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Development of a Chronic Care Ostomy Self-Management Program

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Abstract

Each year a percentage of the 1.2 million men and women in the United States with a new diagnosis of colorectal cancer join the 700,000 people who have an ostomy. Education targeting the long-term, chronic care of this population is lacking. This report describes the development of a Chronic Care Ostomy Self-Management Program, which was informed by (1) evidence on published quality-of-life changes for cancer patients with ostomies, (2) educational suggestions from patients with ostomies, and (3) examination of the usual care of new ostomates to illustrate areas for continued educational emphases and areas for needed education and support. Using these materials, the Chronic Care Ostomy Self-Management Program was developed by a team of multi-disciplinary researchers accompanied by experienced ostomy nurses. Testing of the program is in process. Pilot study participants reported high satisfaction with the program syllabus, ostomy nurse leaders, and ostomate peer buddies.

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Acknowledgment

HSRD IIR 02-221 Veteran Affairs Health and Science Merit Review Grant

R21 CA133337, R01 CA 106912, National Cancer Institute

Arizona Cancer Center Support Grant CA 023074, National Cancer Institute

Author information

Authors and Affiliations

  1. Division of Nursing Research and Education, City of Hope National Medical Center/Beckman Research Institute, 1500 E. Duarte Road, Duarte, CA, 91010, USA

    Marcia Grant

  2. Yale School of Nursing, New Haven, CT, USA

    Ruth McCorkle

  3. The Center for Health Research, Kaiser Permanente Northwest, Portland, OR, USA

    Mark C. Hornbrook

  4. Southern Arizona Veterans Affairs Health Care System, Tucson, AZ, USA

    Christopher S. Wendel & Robert Krouse

  5. University of Arizona College of Medicine, Tucson, AZ, USA

    Robert Krouse

Authors
  1. Marcia Grant
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  2. Ruth McCorkle
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  3. Mark C. Hornbrook
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  4. Christopher S. Wendel
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  5. Robert Krouse
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Corresponding author

Correspondence to Marcia Grant.

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Grant, M., McCorkle, R., Hornbrook, M.C. et al. Development of a Chronic Care Ostomy Self-Management Program. J Canc Educ 28, 70–78 (2013). https://doi.org/10.1007/s13187-012-0433-1

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  • DOI: https://doi.org/10.1007/s13187-012-0433-1

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