Abstract
In this chapter it is described how an amyotrophic lateral sclerosis (ALS) patient made contact with brain–computer interfaces during the last period of his life and how this influenced his life. The rather private report on the burden of a fatal diagnosis and the dealing with the unpreventable loss of motor abilities was given by the patient’s wife shortly after he had passed away.
The report comes from the wife (age 57, industrial clerk), who was assisted by her son (age 22, engineering student). They chose to write anonymously.
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© 2014 Springer Science+Business Media Dordrecht
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Grübler, G., Hildt, E. (2014). Relatives’ Report. In: Grübler, G., Hildt, E. (eds) Brain-Computer-Interfaces in their ethical, social and cultural contexts. The International Library of Ethics, Law and Technology, vol 12. Springer, Dordrecht. https://doi.org/10.1007/978-94-017-8996-7_11
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DOI: https://doi.org/10.1007/978-94-017-8996-7_11
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