Abstract
‘Quality of life’ is a key concept in the contemporary practice of medicine and delivery of health care. Numerous developments in modern medicine, such as psychotropic drugs, open heart surgery, and joint replacement surgery have the capacity to improve individuals’ quality of life. Conversely, many therapies, such as renal dialysis and ostomy surgery for cancer, whilest increasing survival may impose costs in reducing patients’ well-being. It would be impossible even to begin to sum up the costs and benefits of contemporary health care without resort to the notion of quality of life. The controversy associated with the emerging importance of the quality-of-life construct in health care is provoked by attempts to define, assess or measure the construct. Some critics even claim that quality-of-life constructs cannot and should not be measured. Their objections vary from arguments about the basic plausibility and validity of measurement systems [57], through to ethical and philosophical critiques regarding real-world applications of quality of life measurement systems [76]. The intensity of debate surrounding attempts to introduce measures of quality of life into health care suggests that measurement systems are widely adopted. In reality, in the diverse fields of research, clinical practice and resource allocation, resort to formal methods of quality of life assessment have been very few.
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Bibliography
Aaronson, N.K.: 1989, ‘Quality of life assessment in clinical trials: Methodological issues’, Controlled Clinical Trials, 10, 196S-208S
Ahlmen, M., Sullivan, M., and Bjelle, A.: 1988, ‘Team versus non-team outpatient care in rheumatoid arthritis: A comprehensive outcome evaluation including an overall health measure’, Arthritis and Rheumatism, 31 (4), 471–79.
Ahmad, W.I., Kernohan, E.E., and Baker, M.R: 1989, ‘Influence of ethnicity and unemployment on the perceived health of a sample of general practice attenders’, Community Medicine, 11 148–56.
Allen, D., Lee, R.H., and Lowson, K: 1989, ‘The use of QALYs in health service planning’, International Journal of Health Planning Management, 4, 261–73.
Almy, T.: 1988, ‘Comprehensive functional assessment of elderly patients’, Annals of Internal Medicine, 109, 70–72.
Anderson, J., Sullivan, F., and Usherwood, T.: 1990, ‘The Medical Outcomes Study Instrument (MOSI) — use of a new health status measure in Britain’, Family Practice, 7, 205–18.
Bergner, M., Bobbitt, R.A., Pollard, W.E., Martin, D.P., and Gilson, B.S.: 1976, ‘The Sickness Impact Profile: Validation of a Health Status Measure’, Medical Care, 14, 57–67.
Bijlsma, J.W., Huiskes, C.J., Kraaimaat, F.W., Vanderveen, M.J., and HuberBruning, O: 1991, ‘Relation between patients’ own health assessment and clinical and laboratory findings in rheumatoid arthritis’, Journal of Rheumatology, 18, 650–53.
Bombardier, C., Ware, J., and Russell, I.: 1986, ‘Auranofin therapy and quality of life in patients with rheumatoid arthritis’, American Journal of Medicine, 81, 565–78.
Brook, R. and Kamberg, C.: 1987; ‘General health status measures and outcome measurement: a commentary on measuring functional status’, Journal of Chronic Disease, 40, Suppl. 1, 131S–136S
Brooks, W.B., Jordan, J.S., Divine, G.W., Smith, K.S., and Neelon, F.A.: 1990, ‘The impact of psychologic factors on measurement of functional status: assessment of the Sickness Impact Profile’, Medical Care, 28, 793–804.
Brown, J., Kazis, L.E., Spitz, P., Gertman, P., Fries, J. F., and Meenan, R.F.: 1984 ‘The dimensions of health outcomes: a cross validated examination of health status measurement’, American Journal of Public Health, 74, 159–61.
Byrne, M.: 1992, ‘Cancer chemotherapy and quality of life’, British Medical of Journal, 304, 1523–24.
Caine, N., Harrison, S.C., Sharples, L.D., and Wallwork, J.: 1991, ‘Prospective study of quality of life before and after coronary artery bypass grafting’, British Medical Journal, 302, 511–16.
