Abstract
Funding agencies are increasingly encouraging researchers to make their data available for secondary uses. Developing a data sharing plan requires investigators to balance user access with the need to protect confidentiality and prevent harm to participants. An effective plan selects an appropriate model for data sharing; develops procedures and tools for protecting and informing human subjects and documenting and disseminating data; and establishes timelines and realistic cost estimates. Many available resources provide information about data sharing issues and tools.
The views expressed in this chapter are those of the authors and do not represent the policy of the National Institutes of Health.
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Notes
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If you are collecting proprietary data, you should also identify any restrictions associated with sharing them. It may be possible to share other data from a project while protecting proprietary data.
References
National Institutes of Health. (2003). NIH data sharing policy. NIH Office of Extramural Research. http://grants.nih.gov/grants/policy/data_sharing/. Accessed 2/14/2009.
National Research Council. (1985). Sharing Research Data. Stephen E. Fienberg, Margaret E. Martin, and Miron L. Straf, Eds. Committee on National Statistics. Washington, DC: National Academy Press.
National Research Council and the Social Science Research Council. (1993). Private Lives and Public Policies: Confidentiality and Accessibility of Government Statistics. Panel on Confidentiality and Data Access. George T. Duncan, Thomas B. Jabine, and Virginia A. de Wolf, Eds. Committee on National Statistics. Washington, DC: National Academy Press.
National Research Council. (2000). Improving Access to and Confidentiality of Research Data: Report of a Workshop. Christopher Mackie and Norman Bradburn, Eds. Committee on National Statistics. Washington, DC: National Academy Press. http://books.nap.edu/catalog/9958.html.
National Research Council. (2005). Expanding Access to Research Data: Reconciling Risks and Opportunities. Panel on Data Access for Research Purposes, Committee on National Statistics, Division of Behavioral and Social Sciences and Education. Washington, DC: The National Academies Press.
National Science Foundation. (2001). Grant General Conditions. Article 36. Sharing of Findings, Data, and Other Research Products. http://www.nsf.gov/pubs/2001/gc101/gc101rev1.pdf. Accessed 2/14/2009.
Additional Resources Not Cited in Text
Bachrach, C.A. and R.B. King. (2004). “Data Sharing and Duplication: Is There a Problem?” Archives of Pediatrics & Adolescent Medicine 158: 931.
Doorn, P. and H. Tjalsma. (2007). “Introduction: Archiving Research Data” Archives des Sciences 7: 1–20.
Freese, Jeremy. (2007). “Replication Standards for Quantitative Social Science: Why Not Sociology?” Sociological Methods & Research 36(2): 153–172.
Green, A.G. and M.P. Gutmann. (2007). “Building Partnerships Among Social Science Researchers, Institution-Based Repositories and Domain Specific Data Archives” International Digital Library Perspectives 23(1): 35–53.
Gutmann, M.P., K. Schurer, D. Donakowski, and H. Beedham. (2004). “The Selection, Appraisal, and Retention of Digital Social Science Data” Data Science Journal 3: 209–221.
Gutmann, M.P., K. Witkowski, C. Colyer, J.M. O’Rourke, and J. McNally. (2005). “Providing Spatial Data for Secondary Analysis: Issues and Current Practices Relating to Confidentiality” Population Research and Policy Review 27: 639–665.
Henderson, Tristan. (2008). “Sharing is Caring – So Where are your Data?” ACM SigComm Computer Communication Review 38(1):43–44.
King, Gary. (2007). “An Introduction to the Dataverse Network as Infrastructure for Data Sharing” Sociological Methods & Research 36(2): 173–199.
Marshall, Eliot. (2000). “Epidemiologists Wary of Opening up Their Data” Science, New Series 290(5489): 28–29.
Melichar, L., J. Evans, and C.A. Bachrach. (2002) “Data Access and Archiving: Options for the Demographic and Behavioral Sciences Branch” Workshop Summary.
VanWey, L.K., R. Rindfuss, M.P. Gutmann, B. Entwisle, and D.L. Balk. (2005). “Confidentiality and Spatially Explicit Data: Concerns and Challenges” Proceedings of the National Academy of Sciences of the United States of America 102(43): 15337–15342.
Vardigan, M., H. Pascal, and W. Thomas. (2008). “Data Documentation Initiative: Toward a Standard for the Social Sciences” The International Journal of Digital Curation 3(1).
Zimmerman, A. (2003). “Data Sharing and Secondary Use of Scientific Data: Experiences of Ecologists” Dissertation – Information and Library Studies, University of Michigan.
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Bachrach, C., Spittel, M. (2010). Developing a Plan for Data Sharing. In: Pequegnat, W., Stover, E., Boyce, C. (eds) How to Write a Successful Research Grant Application. Springer, Boston, MA. https://doi.org/10.1007/978-1-4419-1454-5_28
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