Skip to main content

Psychological and Social Impact of Being a Brain Tumor Survivor: Adult Issues

  • Chapter
  • First Online:
Late Effects of Treatment for Brain Tumors

Part of the book series: Cancer Treatment and Research ((CTAR,volume 150))

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 89.00
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 119.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD 169.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

References

  1. Davis W. Ethical conflicts in the vocational rehabilitation of stroke survivors. Top Stroke Rehabil. 2002;9:57–60.

    Article  PubMed  Google Scholar 

  2. Becker G, Kaufman SR. Managing an uncertain illness trajectory in old age: patients' and physicians' views of stroke. Med Anthropol Quar. 1995;9:165–187.

    Article  CAS  Google Scholar 

  3. Teasdale TW, Engberg AW. Psychosocial consequences of stroke: a long-term population-based follow-up. Brain Inj. 2005;19:1049–1058.

    Article  PubMed  CAS  Google Scholar 

  4. Astrom M, Asplund K, Astrom T. Psychosocial function and life satisfaction after stroke. Stroke. J Cerebral Circ. 1992;23:527–531.

    CAS  Google Scholar 

  5. Flick CL. Stroke rehabilitation. 4. Stroke outcome and psychosocial consequences. Arch Phys Med Rehabil. 1999;80:S21–S26.

    Article  PubMed  CAS  Google Scholar 

  6. Glass TA, Dym B, Greenberg S, et al. Psychosocial intervention in stroke: Families in Recovery from Stroke Trial (FIRST). Am J Orthopsychiatry. 2000;70:169–181.

    Article  PubMed  CAS  Google Scholar 

  7. Smolkin C, Cohen BS. Socioeconomic factors affecting the vocational success of stroke patients. Arch Phys Med Rehabil. 1974;55:269–271.

    PubMed  CAS  Google Scholar 

  8. Tuomilehto J, Nuottimaki T, Salmi K, et al. Psychosocial and health status in stroke survivors after 14 years. Stroke. J Cerebral Circ. 1995;26:971–975.

    CAS  Google Scholar 

  9. Vandiver VL, Johnson J, Christofero-Snider C. Supporting employment for adults with acquired brain injury: a conceptual model. J Head Trauma Rehabil. 2003;18:457–463.

    Article  PubMed  Google Scholar 

  10. Turner-Stokes L, Wade D. Rehabilitation following acquired brain injury: concise guidance. Clin Med (London, England). 2004;4:61–65.

    PubMed  Google Scholar 

  11. Webster G, Daisley A, King N. Relationship and family breakdown following acquired brain injury: the role of the rehabilitation team. Brain Inj. 1999;13:593–603.

    Article  PubMed  CAS  Google Scholar 

  12. Turner-Stokes L, Disler PB, Nair A, et al. Multi-disciplinary rehabilitation for acquired brain injury in adults of working age. Cochrane Database Syst Rev (Online). 2005:CD004170.

    Google Scholar 

  13. Eriksson G, Tham K, Borg J. Occupational gaps in everyday life 1–4 years after acquired brain injury. J Rehabil Med. 2006;38:159–165.

    Article  PubMed  Google Scholar 

  14. Florian V, Katz S, Lahav V. Impact of traumatic brain damage on family dynamics and functioning: a review. Brain Inj. 1989;3:219–233.

    Article  PubMed  CAS  Google Scholar 

  15. Johansson U, Tham K. The meaning of work after acquired brain injury. Am J Occup Ther. 2006;60:60–69.

    Article  PubMed  Google Scholar 

  16. Mateer CA, Sira CS. Cognitive and emotional consequences of TBI: Intervention strategies for vocational rehabilitation. Neuro Rehabil. 2006;21:315–326.

    Google Scholar 

  17. Scott JN, Rewcastle NB, Brasher PM, et al. Which glioblastoma multiforme patient will become a long-term survivor? A population-based study. Ann Neurol. 1999;46:183–188.

