Abstract
Accumulating evidence has supported the view that cancer affects not only the patients/survivors but also their family members. The impact on various aspects of the family caregivers’ quality of life (QOL) is significant throughout the trajectory of the illness and beyond the patients’ survivorship. Significant gaps, however, remain in our understanding of the effects of family caregiving beyond the time of diagnosis and treatment. In addition, theoretically and methodologically rigorous research on various aspects of the family’s QOL, including not only the psychological but also the physical, spiritual, and behavioral adjustment to cancer in the family, across the full spectrum of caregivership, remains sparse. Studies testing the usefulness of family-based interventions across the trajectory of the illness are also needed.
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References
American Cancer Society. Cancer facts and figures, 2011. Atlanta, GA: American Cancer Society; 2011.
Kim Y, Given BA. Quality of life of family caregivers of cancer survivors across the trajectory of the illness. Cancer. 2008;112(11 suppl):2556–68.
Kim Y, Schulz R, Carver CS. Benefit finding in the cancer caregiving experience. Psychosom Med. 2007;69:283–91.
McCausland J, Pakenham KI. Investigation of the benefits of HIV/AIDS caregiving and relations among caregiving adjustment, benefit finding, and stress and coping variables. AIDS Care. 2003;15:853–69.
Ferrell BR, Dow KH, Grant M. Measurement of the quality of life in cancer survivors. Qual Life Res. 1995;4:523–31.
Bloom JR. Surviving and thriving? Psychooncology. 2002;11:89–92.
Kim Y, Spillers RL. Quality of life of family caregivers at 2 years after a relative’s cancer diagnosis. Psychooncology. 2010;19:431–40.
Baltes MM, Carstensen LL. The process of successful aging: selection, optimization and compensation. In: Staudinger UM, Lindenberger U, editors. Understanding human development: dialogues with lifespan psychology. Dordrecht, Netherlands: Kluwer Academic Publishers; 2003.
Kim Y, Schulz R. Family caregivers’ strains: comparative analysis of cancer caregiving with dementia, diabetes, and frail elderly caregiving. J Aging Health. 2008;20:483–503.
Yabroff KR, Kim Y. Time costs associated with informal caregiving for cancer patients. Cancer. 2009;115(18 suppl):4362–73.
Wolfson C, Wolfson DB, Asgharian M, et al. A reevaluation of the duration of survival after the onset of dementia. N Engl J Med. 2001;344:1111–6.
Kim Y, Kashy DA, Spillers RL, Evans TV. Needs assessment of family caregivers of cancer survivors: three cohorts comparison. Psychooncology. 2010;19:573–82.
Pinquart M, Sörensen S. Associations of stressors and uplifts of caregiving with caregiver burden and depressive mood: a meta-analysis. J Gerontol B Psychol Sci Soc Sci. 2003;58(2):112–28.
Pinquart M, Sörensen S. Ethnic differences in stressors, resources, and psychological outcomes of family caregiving: a meta-analysis. Gerontologist. 2005;45: 90–106.
Vitaliano PP, Zhang J, Scanlan JM. Is caregiving hazardous to one’s physical health? A meta-analysis. Psychol Bull. 2003;129:946–72.
Manne SL, Ostroff J, Winkel G, Goldstein L, Fox K, Grana G. Posttraumatic growth after breast cancer: patient, partner, and couple perspectives. Psychosom Med. 2004;66:442–54.
Segerstrom SC, Miller GE. Psychological stress and the human immune system: a meta-analytic study of 30 years of inquiry. Psychol Bull. 2004;130:601–30.
Kicolt-Glaser JK, Preacher KJ, MacCallum RC, Atkinson C, Malarkey WB, Glaser R. Chronic stress and age-related increases in the proinflammatory cytokine IL-6. Proc Nat Acad Sci U S A. 2003;100:9090–5.
Carter PA. Caregivers’ descriptions of sleep changes and depressive symptoms. Oncol Nurs Forum. 2002;29:1277–83.
Beach SR, Schulz R, Yee JL, Jackson S. Negative and positive health effects of caring for a disabled spouse: longitudinal findings from the caregiver health effects study. Psychol Aging. 2000;15:259–71.
Burton LC, Newsom JT, Schulz R, Hirsch CH, German PS. Preventive health behaviors among spousal caregivers. Prev Med. 1997;26:162–9.
Grunfeld E, Coyle D, Whelan T, Clinch J, Reyno L, Earle CC, et al. Family caregiver burden: results of a longitudinal study of breast cancer patients and their principal caregivers. Can Med Assoc J. 2004;170: 1795–801.
Raveis VH, Karus DG, Siegel K. Correlates of depressive symptomatology among adult daughter caregivers of a parent with cancer. Cancer. 1998;83:1652–63.
Kershaw T, Northouse L, Kritpracha C, Schafenacker A, Mood D. Coping strategies and quality of life in women with advanced breast cancer and their family caregivers. Psychol Health. 2004;19:139–55.
