Résumé
Les parents tentent généralement d’aider au mieux leur adolescent atteint d’un cancer, amenant au premier plan la question de leur capacité à percevoir les besoins et les diffi cultés de celui-ci. En effet, c’est entre autres en se basant sur cette perception que le parent pourra d’une part évaluer la situation de son enfant, et d’autre part lui proposer de l’aide ou en rechercher pour lui. Quelles que soient les capacités physiques, cognitives et affectives de l’adolescent à exprimer directement ses diffi cultés, cette perception reste un élément fondamental pour défi nir la manière dont les parents vont appréhender son état. Comment les parents perçoivent-ils les diffi cultés de leur enfant? Quels sont les mécanismes en jeu? C’est ce que nous allons explorer à travers ce chapitre, en nous penchant d’abord sur le concept de perception, avant de faire le tour des études déjà réalisées sur ce sujet, et de leurs résultats.
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Références
Bloch H, Dépret E, Gallo A et al. (2002) Dictionnaire fondamental de la psychologie. Larousse, Paris
Godefroid J (2001) Psychologie: science humaine et science cognitive. De Boeck Université, Bruxelles
Ruby P, Decety J (2003) What you believe versus what you think they believe: a neuroimaging study of conceptual perspective-taking. Euro J Neurosci 17: 2475–80
Lobchuk MM (2006) Concept analysis of perspective-taking: meeting informal caregiver needs for communication competence and accurate perception. J Advanced Nursing 54: 330–41
Levi RB, Drotar D (1999) Health-related quality of life in childhood cancer: discrepancy in parent-child reports. Int J Cancer Supplement 12: 58–64
Eiser C, Morse R (2001) Can parents rate their child’s health-related quality of life? Results of a systematic review. Quality Life Res 10: 347–57
Vance YH, Morse RC, Jenney ME, Eiser C (2001) Issues in measuring quality of life in childhood cancer: measures, proxies, and parental mental health. J Child Psychol Psychiatr 42: 661–7
Russel KMW, Hudson M, Long A, Phipps S (2006) Assessment of health-related quality of life in children with cancer: consistency and agreement between parent and child reports. Cancer 106: 2267–74
Jurbergs N, Russel KMW, Long A, Phipps S (2008) Adaptative style and differences in parent and child report of health-related quality of life in children with cancer. Psycho-Oncol 17: 83–90
Waters E, Stewart-Browm S, Fitzpatrick R (2003) Agreement between adolescent self-report and parent reports of health and well-being: results of an epidemiological study. Child Care, Health & Develop 29: 501–9
Jozefi ak T, Larsson B, Wichstrøm L et al. (2008) Quality of life as reported by school children and their parents: a cross-sectional survey. Health and Quality of Life Outcomes 6
Upton P, Lawford J, Eiser C (2008) Parent-child agreement across child health-related quality of life instruments: a review of the literature. Quality Life Res 17: 895–913
Challinor JM, Miaskowski CA, Franck LS et al. (1999) Somatization, anxiety and depression as measures of health-related quality of life of children/adolescents with cancer. Int J Cancer Supplement 12: 52–57
Creemens J, Eiser C, Blades M (2006) Factors infl uencing agreement between child self-report and parent proxy-reports on the Pediatric Quality of Life InventoryTM 4.0 (PedsQLTM) generic core scales. Health and Quality of Life Outcomes 4
Sawyer M, Antoniou G, Toogood I, Rice M (1999) A comparison of parent and adolescent reports describing the health-related quality of life of adolescents treated for cancer. Int J Cancer 12: 39–45
Canning EH, Canning RD, Boyce WT (1992) Depressive symptoms and adaptive style in children with cancer. J Am Acad Child Adolesc Psychiatr 31: 1120–24
Lobchuk MM, Degner LF (2002) Symptom experiences: perceptual accuracy between advancedstage cancer patients and family caregivers in the home care setting. J Clin Oncol 20: 3495–507
Milne DJ, Mulder LL, Beelen, HC et al. (2006) Patient’s self-report and family caregiver’s perception of qulity of life in patients with advanced cancer: how do they compare? Eur J Cancer Care 15: 125–32
Eiser C, Eiser JR, Stride CB (2005) Quality of life in children newly diagnosed with cancer and their mothers. Health and Quality of Life Outcomes 3:29
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Deraedt, S. (2010). La perception parentale des difficultés de l’adolescent atteint de cancer. In: L’adolescent atteint de cancer et les siens. Springer, Paris. https://doi.org/10.1007/978-2-287-99086-1_7
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DOI: https://doi.org/10.1007/978-2-287-99086-1_7
Publisher Name: Springer, Paris
Print ISBN: 978-2-287-99042-7
Online ISBN: 978-2-287-99086-1