Carr-Hill, R.: 1989; ‘Assumptions of the QALY procedure’, Social Science & Medicine, 29, 469–77.
Carr-Hill, R., and Morris, J.: 1991, ‘Current practice in obtaining the ‘Q’ in QALYs: a cautionary note’, British Medical Journal, 303, 699–701.
Coates, A., Gebski, V., and Bishop, J.F. et al.: 1987, ‘Improving the quality of life during chemotherapy for advanced breast cancer’, New England Journal of Medicine, 317, 1490–95.
Cox, D.R., Fitzpatrick, R., Fletcher, A., Gore, S.M., Spiegelhalter, D.J., and Jones, D.: 1992, ‘Quality of life assessment: can we keep it simple?’, Journal of the Royal Statistical Society/Series A General, 155, 353–93.
Croog, S., Levine, S., Testa, M., Brown, B., Bulpitt, C., Jenkins, C., Klerman, G., and William, G.: 1986, ‘The effects of antihypertensive therapy on the quality of life’, New England Journal of Medicine, 314, 1657–63.
Curtis, S.: 1987, ‘Self reported morbidity in London and Manchester: inter-urban and intra-urban variations’, Social Indicators Research, 19, 255–72.
Deyo, R.: 1991, ‘The quality of life, research and care’, Annals of Internal Medicine, 114, 695–97.
Deyo, R.A.: 1988, ‘Measuring the quality of life of patients with rheumatoid arthritis’, in S. Walker and R. Rosser (eds.), Quality of Life: Assessment and Applications, MTP Press, Leicester, pp. 205–22.
Deyo, R.A., Inui, T.S., Leininger, J., Leininger, D., and Overman, S.S.: 1983, ‘Measuring functional outcomes in chronic disease. A comparison of traditional scales and a self-administered health status questionnaire in patients with rheumatoid arthritis’, Medical Care, 21, 180–92.
Dixon, J., and Welch, H.G.: 1991, ‘Priority setting: lessons from Oregon’, Lancet, 337, 891–94.
Ellwood, P.: 1988; ‘Shattuck lecture — outcomes management. A technology of patient experience’, New England Journal of Medicine, 318, 1549–56.
Feinstein, A., and Wells, C.: 1977, ‘A new clinical taxonomy for rating change in functional activities of patients with angina pectoris’, American Heart Journal, 93, 172–82.
Feinstein, A.R.: 1983, ‘An additional basic science for clinical medicine: IV. The development of clinimetrics’, Annals of of Internal Medicine, 99, 843–48.
Fitzpatrick, R., Ziebland, S., Jenkinson, C., Mowat, A., and Mowat, A.: 1991, ‘The social dimension of health status measures in rheumatoid arthritis’, International Disability Studies, 31, 34–37.
Fitzpatrick, R., Ziebland, S., Jenkinson, C., Mowat, A., and Mowat, A.: 1992, ‘Importance of sensitivity to change as a criterion for selecting health status measures’, Quality in Health Care, 1, 89–93.
Fossa, S., Aaronson, N., and Newling, D.: 1990, ‘Quality of life and treatment of hormone resistant metastatic cancer.’, European Journal of Cancer, 26, 1133–36.
Fowler, F.J., Wennberg, J., Timothy, R.P., Barry, M.J., Mulley, A.G. and Hanley, E.: 1988, ‘Symptom status and the quality of life following prostatectomy’, Journal ofAmerican Medical Association, 259, 3018–22.
Frankel, S.: (1991), ‘Health needs, health-care requirements and the myth of infinite demand’, Lancet, 337, 1588–90.
Frankel, S.: 1992, ‘The epidemiology of indications’, Journal of Epidemiology and Community Health, 45, 257–59.
Fries, J.F., Spitz, P.W. and Young, D.Y.: 1982, ‘The dimensions of health outcome: The Health Assessment Questionnaire, Disability and Pain Scales’, Journal of Rheumatology, 9, 789–93.
