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Stigma, Human Rights and the UN Convention on the Rights of Persons with Disabilities

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The Stigma of Mental Illness - End of the Story?

Abstract

The United Nations Convention on the Rights of Persons with Disabilities (CRPD) requires that people with disabilities, including those with mental disabilities (be they psychosocial disabilities/mental health problems or learning disabilities), be able to enjoy full human rights without discrimination. This requirement for non-discrimination, coupled with requirements for social inclusion, chime effectively with the aims of the anti-stigma movement. At the same time, the CRPD will introduce tensions with anti-stigma agendas. Its provisions apply only to people who have a disability, creating the risk that people will need to be identified as having a disability to benefit from its provisions, creating the risk of stigma at that point. The CRPD’s fundamental move away from a medical model of disability will also require the development of new social relationships and new ways of thinking by the professionals who have traditionally been important to the anti-stigma movement, creating potential political difficulties for the movement. This paper looks at these synergies and tensions between the Convention provisions and the anti-stigma movement.

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Notes

  1. 1.

    Statement of Kofi Annan, United Nations Secretary-General (2006).

  2. 2.

    United Nations A/Res/61/106 (general assembly, 24 January 2007).

  3. 3.

    In this chapter, ‘mental disabilities’ is taken to include disabilities related to development such as learning disabilities, psychosocial disabilities (disabilities traditionally associated with mental ill health), disabilities flowing from injury to the brain and mental disabilities associated with later life such as dementia.

  4. 4.

    A list of signatories and ratifications may be found at http://www.un.org/disabilities/. Accessed 24 November 2014. An additional eight countries have signed but not yet ratified the CRPD – so more than 82 % of UN member states have signed the Convention.

  5. 5.

    CRPD, Article 1.

  6. 6.

    CRPD, Article 3 (a) to (e). Additional principles contained in Article 3 include accessibility (relevant primarily for people with physical disabilities rather than mental disabilities), equality between men and women, acknowledgment of the evolving capacities of children and respecting the right of children with disabilities to preserve their identities.

  7. 7.

    CRPD, Article 1.

  8. 8.

    CRPD, Article 33.

  9. 9.

    CRPD, Article 31.

  10. 10.

    CRPD, Article 35.

  11. 11.

    See http://www.ohchr.org/EN/HRBodies/CRPD/Pages/CRPDIndex.aspx, accessed 25 November 2014. At the time of writing, concluding comments had been written for New Zealand, Denmark, the Republic of Korea, Belgium, Ecuador, Mexico, El Savador, Azerbaijan, Costa Rica, Sweden, Australia, Austria, Paraguay, China, Hungary, Argentina, Spain, Tunisia and Peru.

  12. 12.

    A copy of the first protocol, along with a list of countries ratifying it, may be found at http://www.un.org/disabilities/, accessed 25 November 2014.

  13. 13.

    CRPD, Article 2.

  14. 14.

    CRPD, Article 2. Note that ‘accommodation’ is not in this context a term referring to physical accommodation or housing. That is covered in Article 28 (as part of the right to an adequate standard of living and social protection) and by implication in a number of other articles. ‘Reasonable accommodation’ requires modifications and adjustments in all of the areas governed by the CRPD. While ‘reasonable accommodation’ reflects a long legal usage in anti-discrimination law, ‘reasonable adjustments’ or ‘reasonable adaptations’ may be more useful to non-lawyers in understanding the concept.

  15. 15.

    CRPD, Articles 6 and 7. Perhaps surprisingly, and unfortunately, there is no express article protecting the specific needs of people based on race or other demographic criteria. While this is acknowledged in the recitals at the beginning (see recital (p), located prior to Article 1), it is not reflected in specific articles in the Convention.

  16. 16.

    On the drafting history, see Lawson (2006).

  17. 17.

    See, e.g., MacKay (2006). While this is generally a fair reading of the CRPD, there has been some debate as to whether the new right to integrity of the person (Article 17) is merely a re-statement of an existing right or is instead an extension of previous conventions. Certainly, it does not appear expressly in other conventions. On this point, see Quinn (2009), Weller (2008), Kayess and French (2008), Mégret (2008).

  18. 18.

    There are of course a wide array of other reasons why rights may be curtailed. The point here is not that fundamental human rights may never be curtailed, but rather that the effects on stigmatisation is not a reason for doing so.

  19. 19.

    CRPD Article 1.

  20. 20.

    CRPD, Article 25 (b).

  21. 21.

    United Nations Mental Illness Principles, adopted by General Assembly resolution 46/119 (17 December 1991), principle 3.

  22. 22.

    CRPD, Article 19.

  23. 23.

    Regarding compulsory admission, see UN High Commissioner for Human Rights (2009). This is further consistent with a number of the Committee’s concluding observations on individual countries. Regarding compulsory treatment, see Report of the Special Rapporteur on torture and other cruel, inhuman or degrading treatment or punishment, Juan E. Méndez to the United Nations General Assembly, A/HRC/22/53 (1 February 2013). A volume of papers reflecting on this report has been published as Torture in Healthcare Settings: Reflections on the Special Rapporteur on Tortures 2013 Thematic Report (Washington: Centre for Human Rights and Humanitarian Law, American University Washington College of Law, 2014). It is available at http://antitorture.org/torture-in-healthcare-publication/. Accessed 29 November 2014.

  24. 24.

    To put it another way, while reasonable accommodations are limited to responses that do not impose a disproportionate or undue burden [CRPD Article 2], the CRPD says nothing about how to understand situations where reasonable accommodation cannot realise the right in question. It would be unthinkable, given the ethos of the Convention, that people with disabilities in this circumstance do not acquire rights under the Convention, but the Convention does not articulate how those rights are to be understood.

  25. 25.

    CRPD Committee, General Comment on Article 12, CRPD/C/GC/1 (19 May 2014). For a discussion of this article in an English context, see Bartlett (2012).

  26. 26.

    Dawson and Szmukler (2006), Rees (2010), and the papers in the Horne and Richardon (2010).

  27. 27.

    For discussions of capacity and guardianship that raise some of these issues, see the country reports of the Mental Disability Advocacy Center (MDAC) relating to Serbia, Russia, the Czech Republic, Bulgaria, Hungary and Kyrgystan from 2006 to 2007 available at http://www.mdac.info/en/resources?goal=137&format=144&page=1. Accessed 17 November 2014.

  28. 28.

    Churchill et al. (2007); Kisely et al. (2005).

  29. 29.

    Priebe et al. (2011).

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Bartlett, P. (2017). Stigma, Human Rights and the UN Convention on the Rights of Persons with Disabilities. In: Gaebel, W., Rössler, W., Sartorius, N. (eds) The Stigma of Mental Illness - End of the Story?. Springer, Cham. https://doi.org/10.1007/978-3-319-27839-1_12

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