Skip to main content
SpringerLink
Log in

Clinical Versus Administrative Data

  • Chapter
  • First Online:
Pediatric and Congenital Cardiac Care

  • 1512 Accesses

Abstract

Clinical and administrative databases have become increasingly utilized in the fields of pediatric cardiology and pediatric cardiac surgery for research, health policy activities, quality improvement, and evaluation of hospital performance. This chapter reviews the attributes of both types of datasets and discusses their strengths and weaknesses with regard to case ascertainment, risk adjustment, and outcomes assessment.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Log in via an institution
Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 89.00
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 119.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD 169.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

References

  1. Welke KF, Karmlou T, Diggs BS. Databases for assessing the outcomes of the treatment of patients with congenital and paediatric cardiac disease – a comparison of administrative and clinical data. Cardiol Young. 2008;18:137–44.

    Article  PubMed  Google Scholar 

  2. Pasquali SK, Hall M, Li JS, Peterson ED, Jaggers J, Lodge AJ, Marino BS, Goodman DM, Shah SS. Corticosteroids and outcome in children undergoing congenital heart surgery: analysis of the pediatric health information systems database. Circulation. 2010;122:2123–30.

    Article  CAS  PubMed Central  PubMed  Google Scholar 

  3. Fudge JC, Li S, Jaggers J, O’Brien SM, Peterson ED, Jacobs JP, Welke KF, Jacobs ML, Li JS, Pasquali SK. Outcomes in patients with down syndrome undergoing congenital heart surgery: analysis of a national clinical database. Pediatrics. 2010;126:315–22.

    Article  PubMed Central  PubMed  Google Scholar 

  4. Karamlou T, Hirsch J, Welke K, Ohye RG, Bove EL, Devaney EJ, Gajarski RJ. A united network for organ sharing analysis of heart transplantation in adults with congenital heart disease: outcomes and factors associated with mortality and retransplantation. J Thorac Cardiovasc Surg. 2010;140:161–8.

    Article  PubMed  Google Scholar 

  5. Pasquali SK, Jacobs JP, He X, Hornik CP, Jaquiss RDB, Jacobs ML, O’Brien SM, Peterson ED, Li JS. The complex relationship between center volume and outcome in patients undergoing the Norwood operation. Ann Thorac Surg. 2012;93:1556–62.

    Article  PubMed Central  PubMed  Google Scholar 

  6. Welke KF, Diggs BS, Karamlou T, Ungerleider RM. The relationship between hospital surgical case volumes and mortality rates in pediatric cardiac surgery: an national sample, 1988–2005. Ann Thorac Surg. 2008;86:889–96.

    Article  PubMed  Google Scholar 

  7. Jacobs JP, Jacobs ML, Mavroudis C, Lacour-Gayet FG, Tchervenkov CI, Pasquali SK. Executive summary: the Society of Thoracic Surgeons Congenital Heart Surgery Database – 18th Harvest – (January 1, 2009–December 31, 2013). The Society of Thoracic Surgeons (STS) and Duke Clinical Research Institute (DCRI), Duke University Medical Center, Durham, Spring 2013 Harvest.

    Google Scholar 

  8. Kugler JD, Beekman RH, Rosenthal GL, Jenkins KJ, Klitzner TS, Martin GR, Neish RS, Lannon C. Development of a pediatric cardiology quality improvement collaborative: From inception to implementation. From the Joint Council on Congenital Heart Disease Quality Improvement Task Force. Congenit Heart Dis. 2009;4:318–28.

    Article  PubMed  Google Scholar 

  9. Pediatric Congenital Cardiac Surgery in New York State 2006–2009. Available at: http://www.health.ny.gov/statistics/diseases/cardiovascular/heart_disease/docs/2006-2009_pediatric_congenital_cardiac_surgery.pdf. Accessed 10 Jul 2013.

  10. U.S. News & World Report’s Annual Ranking of Best Hospitals. Available at: http://www.rti.org/besthospitals. Accessed 28 May 2013.

  11. OptumHealth Congenital Heart Disease Center of Excellence. Available at: https://www.myoptumhealthcomplexmedical.com/gateway/public/chd/providers.jsp. Accessed 28 May 2013.

  12. Martin GR, Beekman RH, Ing FF, Jenkins KJ, McKay CR, Moore JW, Ringel RE, Rome JJ, Ruiz CE, Vincent RN. The IMPACT registry: improving pediatric and adult congenital treatments. Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu. 2010;13:20–5.

    Article  PubMed  Google Scholar 

  13. The Nationwide Inpatient Sample Database. Available at: http://www.hcup-us.ahrq.gov/db/nation/nis/nisdbdocumentation.jsp. Accessed 10 Jul 2013.

  14. Likosky DS. Lessons learned from the Northern New England Cardiovascular Disease Study Group. Prog Pediatr Cardiol. 2012;33:53–6.

    Article  Google Scholar 

  15. Pasquali SK, Peterson ED, Jacobs JP, He X, Li JS, Jacobs ML, Gaynor JW, Hirsch JC, Shah SS, Mayer JE. Differential case ascertainment in clinical registry vs. administrative data and impact on outcomes assessment in pediatric heart surgery. Ann Thorac Surg. 2013;95:197–203.

