Skip to main content
SpringerLink
Log in

Measuring the Health Status of Pediatric Intensive Care Unit Survivors

  • Conference paper
Surviving Intensive Care

Part of the book series: Update in Intensive Care Medicine ((UICMSOFT,volume 39))

Abstract

Pediatric intensive care is designed to serve the needs of neonates, infants, children and adolescents. In relative years, the age range is rather narrow. With respect to the developmental spectrum, the patient population varies dramatically. The majority of patients in most pediatric intensive care units (ICUs) are less than five years old, thus the impact of disease and medical intervention occurs during crucial periods of socialization and neurological development. Normal adults are independent in major functional areas and the resumption of that independence during recovery is a reasonable goal. In young children, measurement of health status is more challenging because independence is gradually achieved through normal development. This development is dynamic and nonlinear with broad individual variation.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Log in via an institution
Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 39.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 54.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Preview

Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.

References

  1. Limperopoulos C, Majnemer A, Shevell MI et al. (2001) Functional limitations in young children with congenital heart defects after cardiac surgery Pediatrics 1081325–1331

    Article  PubMed  CAS  Google Scholar 

  2. Pollack MM, Patel KM, Ruttimann UE (1996) PRISM III: an updated Pediatric Risk of Mortality score Crit Care Med 24743–752

    Article  PubMed  CAS  Google Scholar 

  3. Hack M (1999) Consideration of the use of health status, functional outcome, and quality-of-life to monitor neonatal intensive care practice Pediatrics 103319–328

    PubMed  CAS  Google Scholar 

  4. Fiser DH (1992) Assessing the outcome of pediatric intensive care J Pediatr 12168–74

    Article  PubMed  CAS  Google Scholar 

  5. Jennett B, Bond M (1975) Assessment of outcome after severe brain damage Lancet 1480–484

    Article  PubMed  CAS  Google Scholar 

  6. Pollack MM, Ruttimann UE, Getson PR (1988) Pediatric risk of mortality (PRISM) score Crit Care Med 161110–1116

    Article  PubMed  CAS  Google Scholar 

  7. Shann F, Pearson G, Slater A, Wilkinson K (1997) Paediatric index of mortality (PIM): a mortality prediction model for children in intensive care Intensive Care Med 23201–207

    Article  PubMed  CAS  Google Scholar 

  8. Cullen DI, Civetta JM, Briggs BA, Ferrara LC (1974) Therapeutic intervention scoring system: a method for quantitative comparison of patient care Grit Care Med 257–60

    Article  CAS  Google Scholar 

  9. Miranda DR, de Rijk A, Schaufeli W (1996) Simplified Therapeutic Intervention Scoring System: the TISS-28 items — resuhs from a multicenter study Grit Care Med 2464–73

    Article  CAS  Google Scholar 

  10. Miranda DR, Moreno R, Iapichino G (1997) Nine equivalent of nursing manpower use score (NEMS) Intensive Care Med 23760–5

    Article  Google Scholar 

  11. Gray IE, Richardson DK, McCormick MC, Workman-Daniels K, Goldmann DA (1992) Neonatal therapeutic intervention scoring system: a therapy-based severity-of-illness index Pediatrics 90561–567

    PubMed  CAS  Google Scholar 

  12. Frankenburg WK, Dodds IB (1967) The Denver developmental screening test J Pediatr 71181–191

    Article  PubMed  CAS  Google Scholar 

  13. Gapute AI, Accardo PI (1996) The infant neurodevelopmental assessment: a clinical interpretive manual for CAT-CLAMS in the first two years of life. Part 2 Curr Probl Pediatr 26279–306

    Google Scholar 

  14. Gapute AJ, Accardo PJ (1996) The infant neurodevelopmental assessment: a clinical interpretive manual for CAT-CLAMS in the first two years of life, part 1 Curr Probl Pediatr 26238–257

    Article  Google Scholar 

  15. Hack M, Wilson-Costello D, Friedman H, Taylor GH, Schluchter M, Fanaroff AA (2000) Neurodevelopment and predictors of outcomes of children with birth weights of less than 1000 g: 1992–1995 Arch Pediatr Adolesc Med 154725–731

    PubMed  CAS  Google Scholar 

  16. Harris SR, Langkamp DL (1994) Predictive value of the Bayley mental scale in the early detection of cognitive delays in high-risk infants I Perinatol 14275–279

