Abstract
Autism spectrum disorder (ASD) is a neurodevelopmental disorder affecting 1 in 59 children in the United States. The benefits of early detection and intervention for ASD have been clearly documented. However, significant delays exist in access to early screening, diagnosis, and service provision. Despite the American Academy of Pediatrics’ guidelines recommending developmental screening for ASD at 18 and 24 months, less than 20% of children with ASD receive their diagnosis before age 3. For many, this diagnosis comes several years later, which further delays entry into support services. There are documented barriers to appropriate developmental screening occurring in primary care, largely due to the lack of time that primary care clinicians have to conduct this screening. Thus, there is a need to expand developmental screening to also occur in accessible community-based settings, such as the home, preschool, child care, and other community programs. This chapter provides the rationale for developmental screening to occur in community settings and describes several existing models that may be positioned to offer innovative solutions to overcome the limitations with families solely relying on the primary care clinic as a developmental screening source.
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References
Baio, J., Wiggins, L., Christensen, D. L., Maenner, M., Daniels, J., Warren, Z., & Dowling, N. F. (2018). Prevalence of autism spectrum disorder among children aged 8 years-Autism and Developmental Disabilities Monitoring Network, 11 sites, United States, 2014. Morbidity and Mortality Weekly Report, 67, 1–23.
Bardhan, S., Mridha, G. M., Ahmed, E., Ullah, A., Ahmed, H. U., Rabbani M. G., … Al Mamun, A. (2016). Autism BARTA─A smart device based automated autism screening tool for Bangladesh. In Fifth International Conference on Informatics. Retrieved form https://ieeexplore.ieee.org/document/7760073.
Birth to Five: Watch me Thrive. Available from https://www.acf.hhs.gov/ecd/child-health-development/watch-me-thrive.
Bishop-Fitzpatrick, L., & Kind, A., J., H. (2017). A scoping review of health disparities in autism spectrum disorder. Journal of Autism and Developmental Disorders, 47, 3380–3391.
Bogin, J. (2006). Enhancing developmental services in primary care: The Help Me Grow experience. Journal of Developmental and Behavioral Pediatrics, 27, S8–S12.
Books, Blocks and Balls program manual. Available from Help Me Grow- Utah, Provo, UT. March, 2017. Retrieved from https://helpmegrownational.org/resources/books-balls-and-blocks-manual/.
Braddock, B., & Twyman, K. (2014). Access to treatment for toddlers with autism spectrum disorders. Clinical Pediatrics, 53, 225–229.
Branson, D., & Bingham, A. (2017). Child care providers’ competence and confidence in referring children at risk for developmental delays. Infants & Young Children, 30, 41–57.
Brown, S. E., & Guralnick, M. J. (2012). International human rights to early intervention for infants and young children with disabilities. Infants and Young Children, 25, 270–285.
Crane, L., Chester, J. W., Goddard, L., Henry, L. A., & Hill, E. (2016). Experiences of autism diagnosis: A survey of over 1000 parents in the United Kingdom. Autism, 20, 153–162.
Dawson, G., Jones, E. J., Merkle, K., Venema, K., Lowy, R., Faja, S., Kamara, K., & Webb, S. J. (2012). Early behavioral intervention is associated with normalized brain activity in young children with autism. Journal of the American Academy of Child and Adolescent Psychiatry, 51, 1150–1159.
Dawson, G., Rogers, S., Munson, J., Smith, M., Winter, J., Greenson, J., Donaldson, A., & Varley, J. (2010). Randomized, controlled trial of an intervention for toddlers with autism: The Early Start Denver Model. Pediatrics, 125, 17–23.
Durkin, M. S., Maenner, M. J., Meaney, F., J., Levy, S. E., DiGuiseppi, C., Nicholas, J. S., & Schieve, L. A. (2010). Socioeconomic inequility in the prevalence of autism spectrum disorder: Evidence from a U. S. cross-sectional study. PLoS One, 12, e11551.
Dworkin, P. (2006). Historical overview: From ChildServ to Help Me Grow. Journal of Developmental and Behavioral Pediatrics, 27, S5–S7.