    Article  PubMed  CAS  Google Scholar 

  18. Fieldman J. Odds and Ends (Closing keynote speech). In: Making Headlines: A Brain Tumor Conference. NYU Medical Center, New York, NY: The Brain Tumor Society; 1996.

    Google Scholar 

  19. Senger D, Cairncross JG, Forsyth PA. Long-term survivors of glioblastoma: statistical aberration or important unrecognized molecular subtype? Cancer J (Sudbury, Mass). 2003;9:214–221.

    Article  PubMed  Google Scholar 

  20. Calhoun RD. Practice guidelines for patients with rare cancers. Cancer Prac. 1998;6:247–250.

    Article  CAS  Google Scholar 

  21. Maxwell T, Aldredge-Clanton J. Survivor guilt in cancer patients: a pastoral perspective. J Pastoral Care. 1994;48:25–31.

    PubMed  CAS  Google Scholar 

  22. Vamos M. Survivor guilt and chronic illness. Aust N Z J Psychiatry. 1997;31:592–596.

    Article  PubMed  CAS  Google Scholar 

  23. Salander P, Bergenheim AT, Henriksson R. How was life after treatment of a malignant brain tumour? Soc Sci Med. (1982). 2000;51:589–598.

    Article  CAS  Google Scholar 

  24. Morris J. Cognitive rehabilitation: where we are and what is on the horizon. Phys Med Rehabil Clin N Am. 2007;18:27–42, v–vi.

    Article  PubMed  Google Scholar 

  25. Meyers CA, Hess KR, Yung WK, et al. Cognitive function as a predictor of survival in patients with recurrent malignant glioma. J Clin Oncol. 2000;18:646–650.

    PubMed  CAS  Google Scholar 

  26. Schmidinger M, Linzmayer L, Becherer A, et al. Psychometric- and quality-of-life assessment in long-term glioblastoma survivors. J Neuro-oncol. 2003;63:55–61.

    Article  Google Scholar 

  27. Huang ME, Wartella J, Kreutzer J, et al. Functional outcomes and quality of life in patients with brain tumours: a review of the literature. Brain Inj. 2001;15:843–856.

    Article  PubMed  CAS  Google Scholar 

  28. Giovagnoli AR. Quality of life in patients with stable disease after surgery, radiotherapy, and chemotherapy for malignant brain tumour. J Neurol Neurosurg Psychiatry. 1999;67:358–363.

    Article  PubMed  CAS  Google Scholar 

  29. Herrmann M, Curio N, Petz T, et al. Coping with illness after brain diseases – a comparison between patients with malignant brain tumors, stroke, Parkinson's disease and traumatic brain injury. Disability Rehabil. 2000;22:539–546.

    Article  CAS  Google Scholar 

  30. Pelletier G, Verhoef MJ, Khatri N, et al. Quality of life in brain tumor patients: the relative contributions of depression, fatigue, emotional distress, and existential issues. J Neuro-oncol. 2002;57:41–49.

    Article  Google Scholar 

  31. ArnoldSD, Forman LM, Brigidi BD, et al. Evaluation and characterization of anxiety and depression in patients with primary brain tumors. Neuro Oncol. 2008;10(2):171–181.

    Google Scholar 

  32. Wellisch DK, Kaleita TA, Freeman D, et al. Predicting major depression in brain tumor patients. Psycho-oncology. 2002;11:230–238.

    Article  PubMed  Google Scholar 

  33. Awwad S, Cull A, Gregor A. Long-term survival in adult hemispheric glioma: prognostic factors and quality of outcome. Clin Oncol (Royal College of Radiologists (Great Britain)). 1990;2:343–346.

    Article  CAS  Google Scholar 

  34. Edvardsson T, Ahlstrom G. Illness-related problems and coping among persons with low-grade glioma. Psycho-oncology. 2005;14:728–737.

    Article  PubMed  Google Scholar 

  35. Draper BM, Poulos CJ, Cole AM, et al. A comparison of caregivers for elderly stroke and dementia victims. J Am Geriatr Soc. 1992;40:896–901.

