1). Its evaluation is founded on the notion that every patient has a right to self-determination in health-care decisions and his/her subjective perspective should be considered in both diagnosis and care planning processes (Awad and Voruganti 2012; Badia et al. 1999; Bilker et al. 2003).
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
References
Auquier P, Simeoni MC, Sapin C, Reine G, Aghababian V, Cramer J, et al. Development and validation of a patient-based health-related quality of life questionnaire in schizophrenia: the S-QoL. Schizophr Res. 2003;63(1–2):137–49.
Awad AG, Voruganti LN. Measuring quality of life in patients with schizophrenia: an update. Pharmacoeconomics. 2012;30(3):183–95.
Badia X, Roset M, Montserrat S, Herdman M, Segura A. The Spanish version of EuroQol: a description and its applications. European quality of life scale. Med Clin. 1999;112 Suppl 1:79–85.
Bilker WB, Brensinger C, Kurtz MM, Kohler C, Gur RC, Siegel SJ, et al. Development of an abbreviated schizophrenia quality of life scale using a new method. Neuropsychopharmacology. 2003;28(4):773–7.
Bobes J. Current status of quality of life assessment in schizophrenic patients. Eur Arch Psychiatry Clin Neurosci. 2001;251 Suppl 2:II38–42.
Bobes J, Garcia-Portilla P, Saiz PA, Bascaran T, Bousono M. Quality of life measures in schizophrenia. Eur Psychiatry. 2005;20 Suppl 3:S313–7.
Bobes J, Garcia-Portilla MP, Bascaran MT, Saiz PA, Bousono M. Quality of life in schizophrenic patients. Dialogues Clin Neurosci. 2007;9(2):215–26.
Brooks R. EuroQol: the current state of play. Health Policy. 1996;37:53–72.
Browne S, Roe M, Lane A, Gervin M, Morris M, Kinsella A, et al. Quality of life in schizophrenia: relationship to sociodemographic factors, symptomatology and tardive dyskinesia. Acta Psychiatr Scand. 1996;94(2):118–24.
Bullinger M, Quitmann J. Quality of life as patient-reported outcomes: principles of assessment. Dialogues Clin Neurosci. 2014;16(2):137–45.
Calman KC. Quality of life in cancer patients – an hypothesis. J Med Ethics. 1984;10(3):124–7.
Cella D, Riley W, Stone A, Rothrock N, Reeve B, Yount S, et al. The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005–2008. J Clin Epidemiol. 2010;63(11):1179–94.
Endicott J, Nee J, Harrison W, Blumenthal R. Quality of Life Enjoyment and Satisfaction Questionnaire: a new measure. Psychopharmacol Bull. 1993;29(2):321–6.
Evenson RC, Vieweg BW. Using a quality of life measure to investigate outcome in outpatient treatment of severely impaired psychiatric clients. Compr Psychiatry. 1998;39(2):57–62.
Fervaha G, Remington G. Validation of an abbreviated quality of life scale for schizophrenia. Eur Neuropsychopharmacol. 2013;23(9):1072–7.
Fervaha G, Foussias G, Siddiqui I, Agid O, Remington G. Abbreviated quality of life scales for schizophrenia: comparison and utility of two brief community functioning measures. Schizophr Res. 2014;154(1–3):89–92.
Gaite L, Vazquez-Barquero JL, Arrizabalaga Arrizabalaga A, Schene AH, Welcher B, Thornicroft G, et al. Quality of life in schizophrenia: development, reliability and internal consistency of the Lancashire Quality of Life Profile – European version. EPSILON study 8. European Psychiatric Services: Inputs Linked to Outcome Domains and Needs. Br J Psychiatry Suppl. 2000;39:s49–54.
Garcia-Portilla MP, Garcia-Alvarez L, Menendez-Miranda I, Al-Halabi S, Bobes-Bascaran MT, Saiz-Martinez PA, et al. Escalas de funcionalidad, discapacidad y calidad de vida en esquizofrenia. Drugs in context. Barcelona: J&C Ediciones Medicas, SL; 2015.
Gomez JC, Sacristan JA, Hernandez J, Breier A, Ruiz Carrasco P, Anton Saiz C, et al. The safety of olanzapine compared with other antipsychotic drugs: results of an observational prospective study in patients with schizophrenia (EFESO study). Pharmacoepidemiologic study of olanzapine in schizophrenia. J Clin Psychiatry. 2000;61(5):335–43.
Harvey PD. Assessment of everyday functioning in schizophrenia: implications for treatments aimed at negative symptoms. Schizophr Res. 2013;150(2–3):353–5.
Hayhurst KP, Massie JA, Dunn G, Lewis SW, Drake RJ. Validity of subjective versus objective quality of life assessment in people with schizophrenia. BMC Psychiatry. 2014;14:365.
Heinrichs DW, Hanlon TE, Carpenter Jr WT. The quality of life scale: an instrument for rating the schizophrenic deficit syndrome. Schizophr Bull. 1984;10(3):388–98.
Insel TR. Rethinking schizophrenia. Nature. 2010;468:187–93.
Karow A, Wittmann L, Schottle D, Schafer I, Lambert M. The assessment of quality of life in clinical practice in patients with schizophrenia. Dialogues Clin Neurosci. 2014;16(2):185–95.
Kind P. The EuroQoL instrument: an index of HRQOL. In: Spilker B, editor. Quality of life and pharmacoeconomics in clinical trials. 2nd ed. Philadelphia: Lippincott-Raven; 1996. p. 191–201.
Lehman AF. The effects of psychiatric symptoms on quality of life assessments among the chronic mentally ill. Eval Program Plann. 1983;6(2):143–51.