Easter Seals: Make the first five count. Retrieved from https://www.easterseals.com/mtffc/asq/July2019.
Earhart, J., & Zamora, I. (2015). Achievement together: The development of an intervention using relationship-based strategies to promote positive learning habits. Infants and Young Children, 28, 32–45.
Earls, M. F., Andrews, J. E., & Hay, S. S. (2009). A longitudinal study of developmental and behavioral screening and referral in North Carolina's assuring better health and development participating practices. Clinical Pediatrics, 48, 824–833.
Glascoe, F. P. (2010). Parents’ evaluation of developmental status: Online (PEDS online). Nashville, TN: Ellsworth and Vandermeer Press LLC.
Harris, J., & Norton, A. (2016). The Quick Peek program: A model for developmental screening within underserved communities. Infants & Young Children, 29, 290–298.
Helt, M., Kelley, E., Kinsbourne, M., Pandey, J., Boorstein, H., Herbert, M., & Fein, D. (2008). Can children with autism recover? If so, how? Neuropsychological Review, 18, 339–366.
Janvier, Y. M., Harris, J. F., Coffield, C. N., Louis, B., Xie, M., Cidav, Z., et al. (2015). Screening for autism spectrum disorder in underserved communities: Early childcare providers as reporters. Autism, 20, 364–373.
Janvier, Y. M., Harris, J. F., Coffield, C. N., Louis, B., Xie, M., Cidav, Z., et al. (2016). Screening for autism spectrum disorder in underserved communities: Early childcare providers as reporters. Autism, 20, 364–373.
Jimenez, M. E., Barg, F. K., Guevara, J. P., Gerdes, M., & Fiks, A. G. (2012). Barriers to evaluation for early intervention services: Parent and early intervention employee perspectives. Academic Pediatrics, 12, 551–557.
Johnson, C. P., Myers, S. M., & American Academy of Pediatrics Council on Children with Disabilities. (2007). Pediatrics, 120, 1183–215.
King, T. M., Tandon, S. D., Macias, M. M., Healy, J. A., Duncan, P. M., Swignoski, N. L., & Lipkin, P. H. (2010). Implementing developmental screening and referrals: Lessons learned from a national project. Pediatrics, 125, 350–360.
Larsen, K., Aasland, A., & Diseth, T. H. (2018). Identification of symptoms of autism spectrum disorders in the second year of life at day-care centers by day-care staff: Step one in the development of a short observation list. Journal of Autism and Developmental Disorders, 48, 2267–2277.
Lord, C., Risi, S., DiLavore, P. S., Shulman, C., Thurm, A., & Pickles, A. (2006). Autism from 2 to 9 years of age. Archives of General Psychiatry, 63, 694–701.
Maternal Child Health Initiatives (MCHI). Retrieved from https://mchb.hrsa.gov/maternal-child-health-initiatives/home-visiting-overview.
McKay, K., Shannon, A., Vater, S., & Dworkin, P. H. (2006). ChildServ: Lessons learned from the design and implementation of a community-based developmental surveillance program. Infants & Young Children, 19, 371–377.
Michalopoulos, C., Faucetta, K., Hill, C. J., Portilla, X, A., Burrell, L., Lee, H., Duggan, A., & Knox, V. (2019). Impacts on family outcomes of evidence-based early childhood home visiting: Results from the Mother and Infant Home Visiting Program Evaluation (OPRE Report 2019-07). Washington, DC: Office of Planning, Research, and Evaluation, Administration for Children and Families, U.S. Department of Health and Human Services. Retrieved from https://www.acf.hhs.gov/sites/default/files/opre/mihope_impact_report_final20_508.pdf.
Michalopoulos, C., Faucetta, K., Warren, A., & Mitchell, R. (2017). Evidence on the long-term effects of home visiting programs: Laying the groundwork for long-term follow-up in the Mother and Infant Home Visiting Program Evaluation (MIHOPE) (OPRE Report 2017-73). Washington, DC: Office of Planning, Research and Evaluation, Administration for Children and Families, U.S. Department of Health and Human Services. Retrieved from https://www.acf.hhs.gov/sites/default/files/opre/mihope_lt_long_term_evidence_brief_508_compliant_corrected.pdf.
