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Balancing Risk with Resilience: Using Holistic Psychosocial Screening and Assessment Tools Effectively with Adolescents and Young Adults with Cancer

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Nursing Adolescents and Young Adults with Cancer

Abstract

Holistic psychosocial assessment of adolescents and young adults (AYAs) with cancer is crucial to ensuring that these young people receive individualised support and care which is flexible, responsive, and tailored to their specific needs and resources. Repeated assessment across the cancer trajectory allows clinicians to monitor areas of strength and concern and adjust care in accordance with changes in the cancer situation. This chapter outlines the development and use of two such screening and assessment processes used with AYAs with cancer: the AYA Oncology Psychosocial Care Manual and Integrated Assessment Mapping. Four case studies are presented which illustrate how these processes may be adapted for individual AYAs, highlighting the benefits and challenges of adopting such approaches. This holistic approach to screening and assessment promotes a thorough exploration of the cancer experience from the young person’s perspective and identifies individual strengths as a means to building resilience. The familiarity that oncology nurses often have with their AYA patients and their cancer situation makes them particularly well-placed to facilitate these screening and assessment processes and lay the foundations for a positive and collaborative working relationship between the young person and their clinical care team.

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References

  1. Zebrack B, Santacroce SJ, Patterson P, Gubin A. Adolescents and young adults with cancer: a biopsychosocial approach. In: Pediatric psychosocial oncology: textbook for multidisciplinary care. New York, NY: Springer; 2016. p. 199–217.

    Chapter  Google Scholar 

  2. Patterson P, McDonald FEJ, Zebrack B, Medlow S. Emerging issues among adolescent and young adult cancer survivors. Semin Oncol Nurs. 2015;31(1):53–9.

    Article  PubMed  Google Scholar 

  3. Lewis P, Mooney-Somers J, Patterson P, Jordens CFC, Bennett D, McDonald FEJ, et al. Caring for young people with cancer: practical implications of qualitative engagement with cancer survivors and members of the multidisciplinary team The Australian. J Cancer Nurs. 2014;15(2):39–42.

    Google Scholar 

  4. Palmer S, Patterson P, Thompson K. A national approach to improving adolescent and young adult (AYA) oncology psychosocial care: the development of AYA-specific psychosocial assessment and care tools. Palliat Support Care. 2014;12(3):183–8.

    Article  PubMed  Google Scholar 

  5. Wakefield CE, Patterson P, McDonald FEJ, Wilson HL, Davis E, Sansom-Daly UM. Assessment of psychosocial outcomes in adolescents and young adults with cancer: a systematic review of available instruments. Clin Oncol Adolesc Young Adults. 2013;3:13–27.

    Google Scholar 

  6. CanTeen. Adolescent and young adult oncology psychosocial care manual, Rev. Ed. Newtown, NSW: CanTeen; 2015.

    Google Scholar 

  7. On Target (GB). On target intervention report: IAM website. Bristol: On Target (GB); 2015.

    Google Scholar 

  8. Community Affairs References Committee. The cancer journey: informing choice. Report on the inquiry into services and treatment options for persons with cancer. Canberra, ACT: The Senate Community Affairs References Committee; 2005.

    Google Scholar 

  9. Australian Government, Cancer Australia, CanTeen. National service delivery framework for adolescents and young adults with cancer. Canberra, ACT: Commonwealth of Australia; 2008.

    Google Scholar 

  10. Goldenring JM, Cohen E. Getting into adolescents’ heads. Contemp Pediatr. 1988;5:75–90.

    Google Scholar 

  11. Youth Cancer Service SA/NT. Adolescent and young adult oncology psychosocial survivorship care process. Adelaide, SA: Youth Cancer Service SA/NT; 2012.

    Google Scholar 

  12. National Health Service (NHS) England. 2013/13 NHS standard contract for cancer: teenagers and young adults. London: NHS; 2013.

    Google Scholar 

  13. National Institute for Health and Clinical Excellence. Improving outcomes in children and young people with cancer. London: National Institute for Health and Clinical Excellence; 2005.

