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Measuring Caregiver in Spinal Cord Injury

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Measuring Spinal Cord Injury

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Abstract

This chapter aims to describe and evaluate the assessment tools used for evaluating caregiving in people with SCI, through a systematic review of scientific literature. The systematic review was conducted in line with COnsensus-based Standards for the selection of health Measurement Instruments (COSMIN) on PubMed, Scopus, CINAHL, and Web of Science. After removing duplicates, 3333 papers were screened. Of these, 476 were included in this systematic review. Among these, four papers were considered for this chapter. Results show four assessment tools that evaluate the caregiving area for persons with SCI. The scales evaluate mainly caregiver burden and family needs. These are the Caregiver Burden Scale (CBS), the Caregiver Burden Index (CBI), the Zarit Caregiver Burden Interview Short Form (ZBI), and the Family Needs Questionnaire (FNQ). Specifically, CBS assesses the subjective impact of the burden of taking care of people with chronic diseases. The ZBI assesses the tension perceived by the caregiver.

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Authors and Affiliations

  1. R.O.M.A. Rehabilitation Outcome Measures Assessment, Non-Profit Organization, Rome, Italy

    Marina D’Angelo, Giulia Grieco & Francescaroberta Panuccio

  2. Department of Human Neurosciences, Sapienza University of Rome, Rome, Italy

    Anna Berardi

Authors
  1. Marina D’Angelo
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  2. Giulia Grieco
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  3. Francescaroberta Panuccio
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  4. Anna Berardi
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Corresponding author

Correspondence to Anna Berardi .

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Editors and Affiliations

  1. Department of Human Neurosciences, Sapienza University of Rome, Rome, Italy

    Giovanni Galeoto

  2. Department of Human Neurosciences, Sapienza University of Rome, Rome, Italy

    Anna Berardi

  3. Department of Neurorehabilitation and Robotics, Bambino Gesù Paediatric Hospital, Rome, Italy

    Marco Tofani

  4. Universidad Fernando Pessoa-Canarias, Las Palmas, Spain

    Maria Auxiliadora Marquez

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D’Angelo, M., Grieco, G., Panuccio, F., Berardi, A. (2021). Measuring Caregiver in Spinal Cord Injury. In: Galeoto, G., Berardi, A., Tofani, M., Auxiliadora Marquez, M. (eds) Measuring Spinal Cord Injury. Springer, Cham. https://doi.org/10.1007/978-3-030-68382-5_13

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  • DOI: https://doi.org/10.1007/978-3-030-68382-5_13

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  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-030-68381-8

  • Online ISBN: 978-3-030-68382-5

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