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Psychological Aspects of Long-Term Survivorship

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Survivors of Childhood and Adolescent Cancer

Part of the book series: Pediatric Oncology ((PEDIATRICO))

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References

  1. Alderfer M, Labay L, Kazak A (2003) Brief report: does posttraumatic stress apply to siblings of childhood cancer survivors? J Pediatr Psychol 28:281–286

    Article  PubMed  Google Scholar 

  2. American Psychiatric Association (1994) Diagnostic and statistical manual of the American Psychiatric Association, 4th edn. American Psychiatric Press, Washington DC

    Google Scholar 

  3. Anholt UV, Fritz GK, Keener M (1993) Self-concept in survivors of childhood and adolescent cancer. J Psychosoc Oncol 11:1–16

    Google Scholar 

  4. Brown R, Madan-Swain A, Lambert R (2003) Posttraumatic stress symptoms in adolescent survivors of childhood cancer and their mothers. J Traum Stress 16:309–318

    Article  Google Scholar 

  5. Butler R, Rizzi L, Handwerger B (1996) Brief report: the assessment of posttraumatic stress disorder in pediatric cancer patients and survivors. J Pediatr Psychol 21:499–504

    PubMed  Google Scholar 

  6. Crom DB, Chathaway DK, Tolley EA, Mulhern RA, Hudson MM (1999) Health status and health-related quality of life in long-term adult survivors of pediatric solid tumors. Int J Cancer 12:25–31

    Article  Google Scholar 

  7. Eiser C, Hill JJ, Blacklay A (2000) Surviving cancer: what does it mean for you? An evaluation of a clinic-based intervention for survivors of childhood cancer. Psycho Onco 9:214–220

    Article  Google Scholar 

  8. Eiser C, Vance YH, Glaser A, Galvin H (2003) The value of the PedsQTLM in assessing quality of life in survivors of childhood cancer. Child Care Health Dev 29:95–102

    Article  PubMed  Google Scholar 

  9. Elkin TD, Phipps S, Mulhern RK, Fairclough D (1997) Psychological functioning of adolescent and young adult survivors of pediatric malignancy. Med Pediatr Oncol 29: 582–588

    Article  PubMed  Google Scholar 

  10. Emmons KM, Butterfied RM, Puleo E, Park ER, Mertens A, Gritz ER, Lahti M, Li FP (2003) Smoking among participants in the Childhood Cancer Survivors cohort: the Partnership for Health Study. J Clin Oncol 21:189–196

    Article  PubMed  Google Scholar 

  11. Erickson S, Steiner H (2001) Trauma and personality correlates in long term pediatric cancer survivors. Child Psychiatr Hum Dev 31:195–213

    Article  Google Scholar 

  12. Fuemmeler BF, Elkin TD, Mullins LL (2001) Survivors of childhood brain tumors: behavioral, emotional, and social adjustment. Clin Psychol Rev 22:547–585

    Article  Google Scholar 

  13. Gartstein MA, Noll RB, Vannatta K (2000) Childhood aggression and chronic illness: Possible protective mechanisms. J Appl Dev Psychol 21:315–333

    Article  Google Scholar 

  14. Glover DA, Byrne J, Mills JL, Robison LL, Nicholson HS, Meadows A, Zeltzer LK (2003) Impact of CNS treatment on mood in adult survivors of childhood leukemia: a report from the Children's Cancer Group. J Clin Oncol 21:4395–4401

    Article  PubMed  Google Scholar 

  15. Haupt R, Fears TR, Robison LL, Mills JL, Nicholson S, Zeltzer LK, Meadows AT, Byrne J (1994) Educational attainment in long-term survivors of childhood Acute Lymphoblastic Leukemia. JAMA 272:1427–1432

    Article  PubMed  Google Scholar 

  16. Hobbie W, Ogle S (2001) Transitional care for young adult survivors of childhood cancer. Semin Oncol Nursing 17:268–273

    Article  Google Scholar 

  17. Hobbie W, Stuber M, Meeske K, Wissler K, Rourke M, Ruccione K, Hinkle A, Kazak A (2000) Symptoms of posttraumatic stress in young adult survivors of childhood cancer. J Clin Oncol 18:4060–4066

    PubMed  Google Scholar 

  18. Holmquist LA, Scott J (2002) Treatment, age, and time-related predictors of behavioral outcome in pediatric brain tumor survivors. J Clin Psychol Med Sett 9:315–321

