Abstract
Historical evaluations of the outcomes for adults with autism spectrum disorders (ASD) are poor. Researchers assessed outcome measures which lacked the representation of the heterogeneity of the population, overemphasizing bleak outcomes, failing to consider personal perspectives and values. A move toward more qualitative reports which consider an individual’s unique outlook should be considered when evaluating outcomes and programming interventions. This chapter surveys the historical approaches to evaluating outcome measures and then moves to highlight alternative perspectives reporting shifting the focus from researcher driven toward caregivers and individuals. The authors seek to explore how deinstitutionalization and early intervention altered the possibilities for individuals with ASD and how compassionate care and a focus on social validity can further challenge how we evaluate outcomes and plan for an optimistic future for adults with ASD.
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Bukszpan, A.R., Piazza, J., Javed, A., Sato, S., Boone, V. (2022). Measuring Outcomes for Adults with Autism Spectrum Disorders: Historical Perspectives and Hope for the Future. In: Leaf, J.B., Cihon, J.H., Ferguson, J.L., Gerhardt, P.F. (eds) Handbook of Quality of Life for Individuals with Autism Spectrum Disorder. Autism and Child Psychopathology Series. Springer, Cham. https://doi.org/10.1007/978-3-030-98507-3_24
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