Froberg, D.G., and Lane, R.L.: 1989, ‘Methodology for measuring health-state preferences-III: population and context effects’, Journal of Clinical Epidemiology, 42, 585–92.
Greenfield, S.: 1989 ‘The state of outcome research: are we on target?’, New England Journal of Medicine, 320, 1142–43.
Harvey, R.M., Doyle, E.F., and Ellis, K., et al.: 1974, ‘Major changes made by the criteria committee of the New York Heart Association’, Circulation, 49, 390–91.
Helewa, A., Goldsmith, C.H., Lee, P., Bombardier, C., Hanes, B., Smythe, H.A., and Tugwell,P.: 1991, ‘Effects of occupational therapy home service on patients with rheumatoid arthritis’, Lancet, 337, 1453–56.
Henderson, S., Byrne, D., and Duncan Jones, P.: 1981, Neurosis and the Social Environment, Sydney, Academic Press.
Hopkins, A.: 1991 ‘Approaches to medical audit’, Journal of Epidemiology and Community Health, 45, 1–3.
Hopton, J.L., Porter, A.M. and Howie, J.G.: 1991, ‘A measure of perceived health in evaluating general practice: the Nottingham Health Profile’, Family Practice, 8, 253–60.
Hunt, S., McEwen, J., and McKenna, S.: 1985, ‘Measuring health status: a new tool for clinicians and epidemiologists’, Journal of the Royal College of General Practitioners, 35, 185–88.
Hunt, S.M., McEwen, J., and McKenna, S.P.: 1986, Measuring Health Status Croom Helm, London.
Hutchinson, A., and Fowler, P.,: 1992 ‘Outcome measures for primary care: what are the research priorities?’, British Journal of General Practice, 42, 227–31.
Johnstone, A., and Goldberg, D.P.: 1976, ‘Psychiatric screening in general practice.’, Lancet, I, 605–608.
Kazis, L.E., Callahan, L.F., Meenan, R.F., and Pincus, T.: 1990, ‘Health status reports in the care of patients with rheumatoid arthritis.’, Journal of Clinical Epidemiology, 43, 1243–53.
Kind, P., and Carr-Hill, R.: 1987, ‘The Nottingham Health Profile: A Useful Tool For Epidemiologists?’, Social Science & Medicine, 25, 905–10.
La Puma, J., and Lawlor, E.F.: 1990, ‘Quality-adjusted life-years: ethical implications for physicians and policymakers’, Journal of the American Medical Association, 263, 2917–21.
Loomes, G., McKenzie, L.: 1989, ‘The use of QALYs in health care decisionmaking’, Social Science & Medicine, 28, 299–308.
MacKenzie, C.R., Charlson, M.E., DiGiola, D., and Kelley, K.: 1986, ‘A patientspecific measure of change in maximal function’, Archives of Internal Medicine, 146, 1325–29.
Martin, J., and Elliot, D.: 1992, ‘Creating an overall measure of severity of disability for the Office of Population Censuses and Surveys Disability Survey’, Journal of the Royal Statistical Society/ Series A General, 155, 121–40.
McKenna, S., and Payne, R.: 1989, ‘Comparison of the General Health Questionnaire and the Nottingham Health Profile in a study of unemployed and re-employed men’, Family Practice, 6, 3–7.
McNeill, B., Weichselbaum, R., and Pauker, G.: 1978, ‘Fallacy of the five year survival in cancer’, New England Journal of Medicine, 299, 1397–1401.
Meenan, R.F.: 1982, ‘The AIMS Approach to health status measurement: conceptual background and measurement properties’, Journal of Rheumatology, 9, 785–88.
Mercier, M., Schraub, S., Bransfield, D., and Fournier, J.: 1992, ‘Patient acceptance and differential perceptions of quality of life measures in a French oncology setting’, Quality of Life Research, 1, 53–61.
Mor, V., and Guadagnoli, E.: 1988, ‘Quality of life measurement: a psychometric tower of Babel.’ Journal of Clinical Epidemiology, 41, 1055–8.