    Article  Google Scholar 

  19. Hudson MM, Tyc VL, Srivastava DK, Gattuso J, Quargnenti A, Crom DB, Hinds P (2002) Multi-component behavioral intervention to promote health protective behaviors in childhood cancer survivors: the protect study. Med Pediatr Oncol 39:2–11

    Article  PubMed  Google Scholar 

  20. Hudson MM, Mertens AC, Yasui Y, Hobbie W, Chen H, Gurney JG, Yeazel M, Recklitis CJ, Marina N, Robison LR, Oeffinger KC (2003) Health status of adult long-term survivors of childhood cancer: a report from the Childhood Cancer Survivor Study. JAMA 290:1583–1592

    PubMed  Google Scholar 

  21. Kadan-Lottick NS, Robison L, Gurney JG, Neglia JP, Yasui Y, Hayashi R, Hudson M, Greenberg M, Mertens A (2002) Childhood cancer survivors’ knowledge about their past diagnosis and treatment: Childhood Cancer Survivor Study. JAMA 287:1832–1839

    Article  PubMed  Google Scholar 

  22. Kazak A Evidence-based interventions for survivors of childhood cancer. J Pediatr Psychol (in press)

    Google Scholar 

  23. Kazak A, Barakat L, Meeske K, Christakis D, Meadows A, Casey R, Penati B, Stuber M (1997) Posttraumatic stress, family functioning, and social support in survivors of childhood leukemia and their mothers and fathers. J Consult Clin Psychol 65:120–129

    Article  PubMed  Google Scholar 

  24. Kazak A, Stuber M, Barakat L, Meeske K, Guthrie D, Meadows A (1998) Predicting posttraumatic stress symptoms in mothers and fathers of survivors of childhood cancer. J Am Acad Child Adoles Psychiatry 37:823–831

    Article  Google Scholar 

  25. Kazak A, Simms S, Barakat L, Hobbie W, Foley B, Golomb V, Best M (1999) Surviving Cancer Competently Intervention Program (SCCIP): a cognitive-behavioral and family therapy intervention for adolescent survivors of childhood cancer and their families. Family Proc 38:175–191

    Google Scholar 

  26. Kazak A, Barakat L, Alderfer M, Rourke M, Meeske K, Gallagher P Cnaan A, Stuber M (2001) Posttraumatic stress in survivors of childhood cancer and their mothers: development and validation of the Impact of Traumatic Stressors Interview Schedule (ITSS). J Clin Psychol Med Sett 8:307–323

    Article  Google Scholar 

  27. Kazak A, Alderfer M, Rourke M, Simms S, Streisand R, Grossman J Posttraumatic stress symptoms (PTSS) and Posttraumatic stress disorder (PTSD) in families of adolescent cancer survivors. J Pediatr Psychol (in press)

    Google Scholar 

  28. Kazak A, Alderfer M, Streisand R, Simms S, Rourke M, Barakat L, Gallagher P. A Treatment of posttraumatic stress symptoms in adolescent survivors of childhood cancer and their families: a randomized clinical trial (submitted)

    Google Scholar 

  29. Kazak AE, Kassam-Adams N, Alderfer M, Rourke MT, Schneider S, Zelikovsky N A model for understanding pediatric medical traumatic stress (in preparation)

    Google Scholar 

  30. Keene N, Hobbie W, Ruccione K (2000) Childhood cancer survivors: a practical guide to your future. O'Reilly, Cambridge

    Google Scholar 

  31. Kupst MJ, Natta M, Richardson C, Schulman J, Lavigne J, Das L (1995) Family coping with pediatric leukemia: Ten years after treatment. J Pediatr Psychol 20:601–617

    PubMed  Google Scholar 

  32. Langeveld NE, Stam H, Grootenhuis MA, Last BF (2002) Quality of life in young adult survivors of childhood cancer. Supp Care Cancer 10:579–600

    Article  Google Scholar 

  33. Langeveld NE, Ubbink MC, Last BF, Grootenhuis MA, Voute PA, DeHaan RJ (2003) Educational achievement, employment and living situation in long-term young adult survivors of childhood cancer in the Netherlands. Psycho Oncol 12:213–225

    Google Scholar 

  34. Mackie E, Hill J, Kondryn H, McNally R (2000) Adult psychosocial outcomes in long-term survivors of acute lymphoblastic leukaemia and Wilms’ tumour: a controlled study. Lancet 355:1310–1314

    Article  PubMed  Google Scholar 

  35. Maggiolini A, Grassi R, Adamoli L, Corbetta A, Charmet GP, Provantini K, Fraschini D, Jankovic M, Lia R, Spinetta J, Masera G (2000) Self-image of adolescent survivors of long-term childhood leukemia. J Pediatr Hematol Oncol 22:417–421