    PubMed  CAS  Google Scholar 

  36. Sherer M, Meyers CA, Bergloff P. Efficacy of postacute brain injury rehabilitation for patients with primary malignant brain tumors. Cancer. 1997;80:250–257.

    Article  PubMed  CAS  Google Scholar 

  37. Davies E, Hall S, Clarke C. Two year survival after malignant cerebral glioma: patient and relative reports of handicap, psychiatric symptoms and rehabilitation. Disability Rehabil. 2003;25:259–266.

    Article  CAS  Google Scholar 

  38. McCabe P, Lippert C, Weiser M, et al. Community reintegration following acquired brain injury. Brain Inj. 2007;21:231–257.

    Article  PubMed  Google Scholar 

  39. O'Dell MW, Barr K, Spanier D, et al. Functional outcome of inpatient rehabilitation in persons with brain tumors. Arch Phys Med Rehabil. 1998;79:1530–1534.

    Article  PubMed  Google Scholar 

  40. Huang ME, Cifu DX, Keyser-Marcus L. Functional outcome after brain tumor and acute stroke: a comparative analysis. Arch Phys Med Rehabil. 1998;79:1386–1390.

    Article  PubMed  CAS  Google Scholar 

  41. Anderson SW, Damasio H, Tranel D. Neuropsychological impairments associated with lesions caused by tumor or stroke. Arch Neurol. 1990;47:397–405.

    Article  PubMed  CAS  Google Scholar 

  42. Ponds RW, Hendriks M. Cognitive rehabilitation of memory problems in patients with epilepsy. Seizure. 2006;15:267–273.

    Article  PubMed  Google Scholar 

  43. Hildebrand J, Lecaille C, Perennes J, et al. Epileptic seizures during follow-up of patients treated for primary brain tumors. Neurology. 2005;65:212–215.

    Article  PubMed  Google Scholar 

  44. Chaplin JE, Wester A, Tomson T. The perceived rehabilitation needs of a hospital-based outpatient sample of people with epilepsy. Seizure. 1998;7:329–335.

    Article  PubMed  CAS  Google Scholar 

  45. Engelberts NH, Klein M, Ader HJ, et al. The effectiveness of cognitive rehabilitation for attention deficits in focal seizures: a randomized controlled study. Epilepsia. 2002;43:587–595.

    Article  PubMed  Google Scholar 

  46. Klein M, Engelberts NH, van der Ploeg HM, et al. Epilepsy in low-grade gliomas: the impact on cognitive function and quality of life. Ann Neurol. 2003;54:514–520.

    Article  PubMed  Google Scholar 

  47. Bosma I, Vos MJ, Heimans JJ, et al. The course of neurocognitive functioning in high-grade glioma patients. Neuro-oncology. 2007;9:53–62.

    Article  PubMed  Google Scholar 

  48. Schover LR. Sexual dysfunction. In: Holland JC, ed. Psycho-oncology. New York: Oxford University Press; 1998:494–499.

    Google Scholar 

  49. Howes HF, Edwards S, Benton D. Female body image following acquired brain injury. Brain Inj. 2005;19:403–415.

    Article  PubMed  CAS  Google Scholar 

  50. Libutti RL. That's Unacceptable. Surviving a Brain Tumor: My Personal Story. Martinsville, NJ: Krystal Publishing; 1997.

    Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to R. D. Calhoun-Eagan LCSW, ACSW, OSW-C .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2009 Springer Science+Business Media, LLC

About this chapter

Cite this chapter

Calhoun-Eagan, R.D. (2009). Psychological and Social Impact of Being a Brain Tumor Survivor: Adult Issues. In: Goldman, S., Turner, C. (eds) Late Effects of Treatment for Brain Tumors. Cancer Treatment and Research, vol 150. Springer, Boston, MA. https://doi.org/10.1007/b109924_19

Download citation

  • DOI: https://doi.org/10.1007/b109924_19

  • Published:

  • Publisher Name: Springer, Boston, MA

  • Print ISBN: 978-0-387-77102-1

  • Online ISBN: 978-0-387-77103-8

  • eBook Packages: MedicineMedicine (R0)

Publish with us

Policies and ethics