Mulkay, M.J., Ashmore, M., and Pinch, T.J.: 1987, ‘Measuring the quality of life: a sociological invention concerning the application of economics to health care’, Sociology, 21, 541–64.
Mulley, A.G.: 1990, ‘Medical decision making and practice variation’, in T. Andersen and G.Mooney (eds.), The Challenges of Medical Practice Variations, MacMillan, London, pp. 59–75.
Mulley, A.G.: 1989, ‘Assessing patients’ utilities: can the ends justify the means?’, Medical Care, 27, S269–81.
Nelson, E.C., and Berwick, D.M.: 1989, ‘The measurement of health status in clinical practice’, Medical Care, 27, S77–S90.
Nelson, E.C., Landgraf, J.M., Hays, R.D., Wasson, J.H., and Kirk J.W.: 1990, ‘The functional status of patients. How can it be measured in physicians’ offices?’, Medical Care, 28, 1111–26.
Normand, C.,: ‘Economics, health and the economics of health’, British Medical Journal, 303, 1572–77.
O’Boyle, C., O’Boyle, A., McGee, H., Hickey, A., O’Malley F., and O’Malley K., Joyce, C.R.: 1992, ‘Individual quality of life in patients udergoing hip replacement’, Lancet, 339, 1088–91.
O’Connor, A.M., Boyd, N.F., Warde, P., Stolbach, L., and Till, J.E.: 1987, ‘Eliciting preferences for alternative drug therapies in oncology: influence of treatment outcome description, elicitation technique and treatment experience on preferences’, Journal of Chronic Disease, 40, 811–18.
Olsson, G., Lubsen, J., van Es G.A., and Rehnqvist, N.: 1986, ‘Quality of life after myocardial infarction: effect of long term metoprolol on mortality and morbidity,’ British Medical Journal, 292, 1491–93.
Patrick, D., and Peach, H.: 1989, Disablement in the Community, Oxford University Press, Oxford.
Patrick, D.L., Sittampalam, Y., Somerville, S.M., Carter, W.B., and Bergner, M.: 1985; ‘A cross cultural comparison of health status values’, American Journal of Public Health, 75, 1402–1407.
Rawles, J.: 1989, ‘Castigating QALYs’, Journal of Medical Ethics, 15, 143–47.
Rosser, R., and Kind, P.: 1978, ‘A scale of valuations of states of illness: is there a social consensus?’, International Journal of Epidemiology, 7, 347–58.
Rubinstein, L.V., Calkins, D.R., Young, R.T., Cleary, P., Fink, A., Kosecoff, J. et al.: 1989, ‘Improving patient function: a randomized trial of functional disability screening’, Annals of Internal Medicine, 111, 836–42.
Sackett, D.L., and Torrance, G.W.: 1978, ‘The utility of different health states as perceived by the general public’, Journal of Chronic Disease, 31, 697–704.
Schmidt, V.: 1991, ‘Some equity-efficiency trade-offs in the provision of scarce goods: the case of lifesaving medical resources’, Working paper, Centre for Social Policy Research, University of Bremen, Bremen.
Schumacher, M., Olschewski, M., and Schulgen, G.: 1991, ‘Assessment of quality of life in clinical trials’, Statistics in Medicine, 10, 1915–30.
Seeman, T., and Berkman, L.: 1988 Structural characteristics of social networks and their relationship with social support in the elderly: who provides support? Social Science & Medicine, 26, 310–37.
Slevin, M.L., Plant, H., Lynch, D., Drinkwater, J., and Gregory, W.M.: 1988, ‘Who should measure quality of life, the doctor or the patient?’, British Journal of Cancer, 57, 109–12.
Smith, A.: 1987, ‘Qualms about QALYs’, Lancet, I, 1134–36.
Spitzer, W.O., Dobson, A.J., Hall, J., Chesterman, E., Levi, J., Shepherd, R. et al.: 1981, ‘Measuring the quality of life of cancer patients: a concise QL Index for use by physicians’, Journal of Chronic Disease, 34, 585–97.