    Article  PubMed  Google Scholar 

  36. Manne S, DuHamel K, Gallelli K, Sorgen K, Redd W (1998) Posttraumatic stress disorder among mothers of pediatric cancer survivors: diagnosis, comorbidity, and utility of the PTSD Checklists as a screening instrument. J Pediatr Psychol 23:357–366

    PubMed  Google Scholar 

  37. Manne S, DuHamel K, Nereo N, Ostroff J, Parsons S, Martini R, Williams S, Mee L, Sexson S, Wu L, Difede J, Redd W (2002) Predictors of PTSD in mothers of children undergoing bone marrow transplantation: the role of cognitive and social processes. J Pediatr Psychol 27:607–617

    Article  PubMed  Google Scholar 

  38. Mitby PA, Robison LL, Whitton JA, Zevon MA, Gibbs IC, Tersak JM, Meadows AT, Stovall M, Zeltzer LK, Mertens AC (2003) Utilization of special education services and educational attainment among long-term survivors of childhood cancer. Cancer 97:1115–1126

    Article  PubMed  Google Scholar 

  39. Mulhern R, Wasserman AL, Friedman AG, Fairclough D (1989) Social, competence and behavioral adjustment of children who are long-term survivors of cancer. Pediatrics 83:18–25

    PubMed  Google Scholar 

  40. Nagarajan R, Neglia JP, Clohisy DR, Yasui Y, Greenberg M, Hudson M, Zevon MA, Tersak JM, Ablin A, Robison LL (2003) Education, employment, insurance, and marital status among 694 survivors of pediatric lower extremity bone tumors: a report of the Childhood Cancer Survivor Study. Cancer 97:2554–2564

    Article  PubMed  Google Scholar 

  41. Newby WL, Brown RT, Pawletko TM, Gold SH, Whitt JK (2000) Social skills and psychological adjustment of child and adolescent cancer survivors. Psycho Oncol 9:113–126

    Article  Google Scholar 

  42. Noll R, Bukowski W, Davies W, Koontz K, Kularkrni R (1993) Adjustment in the peer system of children with cancer: a two-year follow-up study. J Pediatr Psychol 18:351–364

    PubMed  Google Scholar 

  43. Noll RB, MacLean WE, Whitt JK, Kaleita TA, Stehbens JA, Waskerwitz MJ, Ruymann FB, Hammond GD (1997) Behavioral adjustment and social functioning of long-term survivors of childhood leukemia: parent and teacher reports. J Pediatr Psychol 22:827–841

    PubMed  Google Scholar 

  44. Oeffinger KC (2003) Longitudinal risk-based health care for adult survivors of childhood cancer. Curr Prob Cancer 27:143–167

    Article  Google Scholar 

  45. Patenaude AF, Last B (2001) Editorial. Cancer and children: Where are we coming from? Where are we going? Psycho Oncol 10:281–283

    Article  Google Scholar 

  46. Pendley JS, Dahlquist LM, Dreyer Z (1997) Body image and psychosocial adjustment in adolescent cancer survivors. J Pediatr Psychol 22:29–43

    PubMed  Google Scholar 

  47. Radcliffe J, Bennett D, Kazak AE, Foley B, Phillips PC (1996) Adjustment in childhood brain tumor survival: child, mother, and teacher report. J Pediatr Psychol 21:529–539

    PubMed  Google Scholar 

  48. Rauck AM, Green DM, Yasui Y, Mertens A, Robison LL (1999) Marriage in the survivors of childhood cancer: a preliminary description from the Childhood Cancer Survivor Study. Med Pediatr Oncol 33:60–63

    Article  PubMed  Google Scholar 

  49. Recklitis C, O'Leary T, Diller L (2003) Utility of routine psychological screening in the childhood cancer survivor clinic. J Clin Oncol 21:787–792

    Article  PubMed  Google Scholar 

  50. Reiter-Purtill J, Noll R (2003) Peer relationships of children with chronic illness. In: Roberts M (ed) Handbook of pediatric psychology, 3rd edn. Guilford, New York

    Google Scholar 

  51. Richardson RC, Nelson MB, Meeske K (1999) Young adult survivors of childhood cancer: attending to emerging medical and psychosocial needs. J Pediatr Oncol Nurs 16: 136–144

    Article  PubMed  Google Scholar 

  52. Ross L, Johansen C, Dalton S O, Mellemkjaer L, Thornassen LH, Mortensen PB, Olsen JH (2003) Psychiatric hospitalizations among survivors of cancer in childhood or adolescence. N Engl J Med 349:650–657