    Google Scholar 

  14. MacMillan Cancer Support (GB). The recovery package. London: MacMillan Cancer Support (GB); 2013.

    Google Scholar 

  15. National Health Service (NHS) England. NHS five year forward view. London: NHS England; 2014.

    Google Scholar 

  16. National Health Service (NHS) England. Achieving world-class cancer outcomes: taking the strategy forward. London: NHS England; 2016.

    Google Scholar 

  17. Teenage and Young Adult Cancer Service South West. Help! I’ve got cancer: supporting the wellbeing of teenagers and young adults. Bristol: University Hospitals Bristol NHS Foundation Trust; 2014. Available from: www.tyahelp.co.uk.

    Google Scholar 

  18. Patterson P, McDonald FEJ, Anazodo A, Costa DSJ, Wakefield CE, White K, et al. Preliminary data from the validation of the distress thermometer for use among adolescents and young adults with cancer in Australia. Unpublished raw data; 2017.

    Google Scholar 

  19. IAM Portal Project (GB). IAM portal project: evaluation report. Bristol: University Hospitals Bristol; 2017.

    Google Scholar 

  20. Clinical Oncology Society of Australia Psychosocial Management of AYA Cancer Patients Working Group. Psychosocial management of AYAs diagnosed with cancer: guidance for health professionals. Sydney, NSW: Cancer Council Australia; 2015.

    Google Scholar 

  21. Quinn GP, Vadaparampil ST. Fertility preservation and adolescent/young adult cancer patients: physician communication challenges. J Adolesc Health. 2009;44(4):394–400.

    Article  PubMed  Google Scholar 

  22. Robertson EG, Sansom-Daly UM, Wakefield CE, Ellis SJ, McGill BC, Doolan EL, et al. Sexual and romantic relationships: experiences of adolescent and young adult cancer survivors. J Adolesc Young Adult Oncol. 2016;5:286–91.

    Article  PubMed  Google Scholar 

  23. Wiener L, Weaver MS, Bell CJ, Sansom-Daly UM. Threading the cloak: palliative care education for care providers of adolescents and young adults with cancer. Clin Oncol Adolesc Young Adults. 2015;5:1.

    PubMed  PubMed Central  Google Scholar 

  24. Zadeh S, Pao M, Wiener L. Opening end-of-life discussions: how to introduce Voicing My CHOiCESTM, an advance care planning guide for adolescents and young adults. Palliat Support Care. 2015;13:591–9.

    Article  PubMed  Google Scholar 

  25. Casillas J, Kahn KL, Doose M, Landier W, Bhatia S, Hernandez J, et al. Transitioning childhood cancer survivors to adult-centered healthcare: insights from parents, adolscent, and young adult survivors. Psychooncology. 2010;19:982–90.

    Article  PubMed  Google Scholar 

  26. Robertson EG, Wakefield CE, Marshall KM, Sansom-Daly UM. Strategies to improve adherence to treatment in adolescents and young adults with cancer: a systematic review. Clin Oncol Adolesc Young Adults. 2015;4:35–49.

    Article  Google Scholar 

  27. Haase EJ. The adolescent resilience model as a guide to interventions. J Pediatr Oncol Nurs. 2004;21(5):289–99.

    Article  PubMed  Google Scholar 

  28. Sansom-Daly UM, Wakefield CE. Distress and adjustment among adolescents and young adults with cancer: an empirical and conceptual review. Transl Pediatr. 2013;2(4):167–97.

    PubMed  PubMed Central  Google Scholar 

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Correspondence to Pandora Patterson PhD .

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Patterson, P., Hardman, F., Cheshire, J., Sansom-Daly, U. (2018). Balancing Risk with Resilience: Using Holistic Psychosocial Screening and Assessment Tools Effectively with Adolescents and Young Adults with Cancer. In: Olsen, P., Smith, S. (eds) Nursing Adolescents and Young Adults with Cancer. Springer, Cham. https://doi.org/10.1007/978-3-319-73555-9_7

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  • DOI: https://doi.org/10.1007/978-3-319-73555-9_7

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  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-73554-2

  • Online ISBN: 978-3-319-73555-9

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