Data-driven approaches hold considerable promise for medical breakthroughs in the precision and cost-effectiveness of the prevention, diagnosis and treatment of neurodegenerative diseases. The scientists and health care professionals who will be responsible for providing the evidence to support these approaches must also consider the ethical challenges involved in the care of people with intellectual impairments.
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Alzheimer’s Disease Neuroimaging Initiative (ADNI): https://adni.loni.usc.edu
European Health Data Space: https://health.ec.europa.eu/ehealth-digital-health-and-care/european-health-data-space
UK Biobank: https://www.ukbiobank.ac.uk/enable-your-research
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Waldemar, G. Data-driven care for patients with neurodegenerative disorders. Nat Rev Neurol 19, 447–448 (2023). https://doi.org/10.1038/s41582-023-00828-9
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DOI: https://doi.org/10.1038/s41582-023-00828-9
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