Abstract
Measuring health status and health interventions is fundamental to guarantee the quality of services and good health for all. In the spinal cord injury (SCI) population, many outcome measures are used. However, at the international level, there is a lack of standardized and comparable measures resulting in outcome measures of poor or of unknown quality, which constitutes a waste of resources and, of course, is unethical. The present chapter describes the methodological approach to identifying outcome measures in spinal cord injury (SCI). For the present systematic review, four databases, namely MEDLINE, SCOPUS, CINAHL, and WEB OF SCIENCES, were used. After removing duplicates, 3333 papers were screened. Of these, 476 were included in this systematic review. Results show 298 assessment tools that evaluate people with SCI. Articles were then summarized according to the area of competence: Neurological Status, Psychological evaluation, Quality of Life, activity of daily living, upper Limb Function, urological aspects, assistive devices management, walking and balance, pediatrics, caregiving, nursing, and clinical evaluation.
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References
World Health Organization. The ICF: an overview. Geneva: WHO; 2001.
Cieza A, Stucki G. Content comparison of health-related quality of life (HRQOL) instruments based on the international classification of functioning, disability and health (ICF). Qual Life Res. 2005. https://doi.org/10.1007/s11136-004-4773-0.
Weigl M, Cieza A, Harder M, et al. Linking osteoarthritis-specific health-status measures to the international classification of functioning, disability, and health (ICF). Osteoarthr Cartil. 2003. https://doi.org/10.1016/S1063-4584(03)00086-4.
Kirchberger I, Cieza A, Biering-Sørensen F, et al. ICF Core Sets for individuals with spinal cord injury in the early post-acute context. Spinal Cord. 2010. https://doi.org/10.1038/sc.2009.128.
Ballert CS, Stucki G, Biering-Sørensen F, Cieza A. Towards the development of clinical measures for spinal cord injury based on the international classification of functioning, disability and health with Rasch analyses. Arch Phys Med Rehabil. 2014. https://doi.org/10.1016/j.apmr.2014.05.006.
Herrmann KH, Kirchberger I, Stucki G, Cieza A. The comprehensive ICF core sets for spinal cord injury from the perspective of occupational therapists: a worldwide validation study using the Delphi technique. Spinal Cord. 2011. https://doi.org/10.1038/sc.2010.168.
Herrmann KH, Kirchberger I, Stucki G, Cieza A. The Comprehensive ICF core sets for spinal cord injury from the perspective of physical therapists: a worldwide validation study using the Delphi technique. Spinal Cord. 2011. https://doi.org/10.1038/sc.2010.155.
Kirchberger I, Sinnott A, Charlifue S, et al. Functioning and disability in spinal cord injury from the consumer perspective: an international qualitative study using focus groups and the ICF. Spinal Cord. 2010. https://doi.org/10.1038/sc.2009.184.
Tomaschek R, Gemperli A, Rupp R, Geng V, Scheel-Sailer A. A systematic review of outcome measures in initial rehabilitation of individuals with newly acquired spinal cord injury: providing evidence for clinical practice guidelines. Eur J Phys Rehabil Med. 2019. https://doi.org/10.23736/S1973-9087.19.05676-4.
Dawson J, Shamley D, Jamous MA. A structured review of outcome measures used for the assessment of rehabilitation interventions for spinal cord injury. Spinal Cord. 2008. https://doi.org/10.1038/sc.2008.50.
Ioannidis JPA, Greenland S, Hlatky MA, et al. Increasing value and reducing waste in research design, conduct, and analysis. Lancet. 2014. https://doi.org/10.1016/S0140-6736(13)62227-8.
Prinsen CAC, Mokkink LB, Bouter LM, et al. COSMIN guideline for systematic reviews of patient-reported outcome measures. Qual Life Res. 2018. https://doi.org/10.1007/s11136-018-1798-3.
Mokkink LB, de Vet HCW, Prinsen CAC, et al. COSMIN risk of bias checklist for systematic reviews of patient-reported outcome measures. Qual Life Res. 2018. https://doi.org/10.1007/s11136-017-1765-4.
Terwee CB, Prinsen CAC, Chiarotto A, et al. COSMIN methodology for evaluating the content validity of patient-reported outcome measures: a Delphi study. Qual Life Res. 2018. https://doi.org/10.1007/s11136-018-1829-0.
Castelnuovo G, Giusti EM, Manzoni GM, et al. What is the role of the placebo effect for pain relief in neurorehabilitation? Clinical implications from the Italian consensus conference on pain in neurorehabilitation. Front Neurol. 2018. https://doi.org/10.3389/fneur.2018.00310.
