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Quality of Life Scales

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Guide to Assessment Scales in Parkinson’s Disease

Abstract

The most commonly used quality of life scales purposely developed for Parkinson’s disease (PD) are described in this chapter. In addition, two generic scales that cover relevant health domains for PD are also presented.

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References

  1. Peto V, Jenkinson C, Fitzpatrick R, Greenhall R. The development and validation of a short measure of functioning and well being for individuals with Parkinson’s disease. Qual Life Res. 1995;4:241-248.

    Google Scholar 

  2. Jenkinson C, Fitzpatrick R, Peto V, et al. The PDQ-8: Development and validation of a short-form parkinson’s disease questionnaire. Psychol Health. 1997;12:805-814.

    Google Scholar 

  3. Martinez-Martin P, Jeukens-Visser M, Lyons KE, et al. Health-related quality-of-life scales in Parkinson’s disease: critique and recommendations. Mov Disord. 2011;26:2371-2380.

    Google Scholar 

  4. Martínez-Martín P, Benito-León J, Alonso F, Catalán MJ, Pondal M, Zamarbide I. Health-related quality of life evaluation by proxy in Parkinson’s disease: approach using PDQ-8 and EuroQoL-5D. Mov Disord. 2004;19:312-318.

    Google Scholar 

  5. Hagell P. Feasibility and linguistic validity of the Swedish version of the PDQ-39. Expert Rev Pharmacoecon Outcomes Res. 2005;5:131-136.

    Google Scholar 

  6. Hagell P, Nygren C. The 39 item Parkinson’s disease questionnaire (PDQ-39) revisited: implications for evidence based medicine. J Neurol Neurosurg Psychiatr. 2007;78:1191-1198.

    Google Scholar 

  7. Jenkinson C, Fitzpatrick R. Cross-cultural evaluation of the short form 8-item Parkinson’s Disease Questionnaire (PDQ-8): results from America, Canada, Japan, Italy and Spain. Parkinsonism Relat Disord. 2007;13:22-28.

    Google Scholar 

  8. Martinez-Martin P, Serrano-Duenas M, Forjaz MJ, Serrano MS. Two questionnaires for Parkinson’s disease: are the PDQ-39 and PDQL equivalent? Qual Life Res. 2007;16:1221-1230.

    Google Scholar 

  9. Marinus J, Ramaker C, Van Hilten JJ, Stiggelbout AM. Health related quality of life in Parkinson’s disease: a systematic review of disease specific instruments. J Neurol Neurosurg Psychiatr. 2002;72:241-248.

    Google Scholar 

  10. Grosset D, Taurah L, Burn DJ, et al. A multicentre longitudinal observational study of changes in self reported health status in people with Parkinson’s disease left untreated at diagnosis. J Neurol Neurosurg Psychiatr. 2007;78:465-469.

    Google Scholar 

  11. Young MK, Ng S-K, Mellick G, Scuffham PA. Mapping of the PDQ-39 to EQ-5D scores in patients with Parkinson’s disease? Qual Life Res. 2013;22:1065-1072.

    Google Scholar 

  12. Martinez-Martin P, Deuschl G. Effect of medical and surgical interventions on health-related quality of life in Parkinson’s disease. Mov Disord. 2007;22:757-765.

    Google Scholar 

  13. Schrag A, Spottke A, Quinn NP, Dodel R. Comparative responsiveness of Parkinson’s disease scales to change over time. Mov Disord. 2009;24:813-818.

    Google Scholar 

  14. Peto V, Jenkinson C, Fitzpatrick R. Determining minimally important differences for the PDQ-39 Parkinson’s disease questionnaire. Age Ageing. 2001;30:299-302.

    Google Scholar 

  15. Luo N, Tan LC, Zhao Y, Lau PN, Au WL, Li SC. Determination of the longitudinal validity and minimally important difference of the 8-item Parkinson’s Disease Questionnaire (PDQ-8). Mov Disord. 2009;24:183-187.

    Google Scholar 

  16. De Boer AG, Wijker W, Speelman JD, De Haes JC. Quality of life in patients with Parkinson’s disease: development of a questionnaire. J Neurol Neurosurg Psychiatr. 1996;61:70-74.

    Google Scholar 

  17. Serrano-Duenas M, Serrano S. Psychometric characteristics of PIMS–compared to PDQ-39 and PDQL–to evaluate quality of life in Parkinson’s disease patients: validation in Spanish (Ecuadorian style). Parkinsonism Relat Disord. 2008;14:126-132.

    Google Scholar 

  18. Damiano AM, Snyder C, Strausser B, Willian MK. A review of health-related quality-of-life concepts and measures for Parkinson’s disease. Qual Life Res. 1999;8:235-243.

    Google Scholar 

  19. Campos M, de Rezende CH, Farnese Vda C, da Silva CH, Morales NM, Pinto Rde M. Translation, crosscultural adaptation, and validation of the Parkinson’s Disease Quality of Life Questionnaire (PDQL), the “PDQL-BR”, into Brazilian Portuguese. ISRN Neurol. 2011;2011:954787.

