Skip to main content
SpringerLink
Log in

Autism spectrum disorder and the family: examining impacts and the need for support

  • Chapter
  • First Online:
Clinician’s Manual on Autism Spectrum Disorder

Abstract

ASD is a pervasive condition that has a profound and prolonged impact on families. This chapter offers an overview of selected literature identifying family experiences of ASD, with implications for clinical care and support.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Log in via an institution
Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 39.99
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 54.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Preview

Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.

References

  1. Kabot S, Masi W, Segal M. Advances in the diagnosis and treatment of autism spectrum disorders. Prof Psychol Res Pr. 2003;34:26-33.

    Google Scholar 

  2. Marcus LM, Kunce LJ, Schopler E. Working with Families. In, Cohen DJ, Volkmar FR, eds. Handbook of Autism and Pervasive Developmental Disorders. 2nd edn. New York: John Wiley and Sons; 1997:631-649.

    Google Scholar 

  3. Stoddart KP. Reported stress, personality, and mental health in parents of children with pervasive developmental disorders. Faculty of Social Work, University of Toronto, Toronto; 2003.

    Google Scholar 

  4. Nicholas DB, Zwaigenbaum L, Roberts W, McKeever P. Examining the experience of mothers of children with autism. Canadian Paediatric Society 90th Annual Conference. Edmonton, Canada. June 19-21, 2013.

    Google Scholar 

  5. Woodgate RL, Ateah C, Secco L. Living in a world of our own: The experience of parents who have a child with autism. Qual Health Res. 2008;18:1075-1083.

    Google Scholar 

  6. Lutz HR, Patterson BJ, Klein J. Coping with autism: A journey toward adaptation. J Pediatr Nurs. 2012;27:206-213.

    Google Scholar 

  7. Kogan MD, Strickland BB, Blumberg SJ, Singh GK, Perrin JM, van Dyck PC. A national profile of health care experiences and family impact of autism spectrum disorder among children in the United States, 2005-2006. Pediatrics. 2008;122:e1149-e1158.

    Google Scholar 

  8. Gray DE. ‘Everybody just freezes. Everybody is just embarrassed’: Felt and enacted stigma among parents of children with high functioning autism. Sociol Health Illn. 2002a;24:734-749.

    Google Scholar 

  9. Hastings RP, Kovshoff H, Brown T, Ward NJ, Espinosa FD, Remington B. Coping strategies in mothers and fathers of preschool and school-age children with autism. Autism. 2005;9:377-391.

    Google Scholar 

  10. Gray DE. Ten years on: A longitudinal study of families of children with autism. J Intellect Dev Disabil. 2002b;27:215-222.

    Google Scholar 

  11. Bayat M. Evidence of resilience in families of children with autism. J Intellect Dev Disabil. 2007;51:702-714.

    Google Scholar 

  12. Macks RJ, Reeve RE. The adjustment of non-disabled siblings of children with autism. J Autism Dev Disord. 2007;37:1060-1067.

    Google Scholar 

  13. Benson PR, Karlof KL. Child, parent, and family predictors of latter adjustment in siblings of children with autism. Res Autism Spectr Disord. 2008;2:583-600.

    Google Scholar 

  14. Margetts JK, Le Couteur A, Croom S. Families in a state of flux: The experiences of grandparents in autism spectrum disorder. Child Care Health Dev. 2006;32:565-574.

    Google Scholar 

  15. Nicholas DB, Attridge M, Zwaigenbaum L, Clarke M. Vocational support approaches in autism spectrum disorder: a synthesis review of the literature. Autism. 2014;19:235-245.

    Google Scholar 

  16. World Health Organization. Autism spectrum disorders and other developmental disorders: From raising awareness to building capacity. www.who.int/mental_health/maternal-child/autism_report/en/. WHO website. Updated 2013. Accessed February 4, 2015.

  17. The Standing Senate Committee on Social Affairs, Science and Technology. Pay now or pay later: Autism families in crisis. www.parl.gc.ca/Content/SEN/Committee/391/soci/rep/repfinmar07-e.htm. Updated March 2007. Accessed February 4, 2015.

  18. Bowen Center for the Family. The Bowen theory. www.thebowencenter.org/pages/theory. html. Accessed February 4, 2015.

  19. Nicholas DB, Keilty K, Karmali K. Paediatric patient-centred care: Evidence and evolution. In, Zlotnik Shaul R, ed. Ethics and Law in Pediatric Patient and Family-Centred Care. New York, NY: Springer; 2014.

    Google Scholar 

  20. Institute for Patient- and Family-Centered Care (IPFCC). Frequently Asked Questions. IPFCC website. www.ipfcc.org/faq.html. Accessed February 4, 2015.

Download references

Author information

Authors and Affiliations

  1. Faculty of Social Work, University of Calgary, Calgary, Canada

    David B Nicholas & Christopher Kilmer

  2. Department of Pediatrics, University of Alberta, Edmonton, Canada

    Christopher Kilmer

Authors
  1. David B Nicholas
    View author publications

    You can also search for this author in PubMed Google Scholar

  2. Christopher Kilmer
    View author publications

    You can also search for this author in PubMed Google Scholar

Editor information

Editors and Affiliations

  1. Holland Bloorview Kids Rehabilitation Hospital, University of Toronto, Autism Research Centre, Toronto, Ontario, Canada

    Evdokia Anagnostou

  2. Holland Bloorview Kids Rehabilitation Hospital, University of Toronto,Autism Research Centre, Toronto, Ontario, Canada

    Jessica Brian

Rights and permissions

Reprints and permissions

Copyright information

© 2015 Springer International Publishing Switzerland

About this chapter

Cite this chapter

Nicholas, D.B., Kilmer, C. (2015). Autism spectrum disorder and the family: examining impacts and the need for support. In: Anagnostou, E., Brian, J. (eds) Clinician’s Manual on Autism Spectrum Disorder. Adis, Cham. https://doi.org/10.1007/978-3-319-03056-2_7

Download citation

  • DOI: https://doi.org/10.1007/978-3-319-03056-2_7

  • Published:

  • Publisher Name: Adis, Cham

  • Print ISBN: 978-3-319-03055-5

  • Online ISBN: 978-3-319-03056-2

  • eBook Packages: MedicineMedicine (R0)

Publish with us

Policies and ethics

Search

Navigation