    CAS  Google Scholar 

  17. Msall ME, DiGaudio K, Rogers BT, et al (1994) The Functional Independence Measure for Children (WeeFIM). Conceptual basis and pilot use in children with developmental disabilities Clin Pediatr (Phila) 33421–430

    Article  CAS  Google Scholar 

  18. Keith RA, Granger GV, Hamilton BB, Sherwin FS (1987) The functional independence measure: a new tool for rehabilitation Adv Clin Rehabil 16–18

    PubMed  CAS  Google Scholar 

  19. Sanchez JI, Paidas CN (1999) Childhood trauma. Now and in the new millennium Surg Clin North Am 791503–1535

    Article  PubMed  CAS  Google Scholar 

  20. Sparrow S, Balla DA, Cichetti DV (1984) Vineland Adaptive Behavior Scales. Interview Edition, Survey Form Manual. A revision of the Vineland Social Maturity Scale by E. A. Doll American Guidance Service, Circle Pines

    Google Scholar 

  21. World Health Organization (1958) Constitution of the World Health Organization In: The first ten years of the World Health Organization World Health Organization, Geneva

    Google Scholar 

  22. Torrance GW, Boyle MH, Horwood SP (1982) Application of multi-attribute utility theory to measure social preferences for health states Oper Res 301043–1069

    Article  PubMed  CAS  Google Scholar 

  23. Taylor A, Butt W, Rosenfeld J, et al (2001) A randomized trial of very early decompressive craniectomy in children with traumatic brain injury and sustained intracranial hypertension Childs Nerv Syst 17154–162

    Article  PubMed  CAS  Google Scholar 

  24. Feeny D, Furlong W, Barr RD, Torrance GW, Rosenbaum P, Weitzman S (1992) A comprehensive multiattribute system for classifying the health status of survivors of childhood cancer I Clin Oncol 10923–928

    CAS  Google Scholar 

  25. Gemke RJ, Bonsel GJ (1996) Reliability and validity of a comprehensive health status measure in a heterogeneous population of children admitted to intensive care I Clin Epidemiol 49327–333

    Article  CAS  Google Scholar 

  26. Feeny D, Furlong W, Boyle M, Torrance GW (1995) Multi-attribute health status classification systems. Health Utilities Index Pharmacoeconomics 7490–502

    Article  PubMed  CAS  Google Scholar 

  27. Landgraf JM, Maunsell E, Speechley KN, et al (1998) Canadian-French, German and UK versions of the Child Health Questionnaire: methodology and preliminary item scaling results Qual Life Res 7433–445

    Article  PubMed  CAS  Google Scholar 

  28. Waters E, Doyle J, Wolfe R, Wright M, Wake M, Salmon L (2000) Influence of parental gender and self-reported health and illness on parent-reported child health Pediatrics 1061422–1428

    Article  PubMed  CAS  Google Scholar 

  29. Sheridan RL, Hinson MI, Liang MH, et al. (2000) Long-term outcome of children surviving massive burns JAMA 28369–73

    Article  PubMed  CAS  Google Scholar 

  30. Starfield B, Riley AW, Green BF, et al (1995) The adolescent child health and illness profile. A population-based measure of health Med Care 33553–566

    Article  PubMed  CAS  Google Scholar 

  31. du Plessis AJ, Jonas RA, Wypij D, et al (1997) Perioperative effects of alpha-stat versus pH-stat strategies for deep hypothermic cardiopulmonary bypass in infants I Thorac Gardiovasc Surg 114991–1000

    Article  Google Scholar 

  32. Newburger JW, lonas RA, Wernovsky G, et al (1993) A comparison of the perioperative neurologic effects of hypothermic circulatory arrest versus low-flow cardiopulmonary bypass in infant heart surgery N Engl J Med 3291057–1064

    Article  PubMed  CAS  Google Scholar 

  33. Bellinger DG, Wypij D, du Plessis AJ, et al (2001) Developmental and neurologic effects of alpha-stat versus pH-stat strategies for deep hypothermic cardiopulmonary bypass in infants J Thorac Gardiovasc Surg 121374–383

    Article  CAS  Google Scholar 

  34. Bellinger DG, Wypij D, Kuban KG, et al (1999) Developmental and neurological status of children at 4 years of age after heart surgery with hypothermic circulatory arrest or low-flow cardiopulmonary bypass Girculation 100526–532