    Google Scholar 

  20. Serraño-Duenas M, Martìnez-Martìn P, Vaca-Baquero V. Validation and cross-cultural adjustment of PDQLquestionnaire, Spanish version (Ecuador) (PDQL-EV). Parkinsonism Relat Disord. 2004;10:433-437.

    Google Scholar 

  21. Hobson P, Holden A, Meara J. Measuring the impact of Parkinson’s disease with the Parkinson’s Disease Quality of Life questionnaire. Age Ageing. 1999;28:341-346.

    Google Scholar 

  22. Yousefi B, Tadibi V, Khoei AF, Montazeri A. Exercise therapy, quality of life, and activities of daily living in patients with Parkinson disease: a small scale quasi-randomised trial. Trials. 2009;10:67.

    Google Scholar 

  23. De Bie RM, De Haan RJ, Nijssen PC, et al. Unilateral pallidotomy in Parkinson’s disease: a randomised, single-blind, multicentre trial. Lancet. 1999;354:1665-1669.

    Google Scholar 

  24. de Bie RM, Schuurman PR, Bosch DA, de Haan RJ, Schmand B, Speelman JD; Dutch Pallidotomy Study Group. Outcome of unilateral pallidotomy in advanced Parkinson’s disease: cohort study of 32 patients. J Neurol Neurosurg Psychiatr. 2001;71:375-382.

    Google Scholar 

  25. Esselink RAJ, De Bie RMA, De Haan RJ, et al. Unilateral pallidotomy versus bilateral subthalamic nucleus stimulation in PD: a randomized trial. Neurology. 2004;62:201-207.

    Google Scholar 

  26. Fraix V, Houeto J-L, Lagrange C, et al. Clinical and economic results of bilateral subthalamic nucleus stimulation in Parkinson’s disease. J Neurol Neurosurg Psychiatry. 2006;77:443-449.

    Google Scholar 

  27. Lagrange E, Krack P, Moro E, Ardouin C, et al. Bilateral subthalamic nucleus stimulation improves healthrelated quality of life in PD. Neurology. 2002;59:1976-1978.

    Google Scholar 

  28. Reuther M, Spottke EA, Klotsche J, et al. Assessing health-related quality of life in patients with Parkinson’s disease in a prospective longitudinal study. Parkinsonism Relat Disord. 2007;13:108-114.

    Google Scholar 

  29. Marinus J, Visser M, Martìnez-Martìn P, Van Hilten JJ, Stiggelbout AM. A short psychosocial questionnaire for patients with Parkinson’s disease: the SCOPA-PS. J Clin Epidemiol. 2003;56:61-67.

    Google Scholar 

  30. Martìnez-Martìn P, Carroza-Garcia E, Frades-Payo B, et al; for the Grupo ELEP. [Psychometric attributes of the Scales for Outcomes in Parkinson’s Disease-Psychosocial (SCOPA-PS): validation in Spain and review]. Rev Neurol. 2009;49:1-7.

    Google Scholar 

  31. Virués-Ortega J, Carod-Artal FJ, Serrano-Dueñas M, et al. Cross-cultural validation of the Scales for Outcomes in Parkinson’s Disease-Psychosocial questionnaire (SCOPA-PS) in four Latin American countries. Value Health 2009;12:385-391.

    Google Scholar 

  32. Carod-Artal FJ, Martinez-Martin P, Vargas AP. Independent validation of SCOPA-psychosocial and metric properties of the PDQ-39 Brazilian version. Mov Disord. 2007;22:91-98.

    Google Scholar 

  33. Martìnez-Martin P, Carod-Artal FJ, da Silveira Ribeiro L, et al. Longitudinal psychometric attributes, responsiveness, and importance of change: An approach using the SCOPA-Psychosocial questionnaire. Mov Disord. 2008;23:1516-1523.

    Google Scholar 

  34. Calne S, Schulzer M, Mak E, et al. Validating a quality of life rating scale for idiopathic parkinsonism: Parkinson’s Impact Scale (PIMS). Parkinsonism Relat Disord. 1996;2:55-61.

    Google Scholar 

  35. Schulzer M, Mak E, Calne SM. The psychometric properties of the Parkinson’s Impact Scale (PIMS) as a measure of quality of life in Parkinson’s disease. Parkinsonism Relat Disord. 2003;9:291-294.

    Google Scholar 

  36. Calne SM, Mak E, Hall J, et al. Validating a quality-of-life scale in caregivers of patients with Parkinson’s disease: Parkinson’s Impact Scale (PIMS). Adv Neurol. 2003;91:115-122.

    Google Scholar 

  37. Calne S, Schulzer M, Guyette C, et al. Erratum: Parkinson’s Impact Scale. Parkinsonism Relat Disord. 1996;2:237.

    Google Scholar 

  38. Ray J, Das SK, Gangopadhya PK, Roy T. Quality of life in Parkinson’s disease–Indian scenario. J Assoc Physicians India. 2006;54:17-21.

