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Illness and Its Experience: The Patient Perspective

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Handbook of the Philosophy of Medicine

Abstract

This chapter offers a philosophical analysis of the illness experience. It uses a phenomenological approach to study the experience of illness and describe its salient features. Using a phenomenological framework, the chapter looks at the physical and social world of the ill person and at changes to self-identity, time, and death. The chapter opens with Toombs’ definition of illness as a series of losses. It then turns to examine the experience of illness in terms of symptom experience, diagnosis, disease progression, and prognosis. I use Tolstoy’s novella The Death of Ivan Ilyich to exemplify the experiential dimension and existential meaning of each stage. I then provide an analysis of the experience of illness by breaking it down into the geography of illness, the social dimension of illness, and the experience of illness as disability, in order to provide an analysis of the first-person experience of illness.

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References

  • Blease C (2012) Stigmatising depression: folk theorising and ‘the Pollyanna backlash’. In: Carel H, Cooper R (eds) Health, illness and disease: philosophical essays. Acumen, Durham

    Google Scholar 

  • Carel H (2008) Illness. Acumen, Stocksfield

    Google Scholar 

  • Carel H (2013a) Bodily doubt. J Conscious Stud 20(7–8):178–197

    Google Scholar 

  • Carel H (2013b) Ill, but well: a phenomenology of well-being in chronic illness. In: Bickenbach J, Felder F, Schmitz B (eds) Disability and the good human life. Cambridge University Press, Cambridge, pp 243–270

    Chapter  Google Scholar 

  • Carel H (2014) The philosophical role of illness. Metaphilosophy 45(1):20–40

    Article  Google Scholar 

  • Dreyfus H (1995) Being-in-the-world. A commentary on Heidegger’s Being and time, division I. MIT Press, London/Cambridge, MA

    Google Scholar 

  • Ehrenreich B (2010) Smile or die: how positive thinking fooled America and the world. Granta Books, London

    Google Scholar 

  • GOLD (2010) Global strategy for the diagnosis, management, and prevention of chronic obstructive pulmonary disease (Updated) http://www.goldcopd.org/

  • Heidegger M (1962 [1927]) Being and time. Blackwell, London

    Google Scholar 

  • Leder D (1990) The absent body. University of Chicago Press, Chicago

    Google Scholar 

  • MacIntyre A (1999) Dependent rational animals. Duckworth, London

    Google Scholar 

  • Merleau-Ponty M (2012 [1945]) Phenomenology of perception. Routledge, New York

    Google Scholar 

  • Ratcliffe M (2008) Feelings of being: phenomenology, psychiatry and the sense of reality. Oxford University Press, Oxford

    Book  Google Scholar 

  • Ratcliffe M (2012) Varieties of temporal experience in depression. J Med Philos 37(2):114–138

    Article  Google Scholar 

  • Sartre JP 2003 [1943]. Being and Nothingness. London & New York: Routledge

    Google Scholar 

  • Stanghellini G (2004) Disembodied spirits and deanimated bodies. Oxford University Press, Oxford

    Book  Google Scholar 

  • Sweet V (2006) Rooted in the earth, rooted in the sky: Hildegard of Bingen and premodern medicine. Routledge, New York

    Google Scholar 

  • Tolstoy L (1995 [1886]) The death of Ivan Ilyich. Penguin Books, London

    Google Scholar 

  • Toombs SK (1987) The meaning of illness: a phenomenological approach to the patient–physician relationship. J Med Philos 12:219–240

    Article  Google Scholar 

  • Toombs SK (1992) The meaning of illness. Kluwer, Amsterdam

    Book  Google Scholar 

  • Yoeli-Tlalim R (2010) Tibetan ‘wind’ and ‘wind’ illnesses: towards a multicultural approach to health and illness. Stud Hist Philos Biol Biomed Sci 41(4):318–324

    Article  Google Scholar 

Download references

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Correspondence to Havi Carel .

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Carel, H. (2017). Illness and Its Experience: The Patient Perspective. In: Schramme, T., Edwards, S. (eds) Handbook of the Philosophy of Medicine. Springer, Dordrecht. https://doi.org/10.1007/978-94-017-8688-1_4

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