Abstract
For identifying the best treatment methods and routines to help patients return to their previous lives, the first step is to identify the correct assessment tool to robustly assess the efficacy of interventions both at the level of clinical treatments and in the context of clinical trials. This systematic review aimed to provide clinicians and researchers information regarding existing outcome measures to assess people with SCI. Results of this systematic review show 298 assessment tools that evaluate people with SCI. Authors have described the flavor of the marked heterogeneity in using assessment tools and have deliberately avoided suggestions that one scale is better than another. They have focused on the most commonly used scales. Building an international consensus in this area will ensure an improvement in the quality of care, rehabilitation, and health care systems’ efficiency. In addition, using the same outcome measures at the international level can help to have comparable data and identify evidence-based best practices.
This is a preview of subscription content, log in via an institution to check access.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
References
World Health Organization (WHO). Community health needs assessment. An introductory guide for the family health nurse in Europe. Geneva: WHO; 2001.
Gerhart KA, Bergstrom E, Charlifue SW, Menter RR, Whiteneck GG. Long-term spinal cord injury: functional changes over time. Arch Phys Med Rehabil. 1993. https://doi.org/10.1016/0003-9993(93)90057-H.
Lidal IB, Huynh TK, Biering-Sørensen F. Return to work following spinal cord injury: a review. Disabil Rehabil. 2007. https://doi.org/10.1080/09638280701320839.
Whiteneck G, Meade MA, Dijkers M, Tate DG, Bushnik T, Forchheimer MB. Environmental factors and their role in participation and life satisfaction after spinal cord injury. Arch Phys Med Rehabil. 2004. https://doi.org/10.1016/j.apmr.2004.04.024.
Harrison JK, McArthur KS, Quinn TJ. Assessment scales in stroke: Clinimetric and clinical considerations. Clin Interv Aging. 2013. https://doi.org/10.2147/CIA.S32405.
Castelnuovo G, Giusti EM, Manzoni GM, et al. What is the role of the placebo effect for pain relief in neurorehabilitation? Clinical implications from the Italian consensus conference on pain in neurorehabilitation. Front Neurol. 2018. https://doi.org/10.3389/fneur.2018.00310.
Marquez MA, De Santis R, Ammendola V, et al. Cross-cultural adaptation and validation of the “spinal cord injury-falls concern scale” in the Italian population. Spinal Cord. 2018;56(7):712–8. https://doi.org/10.1038/s41393-018-0070-6.
Dattoli S, Colucci M, Soave MG, et al. Evaluation of pelvis postural systems in spinal cord injury patients: outcome research. J Spinal Cord Med. 2018;43:185–92.
Berardi A, Galeoto G, Guarino D, et al. Construct validity, test-retest reliability, and the ability to detect change of the Canadian occupational performance measure in a spinal cord injury population. Spinal Cord Ser Cases. 2019. https://doi.org/10.1038/s41394-019-0196-6.
Ponti A, Berardi A, Galeoto G, Marchegiani L, Spandonaro C, Marquez MA. Quality of life, concern of falling and satisfaction of the sit-ski aid in sit-skiers with spinal cord injury: observational study. Spinal Cord Ser Cases. 2020. https://doi.org/10.1038/s41394-020-0257-x.
Panuccio F, Galeoto G, Marquez MA, et al. General sleep disturbance scale (GSDS-IT) in people with spinal cord injury: a psychometric study. Spinal Cord. 2020. https://doi.org/10.1038/s41393-020-0500-0.
Monti M, Marquez MA, Berardi A, Tofani M, Valente D, Galeoto G. The multiple sclerosis intimacy and sexuality questionnaire (MSISQ-15): validation of the Italian version for individuals with spinal cord injury. Spinal Cord. 2020. https://doi.org/10.1038/s41393-020-0469-8.
Galeoto G, Colucci M, Guarino D, et al. Exploring validity, reliability, and factor analysis of the Quebec user evaluation of satisfaction with assistive Technology in an Italian Population: a cross-sectional study. Occup Ther Heal Care. 2018. https://doi.org/10.1080/07380577.2018.1522682.
Colucci M, Tofani M, Trioschi D, Guarino D, Berardi A, Galeoto G. Reliability and validity of the Italian version of Quebec user evaluation of satisfaction with assistive technology 2.0 (QUEST-IT 2.0) with users of mobility assistive device. Disabil Rehabil Assist Technol. 2019. https://doi.org/10.1080/17483107.2019.1668975.
Berardi A, Galeoto G, Lucibello L, Panuccio F, Valente D, Tofani M. Athletes with disability’ satisfaction with sport wheelchairs: an Italian cross sectional study. Disabil Rehabil Assist Technol. 2020. https://doi.org/10.1080/17483107.2020.1800114.
Berardi A, De Santis R, Tofani M, et al. The Wheelchair Use Confidence Scale: Italian translation, adaptation, and validation of the short form. Disabil Rehabil Assist Technol. 2018;13(4):i. https://doi.org/10.1080/17483107.2017.1357053.
Anna B, Giovanni G, Marco T, et al. The validity of rasterstereography as a technological tool for the objectification of postural assessment in the clinical and educational fields: pilot study. In: Advances in intelligent systems and computing; 2020. https://doi.org/10.1007/978-3-030-23884-1_8.
Panuccio F, Berardi A, Marquez MA, et al. Development of the pregnancy and motherhood evaluation questionnaire (PMEQ) for evaluating and measuring the impact of physical disability on pregnancy and the management of motherhood: a pilot study. Disabil Rehabil. 2020:1–7. https://doi.org/10.1080/09638288.2020.1802520.
Amedoro A, Berardi A, Conte A, et al. The effect of aquatic physical therapy on patients with multiple sclerosis: a systematic review and meta-analysis. Mult Scler Relat Disord. 2020. https://doi.org/10.1016/j.msard.2020.102022.
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2021 The Author(s), under exclusive license to Springer Nature Switzerland AG
About this chapter
Cite this chapter
Galeoto, G., Auxiliadora Marquez, M., Tofani, M., Berardi, A. (2021). Research Perspectives and Considerations in Assessing Spinal Cord Injury Population. In: Galeoto, G., Berardi, A., Tofani, M., Auxiliadora Marquez, M. (eds) Measuring Spinal Cord Injury. Springer, Cham. https://doi.org/10.1007/978-3-030-68382-5_15
Download citation
DOI: https://doi.org/10.1007/978-3-030-68382-5_15
Published:
Publisher Name: Springer, Cham
Print ISBN: 978-3-030-68381-8
Online ISBN: 978-3-030-68382-5
eBook Packages: MedicineMedicine (R0)