    Google Scholar 

  39. Serrano-Dueñas M, Calero B, Serrano S, Serrano M, Coronel P. Psychometric attributes of the rating scale for gait evaluation in Parkinson’s disease. Mov Disord. 2010;25:2121-2127.

    Google Scholar 

  40. Hogan T, Grimaldi R, Dingemanse J, Martin M, Lyons K, Koller W. The Parkinson’s disease symptom inventory (PDSI): a comprehensive and sensitive instrument to measure disease symptoms and treatment side-effects. Parkinsonism Relat Disord. 1999;5:93-98.

    Google Scholar 

  41. The EuroQol Group. EuroQol–a new facility for the measurement of health-related quality of life. The EuroQol Group. 1990;16:199-208.

    Google Scholar 

  42. Schrag A, Selai C, Jahanshahi M, Quinn NP. The EQ-5D–a generic quality of life measure-is a useful instrument to measure quality of life in patients with Parkinson’s disease. J Neurol Neurosurg Psychiatry. 2000;69:67-73.

    Google Scholar 

  43. Luo N, Low S, Lau PN, Au WL, Tan LC. Is EQ-5D a valid quality of life instrument in patients with Parkinson’s disease? A study in Singapore. Ann Acad Med Singap ore. 2009;38:521-528.

    Google Scholar 

  44. Siderowf A, Ravina B, Glick HA. Preference-based quality-of-life in patients with Parkinson’s disease. Neurology. 2002;59:103-108.

    Google Scholar 

  45. Luo N, Ng WY, Lau PN, Au WL, Tan LC. Responsiveness of the EQ-5D and 8-item Parkinson’s Disease Questionnaire (PDQ-8) in a 4-year follow-up study. Qual Life Res. 2010;19:565-569.

    Google Scholar 

  46. Ware JE Jr, Sherbourne CD. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care. 1992;30:473-483.

    Google Scholar 

  47. McHorney CA, Ware JE Jr, Raczek AE. The MOS 36-Item Short-Form Health Survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs. Med Care. 1993;31:247-263.

    Google Scholar 

  48. Kuopio AM, Marttila RJ, Helenius H, Toivonen M, Rinne UK. The quality of life in Parkinson’s disease. Mov Disord. 2000;15:216-223.

    Google Scholar 

  49. Brown CA, Cheng EM, Hays RD, Vassar SD, Vickrey BG. SF-36 includes less Parkinson Disease (PD)-targeted content but is more responsive to change than two PD-targeted health-related quality of life measures. Qual Life Res. 2009;18:1219-1237.

    Google Scholar 

  50. Hagell P, Reimer J, Nyberg P. Whose quality of life? Ethical implications in patient-reported health outcome measurement. Value Health. 2009;12:613-617.

    Google Scholar 

  51. Hagell P, Törnqvist AL, Hobart J. Testing the SF-36 in Parkinson’s disease. Implications for reporting rating scale data. J Neurol. 2008;255:246-254.

    Google Scholar 

  52. Banks P, Martin CR. The factor structure of the SF-36 in Parkinson’s disease. J Eval Clin Pract. 2009;15:460-463.

    Google Scholar 

  53. Hobson JP, Meara RJ. Is the SF-36 health survey questionnaire suitable as a self-report measure of the health status of older adults with Parkinson’s disease? Qual Life Res. 1997;6:213-216.

    Google Scholar 

  54. Den Oudsten BL, Van Heck GL, De Vries J. The suitability of patient-based measures in the field of Parkinson’s disease: a systematic review. Mov Disord. 2007;22:1390-1401.

    Google Scholar 

  55. Steffen T, Seney M. Test-retest reliability and minimal detectable change on balance and ambulation tests, the 36-item short-form health survey, and the unified Parkinson disease rating scale in people with parkinsonism. Phys Ther. 2008;88:733-746.

    Google Scholar 

  56. Jenkinson C, Peto V, Fitzpatrick R, Greenhall R, Hyman N. Self-reported functioning and well-being in patients with Parkinson’s disease: comparison of the short-form health survey (SF-36) and the Parkinson’s Disease Questionnaire (PDQ-39). Age Ageing. 1995;24:505-509.

    Google Scholar 

  57. Martìnez Martìn P, Frades B, Jiménez Jiménez FJ, et al. The PDQ-39 Spanish version: reliability and correlation with the short-form health survey (SF-36). Neurologia. 1999;14:159-163.

    Google Scholar 

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Martinez-Martin, P., Rodriguez-Blazquez, C., Forjaz, M.J., Chaudhuri, K.R. (2014). Quality of Life Scales. In: Guide to Assessment Scales in Parkinson’s Disease. Springer Healthcare, Tarporley. https://doi.org/10.1007/978-1-907673-88-7_8

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  • DOI: https://doi.org/10.1007/978-1-907673-88-7_8

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  • Publisher Name: Springer Healthcare, Tarporley

  • Print ISBN: 978-1-907673-87-0

  • Online ISBN: 978-1-907673-88-7

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