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Wired Heart Cyborgs and the Materiality of Everyday Life

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Resilient Cyborgs

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Abstract

To understand the merging of humans with technologies, STS and post-phenomenology have developed a rich vocabulary and heuristics, including entanglement, human-machine unions, and incorporation. Although this conceptual vocabulary is very important for understanding how the technologically transformed body comes into being and is enacted in everyday life, technologies inside bodies pose another challenge to theorizing body-technology relations. How are we to understand human-technology relations in which technologies should not entangle with bodies because they serve other purposes? For wired heart cyborgs, activities such as passing security controls at airports, or using electromagnetic machines, electrical domestic appliances and electronic devices, and even intimate contacts with their loved ones, can turn into events where the proper functioning of their devices may be at risk. Moreover, people having tele-defibrillators are at risk of being hacked. Anticipation of potentially harmful events and situations thus becomes an important part of the choreography of everyday life. To capture the active engagement involved in avoiding such intertwinement, I introduce the term ‘disentanglement work,’ that is, work involved to prevent entanglements with objects and people that may inflict harm upon devices implanted in bodies. This chapter explores what forms of disentanglement work are enacted during physical encounters with objects and people and which responsibilities emerge during these interactions.

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Notes

  1. 1.

    https://www.stin.nl, Accessed 3 March 2016; https://stanfordhealthcare.org/medical-treatments/i/icd.html. Accessed 22 November 2015.

  2. 2.

    Four of the patients I interviewed did not have any experiences with passing security gates because they could not afford to travel by airplane or belonged to the generation that did not travel at all.

  3. 3.

    https://www.stin.nl/reizen-met-een-icd/luchthavenbeveiliging.htm. Accessed 30 March 2016.

  4. 4.

    Misfits also occur at hospitals because people living with internal heart devices are not allowed to be diagnosed with MRI scans or treated with surgical electrocautery.

  5. 5.

    Because people with defibrillators are not allowed to work long hours while driving a car, those who work as a taxi or truck driver, driving instructor, or courier have to move to other jobs as well. Anonymous (2013) and Mulcahy (2009).

  6. 6.

    http://www.amazon.com/Detector-Pacemaker-Health-Alert-Device/dp/B000L0Q2X4. Accessed 30 March 2016.

  7. 7.

    Leaflet ‘Important Safety Instructions’ included in the package of the Bose Soundlink Bluetooth Speaker.

  8. 8.

    www.stin.nl. Accessed 30 March 2016.

  9. 9.

    www.inspire.com/groups/sudden-cardiac-arrest-association/discussions/. ICD response to static. 29 July 2013.

  10. 10.

    See note. 6.

  11. 11.

    www.inspire.com/groups/sudden-cardiac-arrest-association/discussions/. ICD Noise. Posted 24 September 2011. Accessed 29 March 2016.

  12. 12.

    The metal case of pacemakers and ICDs is inserted just beneath the skin in a so-called pocket, a space created between the muscles usually beneath the left collarbone.

  13. 13.

    www.inspire.com/groups/sudden-cardiac-arrest-association/discussions/.Now about our kids. Posted 25 August 2012. Accessed 30 March 2016.

  14. 14.

    www.inspire.com/groups/sudden-cardiac-arrest-association/discussions/.Now about our kids. Posted 28 August 2012. Accessed 30 March 2016.

  15. 15.

    Franceschi-Bicchierai (2017).

  16. 16.

    Moreover, the data are transferred on a frequency spectrum specifically reserved for medical implants (de Cock et al. 2010; Noort 2017; Mulcahy 2009).

  17. 17.

    During the patient information meeting I observed at the heart policlinic in Amsterdam, any discussion of the potential risks of hacking was absent as well.

  18. 18.

    The only regulation that seems to be in place in the US is that device manufacturers should include an ‘information security analysis’ when they apply for FDA approval for bringing new pacemakers and ICDs to the market.

  19. 19.

    The FDA had been informed about this risk of hacking by a cybersecurity firm that had previously been involved in a lawsuit with the same manufacturer for disclosing vulnerabilities in the software of pacemakers (Hern 2017).

  20. 20.

    Interview ICD patient 10; interviews pacemaker patients 1, 3, 4, 8, and 11. In a survey conducted among patients of the heart policlinic where I did my fieldwork, 50% of the respondents reported that they did not want to use a remotely monitored ICD (Interview cardiologist 2012).

  21. 21.

    For a similar observation, see Bjorn and Markussen (2013, 26).

  22. 22.

    Pacemakers and defibrillators run on so-called proprietary, or closed-source, software for which the device manufacturers retain intellectual property rights (Wikipedia. Source code. Accessed 19 February 2019).

  23. 23.

    People living with pacemakers and ICDs are not allowed to engage in full contact sports such as boxing, and deep-sea diving is also not allowed, while those with defibrillators are forbidden to work as professional taxi drivers, driving instructors, or couriers (Anonymous 2013).

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Oudshoorn, N. (2020). Wired Heart Cyborgs and the Materiality of Everyday Life. In: Resilient Cyborgs. Health, Technology and Society. Palgrave Macmillan, Singapore. https://doi.org/10.1007/978-981-15-2529-2_5

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