Abstract
Family involvement has been a hallmark of the field of intellectual disabilities. Organizations such as ARC and other family-centered programs are important resources for parents and caregivers of individuals with disabilities. There are also a number of professional organizations for researchers and professionals. Community programs such as the Special Olympics and Best Buddies include parent and professional involvement as well as community volunteers. A history of the field and the development of some of these organizations is reviewed, along with a description of each organization and their functions.
This is a preview of subscription content, log in via an institution to check access.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
References
AAIDD. (2018). Mission. Retrieved April 21, 2018, from http://aaidd.org/about-aaidd/mission#.WtuZB1Mvw6g
American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Washington, DC: American Psychiatric Association.
ANCOR. (2018a). About ANCOR. Retrieved April 22, 2018, from http://www.ancor.org/about-ancor
ANCOR. (2018b). Advocacy. Retrieved April 22, 2018 from http://www.ancor.org/advocacy
Angelman Syndrome Foundation (2018). Retrieved from https://www.angelman.org/
AUCD. (2018). About Us. Retrieved April 22, 2018, from https://www.aucd.org/template/page.cfm?id=1
Berkowitz, E. D. (1980). The politics of mental retardation during the Kennedy administration. Social Science Quarterly, 61(1), 128–143.
Best Buddies International. (2018). Best Buddies International. Retrieved May 19, 2018, from https://www.bestbuddies.org/
Dempsey, I., Keen, D., Pennell, D., O’Reilly, J., & Neilands, J. (2009). Parent stress, parenting competence and family-centered support to young children with an intellectual or developmental disability. Research in Developmental Disabilities, 30(3), 558–566. https://doi.org/10.1016/j.ridd.2008.08.005
Dykens, E. M., & Cohen, D. J. (1996). Effects of Special Olympics International on Social Competence in Persons with Mental Retardation. Journal of the American Academy of Child & Adolescent Psychiatry, 35(2), 223–229. https://doi.org/10.1097/00004583-199602000-00016
Easterseals. (2018). Who We Are: The Story of the Easterseals. Retrieved from http://www.easterseals.com/who-we-are/history/
Families Affected by Fetal Alcohol Spectrum Disorder. (2018). Retrieved from http://fafasd.org/
22q Family Foundation. (2018). Retrieved from https://22qfamilyfoundation.org/
Gibbons, S. L., & Byshakra, F. B. (1989). Effects of special olympics participation on the perceived competence and social acceptance of mentally retarded children. Adapted Physical Activity Quarterly, 6(1), 40–51. https://doi.org/10.1123/apaq.6.1.40
Harada, C. M., & Siperstein, G. N. (2009). The sport experience of athletes with intellectual disabilities: A national survey of special olympics athletes and their families. Adapted Physical Activity Quarterly, 26(1), 68–85. https://doi.org/10.1123/apaq.26.1.68
Hardman, M. L., & Clark, C. (2006). Promoting friendship through best buddies: A National Survey of College Program Participants. Mental Retardation, 44(1), 56–63.
Harris, J. C. (2013). New terminology for mental retardation in DSM-5 and ICD-11. Current Opinion in Psychiatry, 26(3), 260. https://doi.org/10.1097/YCO.0b013e32835fd6fb
John F. Kennedy Presidential Library and Museum (n.d.) John F. Kennedy and People with Intellectual Disabilities. Retrieved from https://www.jfklibrary.org/JFK/JFK-in-History/JFK-and-People-with-Intellectual-Disabilities.aspx
NASDDDS. (2018). About - NASDDDS. Retrieved April 22, 2018, from http://www.nasddds.org/about-nasddds/
National Alliance for Direct Support Professionals. (2018). What we are; Who we are; Our guiding principles; Our services; Other services we offer. Retrieved from https://www.nadsp.org/
National Association for Down Syndrome. (2018). Retrieved from http://www.nads.org/
National Down Syndrome Society. (2018). Retrieved from https://www.ndss.org/
National Organization on Fetal Alcohol Syndrome. (2018). Retrieved from https://www.nofas.org/
NIH. (2018). Eunice Kennedy Shriver Intellectual & Developmental Disabilities Research Centers (EKS-IDDRCs). Retrieved from https://www.nichd.nih.gov/research/supported/eksiddrc
Special Olympics. (2018). What We Do. Retrieved April 21, 2018, from https://www.specialolympics.org/Sections/What_We_Do/What_We_Do.aspx?src=navwhat
TASH. (2018). About TASH. Retrieved from https://tash.org/about/
The Arc. (2011). Resources: Get to Know the Arc. Retrieved from https://www.thearc.org/what-we-do/resources/fact-sheets/get-to-know-the-arc
The Arc. (2018a). History of the Arc. Retrieved from https://www.thearc.org/who-we-are/history
The Arc. (2018b). Programs & Services. Retrieved from https://www.thearc.org/what-we-do/programs-and-services
The Arc. (2018c). Six Decades of Advocacy. Retrieved from https://www.thearc.org/who-we-are/history/advocacy
The Arc. (2018d). Who we are. Retrieved from https://www.thearc.org/who-we-are
United Cerebral Palsy. (2018). Retrieved from http://ucp.org/
VSA. (2018). About VSA. Retrieved from http://education.kennedy-center.org/education/vsa/
Weiss, J., Diamond, T., Demark, J., & Lovald, B. (2003). Involvement in Special Olympics and its relations to self-concept and actual competency in participants with developmental disabilities. Research in Developmental Disabilities, 24, 281–305.
Wright, J., & Cowden, J. E. (1986). Changes in self-concept and cardiovascular endurance of mentally retarded youths in a special olympics swim training program. Adapted Physical Activity Quarterly, 3(2), 177–183. https://doi.org/10.1123/apaq.3.2.177
Author information
Authors and Affiliations
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2019 Springer Nature Switzerland AG
About this chapter
Cite this chapter
Burns, C.O., Shaheen, G., Upton, S.R. (2019). Parent and Professional Organizations. In: Matson, J.L. (eds) Handbook of Intellectual Disabilities. Autism and Child Psychopathology Series. Springer, Cham. https://doi.org/10.1007/978-3-030-20843-1_9
Download citation
DOI: https://doi.org/10.1007/978-3-030-20843-1_9
Published:
Publisher Name: Springer, Cham
Print ISBN: 978-3-030-20842-4
Online ISBN: 978-3-030-20843-1
eBook Packages: Behavioral Science and PsychologyBehavioral Science and Psychology (R0)