Skip to main content
Log in

The View from Below: Developing a Knowledge Base About an Unknown Population

  • Published:
Sexuality and Disability Aims and scope Submit manuscript

Abstract

This paper uses the experiences of disabled lesbians to explore the intersections between disability, race, and sexuality. In addition to looking at the connections in oppressions the paper celebrates the positive and joyful sexuality of disabled lesbians. While identity formation and management remains challenging, the barriers are being dealt with as disabled lesbians claim their wholeness. Visibility and invisibility in the disability and lesbian communities are discussed and critiques are aimed at the constructions of both lesbianism and disabled people.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Similar content being viewed by others

REFERENCES

  1. This paper was originally a presentation representing a historical community perspective on the San Francisco Bay area disabled lesbian community. For the presentation I stated: "While the analysis of the results may be useful to academia, I am intentionally choosing to use community-based language. I do this for a number of reasons. First, it is the language of choice of the community women. Second, to ensure accessibility for both academics and nonacademics." Spontaneity and informality are incongruent with the style of this journal. I have prepared a more formalized version of the presentation and included broader geographical references keeping the quotations in their original form. Also, for purposes of clarity, the author used the shorthand of "disabled lesbian" while acknowledging that many women who sleep with women do not embrace that term.

  2. O'Toole, C.J. and V. D'aoust: Fit for motherhood: Towards a recognition of multiplicity in disabled lesbian mothers. Disability Studies Quarterly, Spring 2000, Volume 20, No. 2.

  3. Research involved a great many conversations both in person and on the Internet with lesbians with disabilities. Most are active in both disability and lesbian communities and are leaders of other disabled lesbians. For the purposes of this paper, I have assigned them pseudonyms. Also, to mask individual identities, I assigned different pseudonyms to the same woman for different conceptual quotes. All correspondence and conversations took place between January and June 2000.

  4. Spradley, J.P.: The Ethnographic Interview. New York, Holt, Rinehart and Winston, 1979. Kirby, SL and McKenna, K. Methods from the Margins, Experience, Knowledge and Social Change. Toronto, Garamond Press, 1989. Whyte, W.F.: Participatory action research. Newbury Park, Calif., Sage Publications, 1991.

    Google Scholar 

  5. Cupolo, A., Corbett, K., Lewis, V.: No more stares. Berkeley, CA., Disability Rights Education and Defense Fund, Inc., 1982.

    Google Scholar 

  6. Elsa, see #3.

  7. Tremain, S. (Ed.): Pushing the Limits: Disabled Dykes Produce Culture. Toronto, Women's Press, 1996. Wendell, S., The Rejected Body: Feminist Philosophical Reflections on Disability. Routledge, Toronto, 1996. Driedger, D., I. Feika, and E.G. Batres: Across Borders: Women with Disabilities Working Together, Charlottetown, PEI, Gynergy/Ragweed, 1996.

    Google Scholar 

  8. Ruth, see #3.

  9. Jamie, see #3.

  10. Solarz, A. L.: Institute of Medicine (U.S.). Committee on Lesbian Health Research Priorities. Title: Lesbian health: current assessment and directions for the future. Washington, D.C., National Academy Press, 1999.

    Google Scholar 

  11. Laumann, E.O., Gagnon, J.H., Michael, R.T., and Michaels, S. The Social Organization of Sexuality: Sexual Practices in the United States. Chicago: University of Chicago Press, 1994.

    Google Scholar 

  12. Goffman, E.: Stigma: Notes on the Management of a Spoiled Identity. CITY: Penguin, Harmondsworth, 1963.

    Google Scholar 

  13. Rankow E.J.: Lesbian health issues for the primary care provider. J Fam Pract 40(5):486–96, 1995.

    Google Scholar 

  14. Lehmann, J.B., Lehmann, C.U., Kelly, P.J.: Development and health care needs of lesbians. J Women's Health, 7(3):379–87, 1998.

    Google Scholar 

  15. O'Hanlan, K.A., R. P. Cabaj, B. Schatz, J. Lock, and P. Nemrow: A Review of the Medical Consequences of Homophobia with Suggestions for Resolution. Journal of the Gay and Lesbian Medical Association Volume 3, Number 1, 1999.

  16. Lehmann-same as #14.

  17. Fidducia, B.W. and L.R. Wolfe: Women and girls with disabilities: Defining the issues. Washington, D.C., Center for Women's Policy Studies and Women and Philanthropy, 1999.

    Google Scholar 

  18. O'Hanlon see #15.

  19. Lareen, see #3.

  20. Maria, see #3.

  21. same as #17.

  22. same as #17.

  23. Thompson, K., and Andrezejewski, J.: Why can't Sharon Kowalski come home? San Francisco, CA., Spinsters/Aunt Lute, 1988.

