Abstract
Consumer health informatics emerged in an effort to better address consumers’ articulated needs with managing their health concerns. Although developers initially focused on developing stand-alone tools, devices, and platforms, widespread deployment and adoption of broadband networks is enabling the creation of consumer health ecosystems that work automatically in the background to support patient needs. To ensure universal benefit from these tools, it will be important to maximize broadband deployment and adoption, enhance the design of emerging systems, and address privacy and security concerns. As this occurs, consumer health informatics tools will help create a radically different future healthcare system that will improve health outcomes and substantially reduce health disparities in ways that were not previously possible.
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References
Agency for Healthcare Research and Quality (AHRQ). (2016). 2015 National healthcare quality and disparities report and 5th anniversary update on the national quality strategy. https://www.ahrq.gov/research/findings/nhqrdr/nhqdr15/index.html.
American Association of Medical Colleges. (2010, June 1). Physician shortages to worsen without increases in residency training. https://www.aamc.org/download/153160/data/physician_shortages_to_worsen_without_increases_in_residency_tr.pdf
Anderson and Perrin (2018) 13% of Americans don’t use the internet. Who are they? http://www.pewresearch.org/facttank/2018/03/05/some-americans-dont-use-the-internet-who-are-they/
Assistant Secretary for Planning and Evaluation U.S. Department of Heath and Human Services (ASPE). (2016). Report to congress: EHealth and telemedicine. https://aspe.hhs.gov/system/files/pdf/206751/TelemedicineE-HealthReport.pdf
Bauer, U. E., Briss, P. A., Goodman, R. A., & Bowman, B. A. (2014). Prevention of chronic disease in the 21st century: Elimination of the leading preventable causes of premature death and disability in the USA. Lancet, 384(9937), 45–52.
Beckles, G., & Chou, C. F. (2013). Diabetes—United States, 2006 and 2010. MMWR Supplements, 62(3), 99–104.
Boulware, L. E., Cooper, L. A., Ratner, L. E., LaVeist, T. A., & Powe, N. R. (2003). Race and trust in the health care system. Public Health Reports, 118(4), 358–365.
Buerhaus, P. I. (2008). Current and future state of the nursing workforce. Journal of the American Medical Association, 300(20), 2422–2424. https://doi.org/10.1001/jama.2008.729
Casagrande, S. S., Gary, T. L., LaVeist, T. A., Gaskin, D. J., & Cooper, L. A. (2007). Perceived discrimination and adherence to medical care in a racially integrated community. Journal of General Internal Medicine, 22(3), 389–395.
Dall, T., West, T., Chakrabarti, R., & Iacobucci, W. (2015). The complexities of physician supply and demand: Projections from 2015 to 2025. Washington, DC: IHS.
Deloitte. (2013). Physician adoption of Health Information Technology: Implications for medical leaders and business partners. Deloitte Center for Health Solutions. https://www2.deloitte.com/content/dam/Deloitte/us/Documents/life-sciences-health-care/us-lshc-physician-adoption-10012014.pdf
Irizarry, T., DeVito Dabbs, A., Curran, C. R. (2015). Patient Portals and Patient Engagement: A State of the Science Review. Journal of Medical Internet Research (6):e148. https://doi.org/10.2196/jmir.4255PMID: 26104044
Eysenbach, G. (2001). What is e-health? Journal of Medical Internet Research, 3(2), E20.
Federal Communications Commission. (2010, March 17). Connecting America: The national broadband plan. Washington, DC. Retrieved from: http://www.broadband.gov/plan/
Fox, S., & Duggan, M. (2012). Mobile Health 2012. Pew Research Center, Internet and Technology. http://www.pewinternet.org/2012/11/08/mobile-health-2012/
Frank, S. (2000). Digital Health Care: The convergence of health care and the Internet. Journal of Ambulatory Care Management, 23(2), 8–17.
Gibbons, M. C. (2011). Use of Health Information Technology among Racial and Ethnic Underserved Communities. Perspectives in Health Information Management. 8(Winter). Published online. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3035830/
Gibbons, M. C., & Hoyt, R. E. (2014). Consumer health informatics (Chapter 10). In R. E. Hoyt & A. K. Yoshihashi (Eds.), Health information: Practical guide for healthcare and IT professionals (6th ed.). Pensacola, FL: Informatics Education.
Gibbons, M. C., Fleisher, L., Slamon, R. E., Bass, S., Kandadai, V., & Beck, J. R. (2011). Exploring the potential of Web 2.0 to address health disparities. Journal of Health Communications, 16(Suppl 1), 77–89.
Gibbons, M. C., Wilson, R. F., Samal, L., Lehman, C. U., Dickersin, K., Lehmann, H. P., … Bass, E. B. (2009). Impact of consumer health informatics applications. Evid Rep Technol Assess (Full Rep), (188), 1–546.
Gillespie, C. D., Wigington, C., & Hong, Y. (2013). Coronary heart disease and stroke deaths—United States, 2009. MMWR Supplements, 62(3), 157–160.