Holmes TH, Rahe RH. The social readjustment rating scale. J Psychosom Res. 1967;11:213–8.
Parkes CM. Bereavement in adult life. BMJ. 1998;316:856–9.
Stroebe W, Stroebe WS. Determinants of adjustment to bereavement in younger widows and widowers. In: Stroebe MD, Stroebe W, Hansson RO, editors. Handbook of bereavement: theory, research and intervention. New York: Cambridge University Press; 1993. p. 208–26.
Hebert RS, Prigerson HG, Schulz R, Arnold RM. Preparing caregivers for the death of a loved one: a theoretical framework and suggestions for future research. J Palliat Med. 2006;9:1164–71.
Chen JH, Gill TM, Prigerson HG. Health behaviors associated with better quality of life for older bereaved persons. J Palliat Med. 2005;8:96–106.
Pearce MJ, Chen J, Silverman GK, Kasl SV, Rosenheck R, Prigerson HG. Religious coping, health, and health service use among bereaved adults. Int J Psychiatry Med. 2002;32:179–99.
Chan EK, O’Neill I, McKenzie M, Love A, Kissane DW. What works for therapists conducting family meetings: treatment integrity in family-focused grief therapy during palliative care and bereavement. J Pain Symptom Manage. 2004;27:502–12.
Kissane DW, Bloch S, McKenzie M, McDowall AC, Nitzan R. Family grief therapy: a preliminary account of a new model to promote healthy family functioning during palliative care and bereavement. Psychooncology. 1998;7:14–25.
Kelly B, Edwards P, Synott R, Neil C, Baillie R, Battistutta D. Predictors of bereavement outcome for family carers of cancer patients. Psychooncology. 1999;8:237–49.
Maciejewski PK, Zhang B, Block SD, Prigerson HG. An empirical examination of the stage theory of grief. JAMA. 2007;297:716–23.
Rossi FS, Zotti AM, Massara G, Nuvolone G. A comparative assessment of psychological and psychosocial characteristics of cancer patients and their caregivers. Psychooncology. 2003;12:1–7.
Goldstein J, Alter CL, Axelrod R. A psychoeducational bereavement-support group for families provided in an outpatient cancer center. J Cancer Educ. 1996;11:233–7.
Carver CS, Smith RG, Petronis VM, Antoni MH. Quality of life among long-term survivors of breast cancer: different types of antecedents predict different classes of outcomes. Psychooncology. 2006;15:749–58.
Mellon S, Northouse LL, Weiss LK. A population-based study of the quality of life of cancer survivors and their family caregivers. Cancer Nurs. 2006;29: 120–31.
Baider L, Bengel J. Cancer and the spouse: gender-related differences in dealing with health care and illness. Crit Rev Oncol Hematol. 2001;40:115–23.
Hagedoorn M, Buunk BP, Kuijer RG, Wobbes T, Sanderman R. Couples dealing with cancer: role and gender differences regarding psychological distress and quality of life. Psychooncology. 2000;9: 232–42.
Northouse LL, Mood D, Templin T, Mellon S, George T. Couples’ patterns of adjustment to colon cancer. Soc Sci Med. 2000;50:271–84.
Kim Y, Kashy DA, Wellisch DK, Spillers RL, Kaw C, Smith T. Quality of life of couples dealing with cancer: dyadic and individual adjustment among breast and prostate cancer survivors and their spousal caregivers. Ann Behav Med. 2008;35:230–8.
Weitzner MA, McMillan SC, Jacobsen PB. Family caregiver quality of life: differences between curative and palliative cancer treatment settings. J Pain Symptom Manage. 1999;17:418–28.
McCorkle R, Robinson L, Nuamah I, Lev E, Benoliel JQ. The effects of home nursing care for patients during terminal illness on the bereaved’s psychological distress. Nurs Res. 1998;47:2–10.
Given BA, Given CW, Kozachik S. Family support in advanced cancer. CA Cancer J Clin. 2001;51: 213–31.
Schulz R, Beach SR. Caregiving as a risk factor for mortality: the Caregiver Health Effects Study. JAMA. 1999;282:2215–9.
Schulz R, Mendelsohn AB, Haley WE, Mahoney D, Allen RS, Zhang S, et al. End-of-life care and the effects of bereavement on family caregivers of persons with dementia. N Engl J Med. 2003;349: 1936–42.
Czaja SJ, Schulz R, Lee CC, Belle SH. A methodology for describing and decomposing complex psychosocial and behavioral interventions. Psychol Aging. 2003;18:385–95.
Kenny DA, Kashy DA, Cook WL. Dyadic data analysis. New York, NY: Guilford Press; 2006.
Bryk AS, Raudenbush SW. Hierarchical linear models for social and behavioral research: applications and data analysis methods. 1st ed. Newbury Park: Sage Publications; 1992.
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Kim, Y. (2013). Cancer Caregivership. In: Carr, B., STEEL, J. (eds) Psychological Aspects of Cancer. Springer, Boston, MA. https://doi.org/10.1007/978-1-4614-4866-2_13
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