Abstract
Goals
In order to improve the support for family of terminally ill patients who cared for a dying relative at home, a project with a group programme was started. This article is an evaluation of the programme. The aims of this study were to describe the opinions of participants in a support group programme about the programme and how they felt they had benefited from it.
Patients and methods
All subjects (n=39) who completed the programme answered five open-ended questions, and 12 of them were interviewed in semi-structured interviews that were analysed using the phenomenographic method.
Results
Three main categories were identified in the interviews: (1) Practical condition and external circumstance—which condition had to be met for participation in the programme. (2) Group effects—the subjects felt that the programme was helpful in several respects, they perceived the programme being an important complement to the palliative home care, they benefited from mutual experiences shared among group members, the programme was also beneficial to the patients and was perceived to have had a health-promoting effect on the relatives. (3) The disease—the issue of how much the patients’ disease affecting the relative’s situation were raised in the groups.
Conclusion
The results showed the value of the programme for relatives of terminally ill patients nursed in their home. The subjects emphasised the importance of the opportunity to meet people who are in a similar situation.
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References
Beck-Friis B (1993) Hospital based home care of terminally ill cancer patients. The Motala model. Thesis, Uppsala University
Berglund G, Bolund C, Gustavsson U-L, Sjödén P-O (1993) Starting again-A comparison study of a group rehabilitation program for cancer patients. Acta Oncologica 3:109–120
Berglund G, Petersson L-M, Eriksson K, Häggman M (2003) “Between men”—patient perceptions and priorities in a rehabilitation program for men with prostate cancer. Patient Educ Couns 49(3):285–292
Cain N, Kohorn E, Quinlan D, Schwartz E (1986) Psychosocial benefits of a cancer support group. Cancer 57:183–189
Carlsson M, Strang P (1996) Educational group support for patients with gynaecological cancer and their families. Support Care Cancer 4:102–109
Carlsson M, Strang P (1998) A controlled study of an educational support programme for patients with gynaecological cancer and their families. Acta Oncologica 37(3):269–275
Dahlgren L, Fallsberg M (1991) Phenomenography as a qualitive approach in socialpharmacy research. J Soc Admin Pharm 8(4):150–156
Davies B, Reimer J, Martens N (1990) Families in supportive care—Part 1: The transition of fading away: The nature of the transition. J Palliat Care 6(3):12–20
Ferrell B, Rhiner M, Ferrell B (1993) Development and implementation of a pain education program. Cancer 1(72):3426–3432
Ferrell B, Grant M, Chan J, Ahn C, Ferrell B (1995) The impact of cancer pain education on family caregivers of elderly patients. Oncological Nurses Forum (8):1211–1218
Gomas J (1993) Palliative care at home: a reality or mission impossible? Palliat Med 7 (Suppl 3):45–59
Heinrich R, Schag C (1985) Stress and activity management; Group treatment for cancer patients and spouses. J Consult Clin Psychol 53:439–446
Hildingh C (1996) Self-help Groups Related to Coronary Heart Disease. Lay and Nursing Support. Thesis. Kuopio
House J (1981) Work stress and social support. Addison-Wesley, Reading, MA
Marton F (1981) Phenomenography-describing conceptions of the world around us. Instruct Sci 10:177–200
Mason (1996) Qualitative researching. Sage. London
Patton M (1990) Qualitative evaluation and research methods. Sage, London
Pasacreta J, Barg F, Nuamah I, McCorkle R (2000) Participant characteristics before and 4 months after attendance at a family caregiver cancer education program. Cancer Nurs 23(4):295–303
Robinson K, Angeletti K, Barg F, Pasacreta J, McCorkle R, Yasko J (1998) The development of a family caregiver cancer education program. J Cancer Educ 13:116–121
Rollison B, Carlsson M (2002) Evaluation of Advanced Home Care (AHC). The next-of-kins’ experiences. Eur J Cancer Nurs 6(1):100–106
Slevin M, Nichols S, Downer S, Wilson P, Lister T et al (1996) Emotional support for cancer patients: what do patients really want? Br J Cancer 74:1275–1279
SOU-rapport 1996:133 (1996) Jämställd vård. Olika vård på lika villkor. Utredning om bemötande av kvinnor och män inom hälso- och sjukvården. Stockholm: Nordstedts tryckeri
SOU-rapport 2001:6 (2001) Döden angår oss alla—värdig vård vid livets slut. Kommittén om vård i livets slutskede. Stockholm: Fritzes offentliga publikationer
Svensk författningssamling, SFS 1997:313, § 5: Socialtjänstens innehåll. Tillägg till 1980:620, Socialtjänstlagen
World Health Organization Expert Committee on Cancer Pain Relief and Active Support Care (1990) Cancer pain relief and palliative care: report of a WHO Expert Committee. Geneva, technical report series.
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This group programme was supported by grants from Socialstyrelsen.
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Witkowski, Å., Carlsson, M.E. Support group programme for relatives of terminally ill cancer patients. Support Care Cancer 12, 168–175 (2004). https://doi.org/10.1007/s00520-003-0518-9
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DOI: https://doi.org/10.1007/s00520-003-0518-9