Morelli, S. A., Rameson, L. T., Lieberman, M. D. (2014). The neural components of empathy: Predicting daily prosocial behavior. Scane, 9, 39–47.
National Center on Early Childhood Quality Assurance. (2018). QRIS Resource Guide. US. Retrieved from https://ecquality.acf.hhs.gov/resource-guide.
Nelson, B. B., Thompson, L. R., Herrera, P., Biely, C., Zarate, D. A., Aceves, I., et al. (2019). Telephone-based developmental screening and care coordination through 2-1-1: A randomized trial. Pediatrics, 143, e20181064.
Paschall, K. W., & Mastergeorge, A. M. (2016). A review of 25 years of research in bidirectionality in parent-child relationships: An examination of methodological approaches. International Journal of Behavioral Development, 40, 442–451.
Reichow, B., & Wolery, M. (2009). Comprehensive synthesis of early intensive behavioral interventions for young children with autism based on teh UCLA young autism project model. Journal of Autism and Developmental Disorders, 39, 23–41.
Robins, D. L. (1999). The modified checklist for Autism in toddlers (M-CHAT). Storrs, CT: self-published.
Robins, D. L. (2008). Screening for autism spectrum disorders in primary care settings. Autism, 12, 537–556.
Robins, D. L., Fein, D., & Barton, M. (2009). The modified checklist for autism in toddlers. Revised with Follow-Up (M-CHAT-R/F): Self-published.
Roux, A. M., Herrera, P., Wold, C. M., Dunkle, M. C., Glascoe, F. P., & Shattuck, P. T. (2012). Developmental and autism screening through 2-1-1: Reaching underserved families. American Journal of Preventive Medicine, 43, S457–S463.
Sallows, G. O., & Graupner, T. D. (2005). Intensive behavioral treatment for children with autism: Four-year outcome and predictors. American Journal of Mental Retardation, 110, 417–438.
Shahidullah, J. D., Forman, S. G., Norton, A., Harris, J., Palejwala, M. H., & Chaudhuri, A. (2020). Implementation of developmental screening by childcare providers. Infants & Young Children, 33, 21–34.
Sheldrick, R. C., Maye, M. P., & Carter, A. S. (2017). Age at first identification of autism spectrum disorder: An analysis of two US surveys. Journal of the American Academy of Child and Adolescent Psychiatry, 56, 313–320.
Squires, J., Twomby, E., Bricker, D. D., & Potter, L. (2009). Ages and stages Questionnaire-3 User’s guide. Paul H Brookes Publishing.
Thabtah, F. (2018). An accessible and efficient autism screening method for behavioural data and predictive analyses. Health Informatics Journal. Retrieved from https://journals.sagepub.com/doi/pdf/10.1177/1460458218796636.
Zablotsky, B., Black, L. I., Blumberg, S. J. (2017). Estimated prevalence of children with diagnosed developmental disabilities in the United States, 2014–2016. U.S. Department of Health and Human Services, National Center for Health Statistics Data Brief, 291.
Zuckerman, K. E., Sinche, B., Cobian, M., Cervantes, M., Meija, A., Becker, T., et al. (2014). Conceptualization of autism in the Latino community and its relationship with early diagnosis. Journal of Developmental and Behavioral Pediatrics, 35, 522–532.
Zwaigenbaum, L., Bauman, M., L., Stone, W., L., Yirmiya, N., Estes, A., Hansen, R., L., & Wetherby, A. (2015). Early identification of autism spectrum disorder: Recommendations for practice and research. Pediatrics, 136, S10–S40.
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Shahidullah, J.D., Forman, S.G., Harris, J.H., Norton, A. (2020). Developmental Screening in Community-Based Settings. In: McClain, M., Shahidullah, J., Mezher, K. (eds) Interprofessional Care Coordination for Pediatric Autism Spectrum Disorder. Springer, Cham. https://doi.org/10.1007/978-3-030-46295-6_4
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