2009

The Ethics of Research Biobanking

ISBN: 978-0-387-93871-4 (Print) 978-0-387-93872-1 (Online)

Table of contents (21 chapters)

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  1. Front Matter

    Pages i-xviii

  2. Research Biobanking: The Traditional Approach

    1. Front Matter

      Pages 1-1

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      Book Chapter

      Pages 3-23

      Consent to Biobank Research: One Size Fits All?

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      Pages 25-32

      What No One Knows Cannot Hurt You: The Limits of Informed Consent in the Emerging World of Biobanking

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      Pages 33-47

      Users and Uses of the Biopolitics of Consent: A Study of DNA Banks

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      Pages 49-56

      Information Rights on the Edge of Ignorance

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      Pages 57-67

      The Dubious Uniqueness of Genetic Information

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      Pages 69-84

      Duties and Rights of Biobank Participants: Principled Autonomy, Consent, Voluntariness and Privacy

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      Pages 85-99

      Biobanking and Disclosure of Research Results: Addressing the Tension Between Professional Boundaries and Moral Intuition

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      Pages 101-114

      Biobanks and Our Common Good

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      Pages 115-130

      Trust, Distrust and Co-production: The Relationship Between Research Biobanks and Donors

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      Pages 131-141

      Scientific Citizenship, Benefit, and Protection in Population-Based Research

  3. Research Biobanking: Towards a New Conceptual Approach

    1. Front Matter

      Pages 143-143

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      Book Chapter

      Pages 145-158

      Mapping the Language of Research Biobanking: An Analogical Approach

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      Pages 159-172

      The Use of Analogical Reasoning in Umbilical Cord Blood Biobanking

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      Pages 173-193

      The Alexandria Plan: Creating Libraries for Human Tissue Research and Therapeutic Use

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      Pages 195-218

      The Art of Biocollections

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      Pages 219-236

      The Health Dugnad: Biobank Participation as the Solidary Pursuit of the Common Good

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      Book Chapter

      Pages 237-253

      Embodied Gifting: Reflections on the Role of Information in Biobank Recruitment

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      Book Chapter

      Pages 255-262

      Conscription to Biobank Research?

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      Book Chapter

      Pages 263-276

      Ownership Rights in Research Biobanks: Do We Need a New Kind of ‘Biological Property’?

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      Book Chapter

      Pages 277-313

      Legal Challenges and Strategies in the Regulation of Research Biobanking

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      Book Chapter

      Pages 315-329

      Annexation of Life: The Biopolitics of Industrial Biology

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