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Financial distress in cancer patients

  • Original Article
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Journal of Medicine and the Person

Abstract

Novel diagnostic and therapeutic options offer hope to cancer patients with both localized and advanced disease. However, many of these treatments are often costly and even well-insured patients can face high out-of-pocket costs. Families may also be at risk of financial distress due to lost wages and other treatment-related expenses. Research is needed to measure and characterize financial distress in cancer patients and understand how it affects their quality of life. In addition, health care providers need to be trained to counsel patients and their families so they can make patient-centered treatment decisions that reflect their preferences and values.

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References

  1. (2012) Medicare: High-Expenditure Part B Drugs. http://www.gao.gov/assets/650/649459.pdf. Accessed 4 Aug 2013

  2. Schrag D (2004) The price tag on progress—chemotherapy for colorectal cancer. N Engl J Med 351(4):317–319

    Article  PubMed  CAS  Google Scholar 

  3. Wong YN, Meropol NJ, Speier W, Sargent D, Goldberg RM, Beck JR (2009) Cost implications of new treatments for advanced colorectal cancer. Cancer 115(10):2081–2091

    Article  PubMed  CAS  Google Scholar 

  4. Experts in chronic myeloid leukemia (2013) Price of drugs for chronic myeloid leukemia (CML), reflection of the unsustainable cancer drug prices: perspective of CML Experts. Blood 121(22):4439–4442

    Google Scholar 

  5. Prawitz AD, Garman ET, Sorhaindo B, O’Neill B, Kim J, Drentea P (2006) InCharge Financial Distress/Financial Well-Being Scale: development, administration, and score interpretation. Financ Couns Plan 17(1):34–50

    Google Scholar 

  6. Walson C, Fitzsimmons V (1993) Financial manager’s perception of rural household Economie Well-Being: development and testing of a composite measure. J Fam Econ Issue 14(3):193–214

    Article  Google Scholar 

  7. Rettig K, Leichtentritt R, Danes S (1999) The effects of resources, decision making, and decision implementing on perceived family well-being in adjusting to an economic stressor. J Fam Econ Issue 20(1):5–34

    Article  Google Scholar 

  8. Joo S, Garman ET (1998) The relationship between personal financial wellness and employee productivity: a conceptual model. Pers Financ Work Prod 2(2):162–171

    Google Scholar 

  9. Kim J (1999) Financial satisfaction, personal financework conflict, and work outcomes: pay satisfaction, organizational commitment, and productivity. Paper presented at Association for financial counseling and planning education 1999

  10. Joo S, Grable J (2004) An exploratory framework of the determinants of financial satisfaction. J Fam Econ Issue 25(1):25–50

    Article  Google Scholar 

  11. Danes S, Rettig K (1993) The role of perception in the intention to change the family financial situation. J Fam Econ Issue 14(4):365–389

    Article  Google Scholar 

  12. Aldana SG (1998) Validity and reliability of a financial strain survey. J Financ Counsel Plan 9(2):11–19

    Google Scholar 

  13. Bailey WC, Woodiel DK, Turner MJ, Young J (1998) The relationship of financial stress to overall stress and satisfaction. Pers Financ Work Prod 2(2):198–207

    Google Scholar 

  14. Freeman C, Carlson J, Sperry L (1993) Adlerian marital therapy strategies with middle income couples facing financial stress. Am J Fam Ther 21(4):324–332

    Article  Google Scholar 

  15. Kim J, Garman ET, Sorhaindo B (2003) Relationships among credit counseling clients’ financial well-being, financial behaviors, financial stressor events, and health. J Assoc Financ Counsel Plan Educ 14(2):75–87

    Google Scholar 

  16. Drentea P (2000) Age, debt and anxiety. J Health Soc Behav 41(4):437–450

    Article  PubMed  CAS  Google Scholar 

  17. Mills RJ, Grasmick HG, Morgan CS, Wenk D (1992) The effects of gender, family satisfaction, and economic strain on psychological well-being. Fam Relat 41(4):440–445

    Article  Google Scholar 

  18. Voydanoff P (1990) Economic distress and family relations: a review of the eighties. J Marriage Fam 52(4):1099–1115

    Article  Google Scholar 

  19. Voydanoff P (1984) Economic distress and families: policy issues. J Fam Issues 5(2):273–288

    Article  Google Scholar 

  20. Bernard DM, Banthin JS, Encinosa WE (2006) Health care expenditure burdens among adults with diabetes in 2001. Med Care 44(3):210–215. doi:10.1097/01.mlr.0000199729.25503.60

    Article  PubMed  Google Scholar 

  21. Selden TM, Banthin JS (2003) Health care expenditure burdens among elderly adults: 1987 and 1996. Med Care 41:III-13–III-23

    Google Scholar 

  22. Banthin JS, Bernard DM (2006) Changes in financial burdens for health care. JAMA 296(22):2712–2719

    Article  PubMed  CAS  Google Scholar 

  23. Banthin JS, Cunningham P, Bernard DM (2008) Financial burden of health care, 2001–2004. Health Aff 27(1):188–195

    Article  Google Scholar 

  24. Bernard DSM, Farr SL, Fang Z (2011) National estimates of out-of-pocket health care expenditure burdens among nonelderly adults with cancer: 2001 to 2008. J Clin Oncol 29(20):2821–2826

    Article  PubMed  Google Scholar 

  25. Goldman DP, Joyce GF, Zheng Y (2007) Prescription drug cost sharing: associations with medication and medical utilization and spending and health. JAMA 298(1):61–69

    Article  PubMed  CAS  Google Scholar 

  26. Newhouse JP, Manning WG, Morris CN et al (1981) Some interim results from a controlled trial of cost sharing in health insurance. N Engl J Med 305(25):1501–1507

