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The Academic Database: Lessons Learned from the Congenital Heart Surgeons’ Society Data Center

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Pediatric and Congenital Cardiac Care

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Abstract

During its more than 40 year history, The Congenital Heart Surgeons Society (CHSS) has evolved from an informal club to a mature organization. In 1985, Drs. John W. Kirklin and Eugene H. Blackstone founded the CHSS Data Center. Its purpose was to develop disease-specific inception cohorts of congenital heart disease (CHD) patients and extract knowledge from the combined clinical experience of centers across North America. The mission has evolved to training of research fellows, prospective testing of patients in our lifelong cohorts, organization of a tissue bank registry, and provision of quality improvement tools for members. The hub of this activity is in the CHSS Data Center, housed within the Hospital for Sick Children in Toronto. Our review will highlight lessons learned during the course of this evolution.

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Author information

Authors and Affiliations

  1. Division of Cardiovascular Surgery, The Hospital for Sick Children, University of Toronto, 555 University Avenue, Toronto, ON, M5G 1X8, Canada

    Christopher A. Caldarone MD

  2. Department of Surgery, Indiana University School of Medicine, 545 Barnhill Dr., Emerson Hall, Room 202, Indianapolis, IN, 46231, USA

    Jeffrey A. Poynter MD, MSc

  3. Division of Cardiovascular Surgery, Department of Cardiac Surgery, The Hospital for Sick Children, University of Toronto, Congenital Heart Surgeons’ Society Data Center, 555 University Avenue, #4437, Toronto, ON, M5G 1X8, Canada

    William G. Williams MD, FRCSC

Authors
  1. Christopher A. Caldarone MD
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  2. Jeffrey A. Poynter MD, MSc
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  3. William G. Williams MD, FRCSC
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Corresponding author

Correspondence to Christopher A. Caldarone MD .

Editor information

Editors and Affiliations

  1. School of Medicine,, University of Oslo, Oslo, Norway

    Paul R. Barach

  2. Division of Cardiac Surgery, Department of Surgery, Johns Hopkins University, Division of Cardiac Surgery, Department of Surgery, Johns Hopkins All Children’s Heart Institute, All Children’s Hospital and Florida Hospital for Children, Johns Hopkins University, St. Petersburg, Tampa, Orlando, FL, USA,, Baltimore, Maryland, USA

    Jeffery P. Jacobs

  3. Wayne State University, Detroit, Michigan, USA

    Steven E. Lipshultz

  4. The Hospital for Sick Children, Toronto, Ontario, Canada

    Peter C. Laussen

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© 2015 Springer-Verlag London

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Caldarone, C.A., Poynter, J.A., Williams, W.G. (2015). The Academic Database: Lessons Learned from the Congenital Heart Surgeons’ Society Data Center. In: Barach, P., Jacobs, J., Lipshultz, S., Laussen, P. (eds) Pediatric and Congenital Cardiac Care. Springer, London. https://doi.org/10.1007/978-1-4471-6587-3_13

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  • DOI: https://doi.org/10.1007/978-1-4471-6587-3_13

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  • Publisher Name: Springer, London

  • Print ISBN: 978-1-4471-6586-6

  • Online ISBN: 978-1-4471-6587-3

  • eBook Packages: MedicineMedicine (R0)

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