    Google Scholar 

  24. Sharon, see #3.

  25. Joan, see #3.

  26. Nestle, J. (Ed.): The Persistent desire: a femme-butch reader. Boston, Alyson Publications, 1992.

    Google Scholar 

  27. Tremain, see #7.

  28. Tremain, see #7.

  29. Elaine, see #3.

  30. Sonya, see #3.

  31. Cheryl, see #3.

  32. Ramona, see #3.

  33. Joan, see #3.

  34. Jamie, see #3.

  35. Pearl, see #3.

  36. Helen, see #3.

  37. Fine, M. and A. Asch (Eds.): Women with disabilities: Essays in psychology, culture, and politics. Philadelphia, PA., Temple University Press, 1988, page 13.

    Google Scholar 

  38. Higgins, P.: Making Disability: Exploring the Social Transformation of Human Variation. Springfield, IL, Charles C Thomas, 1992. Lane, H.: Constructions of Deafness. Disability and Society. Vol. 10, No. 2, 171–190, 1995.

    Google Scholar 

  39. Williams, P.J.: The alchemy of race and rights. Cambridge, MA., Harvard University Press, 1991.

    Google Scholar 

  40. Wade, Cheryl Marie and Jerry Smith (Producers). (2000). Disability Culture Rap [Video]. (Distributed by Advocating Change Together, St. Paul, MN)

  41. MINNESOTA HISTORY CENTER. (JUNE 14, 2000). [Promotional material for Disability Culture Rap].

  42. Laura Hershey, personal correspondence.

  43. Corinne, see #3.

  44. Tremain, see #7.

  45. Sophia, #3.

  46. Veronica, #3.

  47. Barbara, see #3.

  48. Sarah, see #3.

  49. Lehman et al., 1998.

  50. Fidducia, B.W. and L.R. Wolfe, see #17. Roberts, S.J., and L. Sorenson: Prevalence of Childhood Sexual Abuse and Related Sequelae in a Lesbian Population, Journal of the Gay and Lesbian Medical Association, Volume 3, Number 1, March 1999 pp. 11–20.

  51. Same as 17.

  52. Gina, see #3.

  53. Fiduccia and Wolfe, see #17.

  54. Fiduccia and Wolfe, see #1.

  55. Personal conversation.

  56. http://tps.stdorg.wisc.edu/MGLRC/Groups/DykesDisabilitiesStuff.html.Dykes, Disability and Stuff, P.O. Box 8773, Madison, WI 53708.

  57. Such as Gemma and Regard.

  58. Susan, see #3.

  59. Judy, see #3.

  60. Califia, P.: Macho Sluts. Alyson Publications, 1989.

  61. This section on mothering was largely adapted from O'Toole, C.J. and D'aoust, V.: Fit for Motherhood: Towards a Recognition of Multiplicity in Disabled Lesbian Mothers. In press.

  62. Wates, M. and R. Jade, (Eds.): Bigger Than the Sky: Disabled Women on Parenting. Women's Press, London, 1999.

    Google Scholar 

  63. Lewin, E.: Lesbian Mothers: Accounts of Gender in American Culture, Ithaca, NY., Cornell University Press, 1993. Robson, R. Lesbian (Out)law Survival under the rule of law. Ithaca, New York, Firebrand Books, 1992.

    Google Scholar 

  64. Thompson and Andrezejewski, 1988, see #24.

  65. Doucette, J.: Redefining difference: Disabled Lesbians Resist. In Stone, S.D. (Ed.): Lesbians in Canada. Toronto, Between the Lines, 1990. Corbett, J.: Proud Label: Exploring the relationship between disability politics and gay pride. Disability and Society Vol. 9, No. 3 343–358, 1994. D'Aoust, V.: On Competency and Autonomy: Experiences of a Lesbian Mother with Disabilities. Canadian Journal of Women and the Law Vol. 13. No. 3, 1994. Martin, A.: The Lesbian and gay parenting handbook. New York, Harper Collins, 1993.

  66. Arnup, K. (Ed): Lesbian Parenting Living with Pride and Prejudice. Charlottetown, PEI: Gynergy Books, 1995.

    Google Scholar 

  67. Yvette, see #3.

Download references

Author information

Authors and Affiliations

Authors

Rights and permissions

Reprints and permissions

About this article

Cite this article

O'Toole, C.J. The View from Below: Developing a Knowledge Base About an Unknown Population. Sexuality and Disability 18, 207–224 (2000). https://doi.org/10.1023/A:1026421916410

Download citation

  • Issue Date:

  • DOI: https://doi.org/10.1023/A:1026421916410

Navigation