Patients with rare diseases, and the scientists who study those diseases, were long inhibited by geographic sparsity. But the social-media age has made it much easier for them to band together to leverage their experience and push forward change.
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Ainsworth, C. Rare diseases band together toward change in research. Nat Med 26, 1496–1499 (2020). https://doi.org/10.1038/s41591-020-1098-7
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DOI: https://doi.org/10.1038/s41591-020-1098-7
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