Lehman AF. A quality of life interview for the chronically mentally ill. Eval Program Plann. 1988;11:51–62.
Lehman AF, Postrado LT, Rachuba LT. Convergent validation of quality of life assessments for persons with severe mental illnesses. Qual Life Res. 1993;2(5):327–33.
Lieberman JA, Perkins D, Belger A, Chakos M, Jarskog F, Boteva K, Gilmore J. The early stages of schizophrenia: speculations on pathogenesis, pathophysiology, and therapeutic approaches. Biol Psychiatry. 2001;50:884–97.
Naber D. A self-rating to measure subjective effects of neuroleptic drugs, relationships to objective psychopathology, quality of life, compliance and other clinical variables. Int Clin Psychopharmacol. 1995;10 Suppl 3:133–8.
Naber D, Moritz S, Lambert M, Pajonk FG, Holzbach R, Mass R, et al. Improvement of schizophrenic patients’ subjective well-being under atypical antipsychotic drugs. Schizophr Res. 2001;50(1–2):79–88.
Oliver JP, Huxley PJ, Priebe S, Kaiser W. Measuring the quality of life of severely mentally ill people using the Lancashire quality of life profile. Soc Psychiatry Psychiatr Epidemiol. 1997;32(2):76–83.
Orsel S, Akdemir A, Dag I. The sensitivity of quality-of-life scale WHOQOL-100 to psychopathological measures in schizophrenia. Compr Psychiatry. 2004;45(1):57–61.
Park IJ, Jung DC, Hwang SS, Jung HY, Yoon JS, Kim CE, et al. Refinement of the SWN-20 based on the Rasch rating model. Compr Psychiatry. 2015;60:134–41.
Priebe S, Huxley P, Knight S, Evans S. Application and results of the Manchester Short Assessment of Quality of Life (MANSA). Int J Soc Psychiatry. 1999;45(1):7–12.
Prieto L, Sacristan JA, Hormaechea JA, Casado A, Badia X, Gomez JC. Psychometric validation of a generic health-related quality of life measure (EQ-5D) in a sample of schizophrenic patients. Curr Med Res Opin. 2004;20(6):827–35.
Pukrop R, Schlaak V, Moller-Leimkuhler AM, Albus M, Czernik A, Klosterkotter J, et al. Reliability and validity of quality of life assessed by the short-form 36 and the modular system for quality of life in patients with schizophrenia and patients with depression. Psychiatry Res. 2003;119(1–2):63–79.
Rabin R, de Charro F. EQ-5D: a measure of health status from the EuroQol Group. Ann Med. 2001;33(5):337–43.
Revicki DA, Kleinman L, Cella D. A history of health-related quality of life outcomes in psychiatry. Dialogues Clin Neurosci. 2014;16(2):127–35.
Ritsner M, Kurs R, Gibel A, Ratner Y, Endicott J. Validity of an abbreviated quality of life enjoyment and satisfaction questionnaire (Q-LES-Q-18) for schizophrenia, schizoaffective, and mood disorder patients. Qual Life Res. 2005;14(7):1693–703.
Schmidt P, Clouth J, Haggenmuller L, Naber D, Reitberger U. Constructing an Index for the Subjective Well-being Under Neuroleptics scale (SWN), short form: applying structural equation modeling for testing reliability and validity of the index. Qual Life Res. 2006;15(7):1191–202.
Skantze K, Malm U, Dencker SJ, May PR, Corrigan P. Comparison of quality of life with standard of living in schizophrenic out-patients. Br J Psychiatry. 1992;161:797–801.
Voruganti LN, Awad AG. Personal evaluation of transitions in treatment (PETiT): a scale to measure subjective aspects of antipsychotic drug therapy in schizophrenia. Schizophr Res. 2002;56(1–2):37–46.
Vothknecht S, Meijer C, Zwinderman A, Kikkert M, Dekker J, van Beveren N, et al. Psychometric evaluation of the Subjective Well-being Under Neuroleptic Treatment Scale (SWN) in patients with schizophrenia, their relatives and controls. Psychiatry Res. 2013;206(1):62–7.
Ware Jr JE, Sherbourne CD. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care. 1992;30(6):473–83.
Ware Jr J, Kosinski M, Keller SD. A 12-item short-form health survey: construction of scales and preliminary tests of reliability and validity. Med Care. 1996;34(3):220–33.
Ware JE, Kosinski M, Turner-Bowker DM. User’s manual for the SF-12v2 health survey with a supplement documenting SF-12 health survey. Lincoln: Quality Metric Incorporated; 2002.
WHO. Measuring quality of life. The development of the World Health Organization Quality of Life Instrument (WHOQOL-100). Genève: WHO; 1993.
WHO. Development of the World Health Organization WHOQOL-BREF quality of life assessment. The WHOQOL Group. Psychol Med. 1998;28:551–8.
Wilkinson G, Hesdon B, Wild D, Cookson R, Farina C, Sharma V, et al. Self-report quality of life measure for people with schizophrenia: the SQLS. Br J Psychiatry. 2000;177:42–6.
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2016 Springer International Publishing Switzerland
About this chapter
Cite this chapter
Bobes-Bascarán, M.T. et al. (2016). A Review of Quality-of-Life Assessment Measures in Schizophrenia: Limitations and Future Developments. In: Awad, A., Voruganti, L. (eds) Beyond Assessment of Quality of Life in Schizophrenia. Adis, Cham. https://doi.org/10.1007/978-3-319-30061-0_5
Download citation
DOI: https://doi.org/10.1007/978-3-319-30061-0_5
Published:
Publisher Name: Adis, Cham
Print ISBN: 978-3-319-30059-7
Online ISBN: 978-3-319-30061-0
eBook Packages: MedicineMedicine (R0)