Howden, L. M., & Meyer, J. A. (2012). Age and sex composition 2010:2010 Census brief #C2010BR-03. https://www.census.gov/prod/cen2010/briefs/c2010br-03.pdf
Institute of Medicine. (2003). Unequal treatment: Confronting racial and ethnic disparities in health care. Washington DC: National Academies Press.
Kalra, A. D., Fisher, R. S., & Axelrod, P. (2010). Decreased length of stay and cumulative hospitalized days despite increased patient admissions and readmissions in an area of urban poverty. Journal of General Internal Medicine, 25(9), 930–935.
Kaplan, M. (Ed.). (2004). Cultural ergonomics, Advances in human performance and cognitive engineering research. New York, NY: Elsevier.
Korzenny, F., & Vann, L. (2009). Tapping into their connections: The multicultural world of social media marketing. Tallahassee, FL: Florida State University Center for Hispanic Marketing Communication.
LaVeist, T. A., Isaac, L. A., & Williams, K. P. (2009). Mistrust of health care organizations is associated with underutilization of health services. Health Services Research, 44(6), 2093–2105.
LaVeist, T. A., Nickerson, K. J., & Bowie, J. V. (2000). Attitudes about racism, medical mistrust, and satisfaction with care among African American and white cardiac patients. Medical Care Research and Review, 57(Suppl 1), 146–161.
Lin Goh, J. P. (2015). Privacy, Security and wearable techology. Landslides, 8(2), 1–8.
MacDorman, M. F., & Mathews, T. J. (2013). Infant deaths—United States, 2005-2008. MMWR Supplements, 62(3), 171–175.
Mansfield, M. (1987). Recognizing ergonomics variations: Human factors in technology transfer to newly industrializing countries. Journal of Technology Transfer, 11(2), 19–27.
Manhattan Research. (2010). Cybercitizen health v9.0. New York, NY: Manhattan Research.
Marchibroda, J. (2014). Health policy brief: Interoperability. Health Affairs. https://doi.org/10.1377/hpb2014.16
National Research Council. (2011). Healthcare comes home: The human factors. Washington DC: National Academies Press.
Norman, C. D., & Skinner, H. A. (2006). eHealth literacy: Essential skills for consumer health in a networked world. Journal of Medical Internet Research, 8(2), e9.
Office of the National Coordinator for Health IT (ONC), U.S. Department of Health and Human Services. (2017). Health IT dashboard: Quick stats. Retrieved 2 July, 2017, from https://dashboard.healthit.gov/quickstats/quickstats.php
Shrestha, L. B., & Heisler, E. J. (2011). The changing demographic profile of the United States. Congressional Research Service. https://fas.org/sgp/crs/misc/RL32701.pdf
Slabodkin, G. (2016). AMA CEO calls digital products modern-day ‘snake oil’. https://www.healthdatamanagement.com/news/ama-ceo-blasts-digital-health-products-as-modern-day-snake-oil
Smailhodzic, E., Hooijsma, W., Bonstra, A., & Langley, D. J. (2016). Social media use in healthcare: A systematic review of effects on patients and their relationships with healthcare professionals. BMC Health Services Research, 16, 422. https://doi.org/10.1186/s12913-016-1691-0
Television Bureau of Advertising. (n.d.) TV basics. https://www.tvb.org/Public/Research/TVBasics.aspx
Tuckson, R., Edmunds, M., & Hodgkins, M. (2017). Telehealth. The New England Journal of Medicine, 377, 1585–1592. https://doi.org/10.1056/NEJMsr1503323
United States Census Bureau (DATE). (2012). Projections show a slower growing, older, more diverse nation a half centrury from now. https://www.census.gov/newsroom/releases/archives/population/cb12-243.html
Valdez, R. S., Gibbons, M. C., Siegel, E. R., Kukafka, R., & Brennan, P. F. (2012). Designing consumer health IT to enhance usability among different racial and ethnic groups within the United States. Health and Technology, 2(4), 225–233. https://doi.org/10.1007/s12553-012-0031-6
Ward, B. W., & Schiller, J. S. (2013). Prevalence of multiple chronic conditions among US adults: Estimates from the National Health Interview Survey, 2010. Preventing Chronic Disease, 10, E65.
Weiser, M. (1991, September). The computer for the 21st century. Scientific American, 94–103. Retrieved from https://www.lri.fr/~mbl/Stanford/CS477/papers/Weiser-SciAm.pdf
Weissman, J. S., & Zinner, M. (2013). Comparative effectiveness on robotic surgery. JAMA, 309(7), 721–722. https://doi.org/10.1001/jama.2013.1107
Zickuhr, K., & Smith, A. (2012). Digital differences. Washington DC: Pew Internet and American Life Project, Pew Charitable Trusts http://www.english.illinois.edu/-people-/faculty/debaron/482/482readings/PEW_Class.pdf
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Gibbons, M.C., Shaikh, Y. (2019). Introduction to Consumer Health Informatics and Digital Inclusion. In: Edmunds, M., Hass, C., Holve, E. (eds) Consumer Informatics and Digital Health. Springer, Cham. https://doi.org/10.1007/978-3-319-96906-0_2
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