    CAS  Google Scholar 

  35. Goldberg GS, Schwartz EM, Brunberg lA, et al (2000) Neurodevelopmental outcome of patients after the fontan operation: A comparison between children with hypoplastic left heart syndrome and other functional single ventricle lesions J Pediatr 137646–652

    Article  PubMed  CAS  Google Scholar 

  36. UK Collaborative EGMO Group (1998) The collaborative UK EGMO (Extracorporeal Mem-brane Oxygenation) trial: follow-up to 1 year of age Pediatrics 101:E1

    Article  Google Scholar 

  37. Neonatal Inhaled Nitric Oxide Study Group (2000) Inhaled nitric oxide in term and near-term infants: neurodevelopmental follow-up of the neonatal inhaled nitric oxide study group (NINOS) J Pediatr 136611–617

    Article  Google Scholar 

  38. Levin M, Quint PA, Goldstein B, et al (2000) Recombinant bactericidal/permeability-increasing protein (rBPI21) as adjunctive treatment for children with severe meningococcal sepsis: a randomised trial Lancet 356961–967

    Article  PubMed  CAS  Google Scholar 

  39. Le Gall IR, Klar J, Lemeshow S, et al (1996) The Logistic Organ Dysfunction system. A new way to assess organ dysfunction in the intensive care unit. IGU Scoring Group JAMA 276802–810

    Article  PubMed  Google Scholar 

  40. Marshall IG, Gook DJ, Ghristou NV, Bernard GR, Sprung GL, Sibbald WJ (1995) Multiple organ dysfunction score: a reliable descriptor of a complex clinical outcome Grit Care Med 231638–1652

    Article  CAS  Google Scholar 

  41. Vincent JL, Moreno R, Takala J, et al (1996) The SOFA (Sepsis-related Organ Failure Assessment) score to describe organ dysfunction/failure Intensive Care Med 22707–710

    Article  PubMed  CAS  Google Scholar 

  42. Proulx F, Fayon M, Farrell CA, Lacroix J, Gauthier M (1996) Epidemiology of sepsis and multiple organ dysfunction syndrome in children Chest 1091033–1037

    Article  PubMed  CAS  Google Scholar 

  43. Leteurtre S, Martinot A, Duhamel A, et al (1999) Development of a pediatric multiple organ dysfunction score: use of two strategies Med Decis Making 19399–410

    Article  PubMed  CAS  Google Scholar 

  44. Wilson IB, Cleary PD (1995) Linking clinical variables with health-related quality of life: a conceptual model of patient outcomes JAMA 27359–65

    Article  PubMed  CAS  Google Scholar 

Download references

Author information

Authors and Affiliations

  1. Dept of Pediatrics, Children’s Hospital, 300 Longwood Avenue, Boston, MA, 02115, USA

    A.G. Randolph (Associate Director) & R. Graham (Clinical Fellow)

Authors
  1. A.G. Randolph
    View author publications

    You can also search for this author in PubMed Google Scholar

  2. R. Graham
    View author publications

    You can also search for this author in PubMed Google Scholar

Editor information

Editors and Affiliations

  1. Department of Critical Care Medicine, University of Pittsburgh, 3550 Terrace Street, Pittsburgh, PA, 15261, USA

    Derek C. Angus MD, MPH, FCCM, FCCP (Associate Professor and Vice Chair for Research) (Associate Professor and Vice Chair for Research)

  2. Anaesthesiology and Emergency Department, Fondation Hôpital St Joseph, 185 rue Raymond Losserand, 75674, Paris Cedex 14, France

    Jean Carlet MD (Head of the Intensive Care Unit Coordinator of the Intensive Care) (Head of the Intensive Care Unit Coordinator of the Intensive Care)

Rights and permissions

Reprints and permissions

Copyright information

© 2003 Springer-Verlag Berlin Heidelberg

About this paper

Cite this paper

Randolph, A., Graham, R. (2003). Measuring the Health Status of Pediatric Intensive Care Unit Survivors. In: Angus, D.C., Carlet, J. (eds) Surviving Intensive Care. Update in Intensive Care Medicine, vol 39. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-642-55733-0_8

Download citation

  • DOI: https://doi.org/10.1007/978-3-642-55733-0_8

  • Publisher Name: Springer, Berlin, Heidelberg

  • Print ISBN: 978-3-540-44149-6

  • Online ISBN: 978-3-642-55733-0

  • eBook Packages: Springer Book Archive

Publish with us

Policies and ethics

Search

Navigation