    Article  PubMed Central  PubMed  Google Scholar 

  16. Strickland MJ, Riehle-Colarusso TJ, Jacobs JP, et al. The importance of nomenclature for congenital cardiac disease: implications for research and evaluation. In: Jacobs JP, editor. 2008 Cardiology in the Young Supplement: Databases and The Assessment of Complications associated with The Treatment of Patients with Congenital Cardiac Disease. Prepared by: The Multi-Societal Database Committee for Pediatric and Congenital Heart Disease. Cardiology in the Young, vol. 18, issue S2 (Suppl 2), p. 92–100, December 9, 2008.

    Google Scholar 

  17. Cronk CE, Malloy ME, Pelech AN, et al. Completeness of state administrative databases for surveillance of congenital heart disease. Birth Defects Res A Clin Mol Teratol. 2003;67:597–603.

    Article  CAS  PubMed  Google Scholar 

  18. Frohnert BK, Lussky RC, Alms MA, Mendelsohn NJ, Symonik DM, Falken MC. Validity of hospital discharge data for identifying infants with cardiac defects. J Perinatol. 2005;25(11):737–42.

    Article  PubMed  Google Scholar 

  19. Curzon CL, Milford-Beland S, Li JS, O’Brien SM, Jacobs JP, Jacobs ML, Welke KF, Lodge AJ, Peterson ED, Jaggers J. Cardiac surgery in infants with low birth weight is associated with increased mortality: analysis of the Society of Thoracic Surgeons Congenital Heart Surgery Database. J Thorac Cardiovasc Surg. 2008;135:546–51.

    Article  PubMed  Google Scholar 

  20. Lawson EH, Louie R, Zingmond DS, Brook RH, Hall BL, Han L, Rapp M, Co CY. A comparison of clinical registry versus administrative claims data for reporting of 30-day surgical complications. Ann Surg. 2012;256:973–81.

    Article  PubMed  Google Scholar 

  21. Pasquali SK, Gaies MG, Jacobs JP, Gaynor JW, Jacobs ML. Centre variation in cost and outcomes for congenital heart surgery. Cardiol Young. 2012;22:796–9.

    Article  PubMed  Google Scholar 

  22. Pasquali SK, Jacobs JP, Shook GJ, O’Brien SM, Hall M, Jacobs ML, Welke KF, Gaynor JW, Peterson ED, Shah SS, Li JS. Linking clinical registry data with administrative data using indirect identifiers: Implementation and validation in the congenital heart surgery population. Am Heart J. 2010;160:1099–104.

    Article  PubMed Central  PubMed  Google Scholar 

Download references

Author information

Authors and Affiliations

  1. Department of Pediatrics, C.S. Mott Children’s Hospital, University of Michigan Congenital Heart Center, 1540 E. Hospital Drive 11-715z, Ann Arbor, MI, 48109, USA

    Sara K. Pasquali MD, MHS

  2. Department of Cardiac Surgery, The Children’s Hospital of Philadelphia, 34th St. and Civic Ctr. Blvd., Suite 12NW19, Philadelphia, PA, 19104, USA

    J. William Gaynor MD

Authors
  1. Sara K. Pasquali MD, MHS
    View author publications

    You can also search for this author in PubMed Google Scholar

  2. J. William Gaynor MD
    View author publications

    You can also search for this author in PubMed Google Scholar

Corresponding author

Correspondence to Sara K. Pasquali MD, MHS .

Editor information

Editors and Affiliations

  1. School of Medicine,, University of Oslo, Oslo, Norway

    Paul R. Barach

  2. Division of Cardiac Surgery, Department of Surgery, Johns Hopkins University, Division of Cardiac Surgery, Department of Surgery, Johns Hopkins All Children’s Heart Institute, All Children’s Hospital and Florida Hospital for Children, Johns Hopkins University, St. Petersburg, Tampa, Orlando, FL, USA,, Baltimore, Maryland, USA

    Jeffery P. Jacobs

  3. Wayne State University, Detroit, Michigan, USA

    Steven E. Lipshultz

  4. The Hospital for Sick Children, Toronto, Ontario, Canada

    Peter C. Laussen

Rights and permissions

Reprints and permissions

Copyright information

© 2015 Springer-Verlag London

About this chapter

Cite this chapter

Pasquali, S.K., Gaynor, J.W. (2015). Clinical Versus Administrative Data. In: Barach, P., Jacobs, J., Lipshultz, S., Laussen, P. (eds) Pediatric and Congenital Cardiac Care. Springer, London. https://doi.org/10.1007/978-1-4471-6587-3_14

Download citation

  • DOI: https://doi.org/10.1007/978-1-4471-6587-3_14

  • Published:

  • Publisher Name: Springer, London

  • Print ISBN: 978-1-4471-6586-6

  • Online ISBN: 978-1-4471-6587-3

  • eBook Packages: MedicineMedicine (R0)

Publish with us

Policies and ethics

Search

Navigation