This is a preview of subscription content, log in via an institution to check access.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
Similar content being viewed by others
References
American College of Obstetricians and Gynaecologists (ACOG). Perinatal palliative care: ACOG Committee Opinion, number 786. Obstet Gynecol. 2019;134(3):e84–9.
Bidegain M, Younge N. Comfort care vs palliative care: is there a difference in neonates? NeoReviews. 2015;16(6):e333–9.
Bliss. Making critical care decisions. London: Bliss; 2011.
Branchett K, Stretton J. Neonatal palliative and end of life care: what parents want from professionals. J Neonatal Nurs. 2012;18(2):40–4.
British Association for Perinatal Medicine (BAPM). Palliative care (supportive and end of life care). A framework for clinical practice in perinatal medicine. Report of the Working Group August 2010. London: BAPM; 2010b. https://www.hubble-liveassets.s3.amazonaws.com/bapm/attachment/file/38/Palliative_care_final_version__Aug10.pdf. Accessed 11 Oct 2019.
British Association for Perinatal Medicine (BAPM). Working Group Report. Palliative care (supportive and end of life care). A framework for clinical practice in perinatal medicine. The report of a working party. London: BAPM; 2010a. https://hubble-liveassetss3amazonawscom/bapm/attachment/file/39/Palliative_Care_Report_final__Aug10pdf. Accessed 11 Oct 2019.
Costeloe K, Draper E, Stacey F, Myles J, Hennessy EM. Epicure 2: exploring increased survival of extremely preterm babies. Arch Dis Child. 2008;993(Suppl 2):espr13.
Daniels A, Downing J. Increasing access to children’s palliative care education through e-learning: a review of the ICPCN experience. Int J Palliat Nurs. 2018;24(7):351–8.
Department of Health. Toolkit for high quality neonatal services. London: Department of Health; 2009.
Downing J, Ling J. Education in children’s palliative care across Europe and internationally. Int J Palliat Nurs. 2012;18(3):115–20.
Gallagher K, Marlow N, Edgley A, Porock D. The attitudes of neonatal nurses towards extremely preterm infants. J Adv Nurs. 2012;68(8):1768–79.
Kiman R, Doumic L. Perinatal palliative care: a developing specialty. Int J Palliat Nurs. 2014;20(3):145–8.
Mancini A. Developing a neonatal palliative care education programme within the North West London Perinatal Network. J Neonatal Nurs. 2011;17(4):146–9.
Mancini A, Kelly P, Bluebond-Langner M. Training neonatal staff for the future in neonatal palliative care. Semin Fetal Neonatal Med. 2013;18(2):111–5.
Mancini A, Uthaya S, Beardsley C, Wood D, Modi N. Practical guidance for the management of palliative care on neonatal units. 1st ed. London: Royal College of Paediatric and Child Health & Chelsea & Westminster NHS Foundation Trust; 2014.
Mancini A, Price J and Kerr-Elliott T. Neonatal palliative care for nurses. Springer Nature; 2020.
Murdoch E, Carragher P, McNamara K. Perinatal palliative care framework for managed clinical networks, South East Scotland; 2013.
Nuffield Council on Bioethics. Critical care decisions in fetal and neonatal medicine-ethical issues. London: Nuffield Council of Bioethics; 2006.
Nurse S, Ling J, Peacock V. Developing knowledge and competence in neonatal palliative care practice. In: Mancini A, Price J, Kerr-Elliott T, editors. Neonatal palliative care for nurses. New York: Springer; 2020.
Papadatou D. In the face of death: professionals who care for the dying and the bereaved. New York: Springer; 2009.
Price J, Dornan J, Quail L. Seeing is believing-reducing misconceptions about children’s hospice care through effective teaching with undergraduate nursing students. Nurse Educ Pract. 2013;13(5):361–5.
Ramnarayan P, Craig F, Petros A, Pierce C. Characteristics of deaths occurring in hospitalised children: changing trends. J Med Ethics. 2007;33(5):255–60.
Sands. Pregnancy loss and the death of a baby: guidelines for professionals. 4th ed. London: Sands; 2016.
Sociedad Argentina de Pediatria. Competencias en Medicina Paliativa. 2015. https://www.sap.org.ar/docs/profesionales/CEP/COMPETENCIAS%20EN%20MEDICINA%20PALIATIVA%20PEDIATRICA.pdf. Accessed 7 Oct 2019.
Soni R, Vasudevan C, English S. National survey on neonatal palliative care in the UK. Arch Dis Child Fetal Neonatal Ed. 2011;96(Suppl 1):Fa18.
Together for Short Lives. A perinatal pathway for babies with palliative care needs. 2nd ed. Bristol: Together for Short Lives; 2017.
Wilkinson D. Is it in the best interests of an intellectually disabled infant to die? J Med Ethics. 2006;32(8):454–9.
Woodroffe I. Supporting bereaved families through neonatal death and beyond. Semin Fetal Neonatal Med. 2013;18(2):99–104.
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Useful Links
Useful Links
BLISS: www.bliss.org.uk
CBUK: www.childbereavementuk.org
Child Death Helpline: www.childdeathhelpline.org.uk
Contact a Family: www.contactafamily.org.uk
MBF: www.multiplebirths.org.uk
Newlife: www.newlifecharity.co.uk
NHSBT: www.nhsbt.nhs.uk
Organ Donation: www.organdonation.nhs.uk
Rainbow Trust: www.rainbowtrust.org.uk
Sands: www.sands.org.uk
SIBS: www.sibs.org.uk
TAMBA: www.tamba.org.uk
TFSL: www.togetherforshortlives.org.uk
WellChild: www.wellchild.org.uk
Free Online Perinatal Palliative Care Module: www.elearnicpcn.org
Rights and permissions
Copyright information
© 2020 Springer Nature Switzerland AG
About this chapter
Cite this chapter
Mancini-Smith, A., Kiman, R. (2020). Perinatal and Neonatal Palliative Care. In: Downing, J. (eds) Children’s Palliative Care: An International Case-Based Manual. Springer, Cham. https://doi.org/10.1007/978-3-030-27375-0_17
Download citation
DOI: https://doi.org/10.1007/978-3-030-27375-0_17
Published:
Publisher Name: Springer, Cham
Print ISBN: 978-3-030-27374-3
Online ISBN: 978-3-030-27375-0
eBook Packages: MedicineMedicine (R0)