Sutherland, H.J., Lockwood, G.A., and Boyd, N.F.: 1990, ‘Ratings of the importance of quality of life variables: therapeutic implications for patients with metastatic breast cancer’, Journal of Clinical Epidemiology, 43, 661–66.
Tarlov, A.R., Ware, J.E., Greenfield, S., Nelson, E., Perrin, E., and Zubkoff, M.: 1989 The Medical Outcomes Study. ‘An application of methods for monitoring the results of medical care’, Journal of American Medical Association, 262, 925–30.
Tugwell, P., Bombardier, C., Buchanan, W.W., Goldsmith, C., Grace, E., Bennett, K.J., Williams, J.H., et al.: 1990, ‘Methotrexate in rheumatoid arthritis; impact on quality of life assessed by traditional standard item and individualised patient preference health status questionnaires’, Archives of Internal Medicine, 150, 59–62.
Tugwell, P., Bombardier, C., Buchanan, W.W., Goldsmith, C.H., Grace, E., and Hanna, B.: 1987, ‘The MACTAR Patient Preference Disability Questionnaire. An individualized functional priority approach for assessing improvement in physical disability in clinical trials in rheumatoid arthritis’, Journal of Rheumatology, 14, 446–51.
Uhlmann, R.F., and Pearlman, R.A.: 1991, ‘Perceived quality of life and preferences for life-sustaining treatment in older adults’, Archives of Internal Medicine, 151, 495–97.
Wade, D.T.: 1991, ‘The ‘Q’ in QALYs’, British Medical Journal, 303, 1136–37.
Ware, J., Brook, R.H., Rogers, W.H., Keeler, E., Ross Davies, A., Sherbourne, C.D. et al.: 1986, ‘Comparison of health outcomes at a health maintenance organisation with those of fee-for-service care’, Lancet, I, 1017–22.
Wennberg, J.E.: 1990, ‘On the need for outcomes research and the prospects for the evaluative clinical sciences’, in T. Andersen and G. Mooney (eds.), The Challenges of Medical Practice Variations. Macmillan, London, pp. 158–73.
Wennberg, J.E., Mulley, A., and Hanley, D.: 1988, ‘An assessment of prostatectomy for benign urinary tract obstruction’, Journal of American Medical Association, 259, 3027–30.
Wilkin, D., Hallam, L., and Dogett, M.: 1992, Measures of Need and Outcome for Primary Health Care, Oxford University Press, Oxford.
Wolfe, F., and Pincus, T.: 1991, ‘Standard self-report questionnaires in routine clinical and research practice — an opportunity for patients and rheumatologists’, Journal of Rheumatology, 18, 643–46.
Wolfe, F., Cathey, M.A.: 1991, ‘The assessment and prediction of functional disability in rheumatoid arthritis’, Journal of Rheumatology, 18, 1298–1306.
Wolfe, F., Hawley, D.J., and Cathey, M.A.: 1991, ‘Clinical and health status measures over time: prognosis and outcome assessment in rheumatoid arthritis’, Journal of Rheumatology, 18, 1290–97.
Wolfe, F., Kleinheksel, S.M., Cathay, M.A., Hawley, D.J., Spitz, P.W., and Fries, J.F.: 1988, ‘The clinical value of the Stanford Health Assessment Questionnaire Functional Disability Index in patients with rheumatoid arthritis’, Journal of Rheumatology, 15, 1480–48.
Ziebland, S., Fitzpatrick, R., Jenkinson, C., Mowat, A., Mowat, A., (forthcoming). ‘A comparison of two approaches to measuring change in health status in rheumatoid arthritis: the Health Assessment Questionnaire (HAQ) and Modified HAQ’ (in press).
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Fitzpatrick, R., Albrecht, G. (1994). The Plausibility of Quality-of-Life Measures in Different Domains of Health Care. In: Nordenfelt, L. (eds) Concepts and Measurement of Quality of Life in Health Care. European Studies in Philosophy of Medicine 1, vol 47. Springer, Dordrecht. https://doi.org/10.1007/978-94-015-8344-2_12
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