Marquez MA, De Santis R, Ammendola V, et al. Cross-cultural adaptation and validation of the “spinal Cord Injury-Falls Concern Scale” in the Italian population. Spinal Cord. 2018;56(7):712–8. https://doi.org/10.1038/s41393-018-0070-6.
Berardi A, De Santis R, Tofani M, et al. The Wheelchair Use Confidence Scale: Italian translation, adaptation, and validation of the short form. Disabil Rehabil Assist Technol. 2018;13(4):i. https://doi.org/10.1080/17483107.2017.1357053.
Anna B, Giovanni G, Marco T, et al. The validity of rasterstereography as a technological tool for the objectification of postural assessment in the clinical and educational fields: pilot study. In: Advances in intelligent systems and computing; 2020. https://doi.org/10.1007/978-3-030-23884-1_8.
Panuccio F, Berardi A, Marquez MA, et al. Development of the Pregnancy and Motherhood Evaluation Questionnaire (PMEQ) for evaluating and measuring the impact of physical disability on pregnancy and the management of motherhood: a pilot study. Disabil Rehabil. 2020;2020:1–7. https://doi.org/10.1080/09638288.2020.1802520.
Amedoro A, Berardi A, Conte A, et al. The effect of aquatic physical therapy on patients with multiple sclerosis: A systematic review and meta-analysis. Mult Scler Relat Disord. 2020. https://doi.org/10.1016/j.msard.2020.102022.
Dattoli S, Colucci M, Soave MG, et al. Evaluation of pelvis postural systems in spinal cord injury patients: outcome research. J Spinal Cord Med. 2018;43:185–92.
Berardi A, Galeoto G, Guarino D, et al. Construct validity, test-retest reliability, and the ability to detect change of the Canadian Occupational Performance Measure in a spinal cord injury population. Spinal cord Ser cases. 2019. https://doi.org/10.1038/s41394-019-0196-6.
Ponti A, Berardi A, Galeoto G, Marchegiani L, Spandonaro C, Marquez MA. Quality of life, concern of falling and satisfaction of the sit-ski aid in sit-skiers with spinal cord injury: observational study. Spinal Cord Ser Cases. 2020. https://doi.org/10.1038/s41394-020-0257-x.
Panuccio F, Galeoto G, Marquez MA, et al. General Sleep Disturbance Scale (GSDS-IT) in people with spinal cord injury: a psychometric study. Spinal Cord. 2020; https://doi.org/10.1038/s41393-020-0500-0.
Monti M, Marquez MA, Berardi A, Tofani M, Valente D, Galeoto G. The Multiple Sclerosis Intimacy and Sexuality Questionnaire (MSISQ-15): validation of the Italian version for individuals with spinal cord injury. Spinal Cord. 2020. https://doi.org/10.1038/s41393-020-0469-8.
Galeoto G, Colucci M, Guarino D, et al. Exploring validity, reliability, and factor analysis of the Quebec user evaluation of satisfaction with assistive technology in an Italian population: a cross-sectional study. Occup Ther Heal Care. 2018. https://doi.org/10.1080/07380577.2018.1522682.
Colucci M, Tofani M, Trioschi D, Guarino D, Berardi A, Galeoto G. Reliability and validity of the Italian version of Quebec User Evaluation of Satisfaction with Assistive Technology 2.0 (QUEST-IT 2.0) with users of mobility assistive device. Disabil Rehabil Assist Technol. 2019. https://doi.org/10.1080/17483107.2019.1668975.
Berardi A, Galeoto G, Lucibello L, Panuccio F, Valente D, Tofani M. Athletes with disability’ satisfaction with sport wheelchairs: an Italian cross sectional study. Disabil Rehabil Assist Technol. 2020. https://doi.org/10.1080/17483107.2020.1800114.
Liberati A, Altman DG, Tetzlaff J, et al. The PRISMA statement for reporting systematic reviews and meta-analyses of studies that evaluate health care interventions: explanation and elaboration. J Clin Epidemiol. 2009. https://doi.org/10.1016/j.jclinepi.2009.06.006.
Higgins JP. Cochrane handbook for systematic reviews of interventions. Version 5.1. 0 [updated March 2011]. The Cochrane Collaboration. 2011. www.cochrane-handbook.org.
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Galeoto, G., Tofani, M., Grieco, G., D’Angelo, M., Berardi, A. (2021). Methodological Approach to Identifying Outcome Measures in Spinal Cord Injury. In: Galeoto, G., Berardi, A., Tofani, M., Auxiliadora Marquez, M. (eds) Measuring Spinal Cord Injury. Springer, Cham. https://doi.org/10.1007/978-3-030-68382-5_3
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