Abstract
Cystic fibrosis (CF) is an inborn and incurable progressive disease that mainly affects the lungs. Patients’ life expectancy is reduced and disease burden increases over time. Recent studies suggest that spiritual issues are relevant to persons with CF and may be helpful for coping with the disease. However, which spiritual needs they have, is unclear. This chapter discusses findings of a multicenter study in Germany. Important spiritual needs in persons with CF were Attention and Positive Affirmation, Inner Peace and Religious Needs in some persons. Intensity of spiritual needs may be related to disease severity. Addressing spiritual needs should be part of holistic medical care in patients with CF.
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Acknowledgements
We are grateful to all who have helped to enroll the patients, particularly Charlotte Roche, who worked on this project as a part of her thesis, Florian Stehling, Sutharsan Sivagurunathan and Michaela Schiller from the collaborating university hospitals in Essen and Homburg/Saar and all patients who have filled the questionnaire.
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Große-Onnebrink, J., Büssing, A. (2021). Psychosocial, Existential and Spiritual Needs of Persons with Cystic Fibrosis. In: Büssing, A. (eds) Spiritual Needs in Research and Practice. Palgrave Macmillan, Cham. https://doi.org/10.1007/978-3-030-70139-0_14
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DOI: https://doi.org/10.1007/978-3-030-70139-0_14
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