    Article  PubMed  CAS  Google Scholar 

  27. Newhouse JP (2004) Consumer-directed health plans and the rand health insurance experiment. Health Aff 23(6):107–113

    Article  Google Scholar 

  28. Goldman DP, Joyce GF, Escarce JJ et al (2004) Pharmacy benefits and the use of drugs by the chronically ill. JAMA 291(19):2344–2350

    Article  PubMed  CAS  Google Scholar 

  29. Hsu J, Price M, Huang J et al (2006) Unintended consequences of caps on medicare drug benefits. N Engl J Med 354(22):2349–2359

    Article  PubMed  CAS  Google Scholar 

  30. Trivedi AN, Rakowski W, Ayanian JZ (2008) Effect of cost sharing on screening mammography in medicare health plans. N Engl J Med 358(4):375–383

    Article  PubMed  CAS  Google Scholar 

  31. Neugut AI, Subar M, Wilde ET et al (2011) Association between prescription co-payment amount and compliance with adjuvant hormonal therapy in women with early-stage breast cancer. J Clin Oncol 29(18):2534–2542

    Article  PubMed  Google Scholar 

  32. Streeter SB, Schwartzberg L, Husain N, Johnsrud M (2011) Patient and plan characteristics affecting abandonment of oral oncolytic prescriptions. Am J Manag Care 17(Suppl 5 Developing):SP38–SP44

    Google Scholar 

  33. Wong YN, Hamilton O, Egleston B, Salador K, Murphy C, Meropol NJ (2010) Understanding how out-of-pocket expenses, treatment value, and patient characteristics influence treatment choices. Oncologist 15(6):566–576

    Article  PubMed  Google Scholar 

  34. Zafar SY, Peppercorn JM, Schrag D et al (2013) The financial toxicity of cancer treatment: a pilot study assessing out-of-pocket expenses and the insured cancer patient’s experience. Oncologist 18(4):381–390

    Article  PubMed  Google Scholar 

  35. Himmelstein DU, Thorne D, Warren E, Woolhandler S (2009) Medical Bankruptcy in the United States, 2007: results of a National Study. Am J Med 122(8):741–746

    Article  PubMed  Google Scholar 

  36. Ramsey S, Blough D, Kirchhoff A et al (2013) Washington state cancer patients found to be at greater risk for bankruptcy than people without a cancer diagnosis. Health Aff (Millwood) 32(6):1143–1152

    Article  Google Scholar 

  37. Hagerty RG, Butow PN, Ellis PM et al (2005) Communicating with realism and hope: incurable cancer patients’ views on the disclosure of prognosis. J Clin Oncol 23(6):1278–1288

    Article  PubMed  Google Scholar 

  38. Mileshkin L, Schofield PE, Jefford M et al (2009) To tell or not to tell: the community wants to know about expensive anticancer drugs as a potential treatment option. J Clin Oncol 27(34):5830–5837

    Article  PubMed  Google Scholar 

  39. Bullock AJ, Hofstatter EW, Yushak ML, Buss MK (2012) Understanding patients’ attitudes toward communication about the cost of cancer care. J Oncol Pract 8(4):e50–e58

    Article  PubMed  Google Scholar 

  40. Sommers R, Goold SD, McGlynn EA, Pearson SD, Danis M (2013) Focus groups highlight that many patients object to clinicians’ focusing on costs. Health Aff 32(2):338–346

    Article  Google Scholar 

  41. Schnipper LE (2009) ASCO task force on the cost of cancer care. J Oncol Pract 5(5):218–219

    Article  PubMed  Google Scholar 

  42. Lipscomb J, Gotay CC, Snyder CF (2007) Patient-reported outcomes in cancer: a review of recent research and policy initiatives. CA Cancer J Clin 57(5):278–300

    Article  PubMed  Google Scholar 

  43. Hlubocky FJ, Cella D, Sher TG, Ratain MJ, Daugherty C (2012) Financial burdens (FB), quality of life, and psychological distress among advanced cancer patients (ACP) in phase I trials and their spousal caregivers (SC). ASCO Meet Abstr 30(15_suppl):6117

    Google Scholar 

  44. Aaronson NK, Ahmedzai S, Bergman B et al (1993) The European Organization for Research and Treatment of Cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology. J Natl Cancer Inst 85(5):365–376

    Article  PubMed  CAS  Google Scholar 

  45. Weeks JC, Cook EF, O’Day SJ et al (1998) Relationship between cancer patients’ predictions of prognosis and their treatment preferences. JAMA 279(21):1709–1714

    Article  PubMed  CAS  Google Scholar 

  46. Hofstatter EW (2010) Understanding patient perspectives on communication about the cost of cancer care: a review of the literature. J Oncol Pract 6(4):188–192

    Article  PubMed  Google Scholar 

  47. Schrag D, Hanger M (2007) Medical oncologists’ views on communicating with patients about chemotherapy costs: a pilot survey. J Clin Oncol 25(2):233–237

    Article  PubMed  Google Scholar 

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Conflict of interest

Dr. Wong was supported by P30CA006927 and K07 CA 136995 from the National Cancer Institute. Dr. Wong was a paid consultant to Independence Blue Cross. Dr. de Souza has received support from the Institute of Translational Medicine (ITM) Clinical and Translational Science Award grant number UL1 TR000430.

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Correspondence to Yu-Ning Wong.

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de Souza, J.A., Wong, YN. Financial distress in cancer patients. J Med Pers 11, 73–77 (2013). https://doi.org/10.1007/s12682-013-0152-3

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  • DOI: https://doi.org/10.1007/s12682-013-0152-3

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