    Article  PubMed  Google Scholar 

  53. Rourke M, Stuber M, Hobbie W, Kazak A (1999) Posttraumatic stress disorder: Understanding the psychosocial impact of surviving childhood cancer into young adulthood. J Pediatr Oncol Nurs 16:126–135

    Article  PubMed  Google Scholar 

  54. Rourke M, Hobbie W, Kazak A (2002) Posttraumatic stress in young adult survivors of childhood cancer. 7th international conference on long-term complications of treatment of children and adolescents for cancer, Niagara on the Lake, Ontario, Canada

    Google Scholar 

  55. Sawyer M, Antoniou G, Toogood I, Rice M, Baghurst P (2000) Childhood cancer: a 4-year prospective study of the psychological adjustment of children and parents. J Pediatr Hematol Oncol 22:214–220

    Article  PubMed  Google Scholar 

  56. Stuber M, Kazak A, Meeske K, Barakat L (1998) Is posttraumatic stress a viable model for understanding responses to childhood cancer? Psychiatr Clin North Am 7:169–182

    Google Scholar 

  57. Van Dongen-Melman JE (2000) Developing psychosocial aftercare for children surviving cancer and their families. Acta Oncol 39:23–31

    Article  PubMed  Google Scholar 

  58. Van Dongen-Melman JE, Pruyn JFA, DeGroot A, Koot HM, Hahlen K, Verhulst FC (1995) Late psychosocial consequences for parents of children who survived cancer. J Pediatr Psychol 20:567–586

    PubMed  Google Scholar 

  59. Vannatta K, Gartstein MA, Short A, Noll RB (1998) A controlled study of peer relations of children surviving brain tumors: teacher, peer, and self ratings. J Pediatr Psychol 23:279–287

    PubMed  Google Scholar 

  60. Vannatta K, Zeller M, Noll RB, Koontz K (1998) Social functioning of children surviving bone marrow transplantation. J Pediatr Psychol 23:169–178

    PubMed  Google Scholar 

  61. Verrill JR, Schafer J, Vannatta K, Noll RB (2000) Aggression, antisocial behavior, and substance abuse in survivors of pediatric cancer: possible protective effects of cancer and its treatment. J Pediatr Psychol 25:493–502

    PubMed  Google Scholar 

  62. Zebrack BJ, Chesler M (2001) Health-related worries, selfimage, and life outlooks of long-term survivors of childhood cancer. Health Soc Work 26:245–256

    PubMed  Google Scholar 

  63. Zebrack BJ, Zeltzer LK, Whitton J Mertens AC, Odom L, Berkow R, Robison LL (2002) Psychological outcomes in long-term survivors of childhood leukemia, Hodgkin's disease, and non-Hodgkin's lymphoma: a report from the Childhood Cancer Survivor Study. Pediatrics 110:42–52

    Article  PubMed  Google Scholar 

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Authors
  1. Mary T. Rourke
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  2. Anne E. Kazak
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Editor information

Editors and Affiliations

  1. The Sidney Kimmel Cancer Center at Johns Hopkins, Johns Hopkins Hospital, 600 North Wolfe Street, Baltimore, MD, 21287-5001, USA

    Cindy L. Schwartz

  2. Division of Oncology, Childrens Hospital of Philadelphia, 34th St. & Civic Ctr. Blvd., Philadelphia, PA, 19104, USA

    Wendy L. Hobbie

  3. Radiation Oncology and Pediatrics, University of Rochester Medical Center, 601 Elmwood Avenue, Box 647, Rochester, NY, 14642, USA

    Louis S. Constine

  4. Center for Cancer and Blood Diseases, Childrens Hospital Los Angeles, 4650 Sunset Boulevard, Los Angeles, CA, 90027, USA

    Kathleen S. Ruccione

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© 2005 Springer-Verlag Berlin Heidelberg

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Rourke, M.T., Kazak, A.E. (2005). Psychological Aspects of Long-Term Survivorship. In: Schwartz, C.L., Hobbie, W.L., Constine, L.S., Ruccione, K.S. (eds) Survivors of Childhood and Adolescent Cancer. Pediatric Oncology. Springer, Berlin, Heidelberg. https://doi.org/10.1007/3-540-26498-1_19

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  • DOI: https://doi.org/10.1007/3-540-26498-1_19

  • Publisher Name: Springer, Berlin, Heidelberg

  • Print ISBN: 978-3-540-40840-6

  • Online ISBN: 978-3-540-26498-9

  • eBook Packages: MedicineMedicine (R0)

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