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Nomenclature for Congenital and Pediatric Cardiac Disease: Historical Perspectives and the International Pediatric and Congenital Cardiac Code

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Pediatric and Congenital Cardiac Care

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Abstract

The International Pediatric and Congenital Cardiac Code (IPCCC) was created by the International Society of Nomenclature for Paediatric and Congenital Heart Disease (ISNPCHD) to name and classify pediatric and congenital cardiac disease and its treatment. It is a comprehensive code that can be freely downloaded from the internet (http://www.IPCCC.net) and is already in use worldwide, particularly for international comparisons of outcomes. The goal of this effort is to create strategies for stratification of risk and to improve healthcare for the individual patient. The collaboration with the World Health Organization, the International Health Terminology Standards Development Organization, and the healthcare industry, will lead to further enhancement of the IPCCC, and to its more universal use.

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Notes

  1. 1.

    Australia, Canada, Denmark, Lithuania, New Zealand, Netherlands, Sweden, United Kingdom, United States.

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Author information

Authors and Affiliations

  1. Department of Paediatric Cardiology, Royal Brompton Hospital, London, UK

    Rodney C. G. Franklin MD, FRCP, FRCPCH

  2. Division of Cardiac Surgery, Department of Surgery, Johns Hopkins All Children’s Heart Institute, All Children’s Hospital and Florida Hospital for Children, Johns Hopkins University, Saint Petersburg, Tampa and Orlando, FL, USA

    Jeffrey P. Jacobs MD, FACS, FACC, FCCP

  3. Division of Cardiac Surgery, Department of Surgery, Johns Hopkins University, Baltimore, MD, USA

    Jeffrey P. Jacobs MD, FACS, FACC, FCCP

  4. Pediatric Cardiology – CHD, Heart Center Duisburg, Gerrickstr. 21, Duisburg, NW, 47137, Germany

    Otto N. Krogmann MD

  5. Division of Paediatric Cardiology, Department Paediatrics, The Montreal Children’s Hospital of the McGill University Health Centre, 2300 Tupper Street, Rm-D371, Montreal, QC, H3H1P3, Canada

    Marie J. Béland BA, MDCM

Authors
  1. Rodney C. G. Franklin MD, FRCP, FRCPCH
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  2. Jeffrey P. Jacobs MD, FACS, FACC, FCCP
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  3. Otto N. Krogmann MD
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  4. Marie J. Béland BA, MDCM
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Consortia

on behalf of the International Society for Nomenclature of Paediatric and Congenital Heart Disease

Corresponding author

Correspondence to Rodney C. G. Franklin MD, FRCP, FRCPCH .

Editor information

Editors and Affiliations

  1. School of Medicine,, University of Oslo, Oslo, Norway

    Paul R. Barach

  2. Division of Cardiac Surgery, Department of Surgery, Johns Hopkins University, Division of Cardiac Surgery, Department of Surgery, Johns Hopkins All Children’s Heart Institute, All Children’s Hospital and Florida Hospital for Children, Johns Hopkins University, St. Petersburg, Tampa, Orlando, FL, USA,, Baltimore, Maryland, USA

    Jeffery P. Jacobs

  3. Wayne State University, Detroit, Michigan, USA

    Steven E. Lipshultz

  4. The Hospital for Sick Children, Toronto, Ontario, Canada

    Peter C. Laussen

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Franklin, R.C.G., Jacobs, J.P., Krogmann, O.N., Béland, M.J., on behalf of the International Society for Nomenclature of Paediatric and Congenital Heart Disease. (2015). Nomenclature for Congenital and Pediatric Cardiac Disease: Historical Perspectives and the International Pediatric and Congenital Cardiac Code. In: Barach, P., Jacobs, J., Lipshultz, S., Laussen, P. (eds) Pediatric and Congenital Cardiac Care. Springer, London. https://doi.org/10.1007/978-1-4471-6587-3_5

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  • DOI: https://doi.org/10.1007/978-1-4471-6587-3_5

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  • Print ISBN: 978-1-4471-6586-6

  • Online ISBN: 978-1-4471-6587-3

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