Skip to main content
SpringerLink
Log in

The ethics of participant-led biomedical research

  • Correspondence
  • Published:

From Nature Biotechnology

View current issue Submit your manuscript

This is a preview of subscription content, log in via an institution to check access.

Access this article

Log in via an institution

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Institutional subscriptions

References

  1. Wicks, P. et al. Nat. Biotechnol. 29, 411–414 (2011).

    Article  CAS  Google Scholar 

  2. Brownstein, C.A. et al. Nat. Biotechnol. 27, 888–890 (2009).

    Article  CAS  Google Scholar 

  3. Kaye, J. et al. Nat. Rev. Genet. 13, 371–376 (2012).

    Article  CAS  Google Scholar 

  4. Goldacre, B. Bad Pharma: How Drug Companies Mislead Doctors and Harm Patients (Fourth Estate, New York, 2013).

    Google Scholar 

  5. Pereira, T.V. et al. J. Am. Med. Assoc. 308, 1676–1684 (2012).

    Article  CAS  Google Scholar 

  6. Janssens, A.C.J.W. & Kraft, P. PLoS Med. 9, e1001328 (2012).

    Article  Google Scholar 

  7. Richman, J. & Apte, Z. Crowdfunding and IRBs: the case of uBiome. Sci. Am. (22 July 2013). http://blogs.scientificamerican.com/guest-blog/2013/07/22/crowdfunding-and-irbs-the-case-of-ubiome/

  8. Stone, J. uBiome: ethical lapses or not? Sci. Am. (25 July 2013). http://blogs.scientificamerican.com/molecules-to-medicine/2013/07/25/ubiome-ethical-lapse-or-not/

  9. Vayena, E. & Tasioulas, J. PLoS Med. 10, e1001402 (2013).

    Article  Google Scholar 

  10. Swan, M. J. Pers. Med. 2, 93–118 (2012).

    Article  Google Scholar 

Download references

Author information

Authors and Affiliations

  1. University of Zurich, Zurich, Switzerland

    Effy Vayena

  2. University College London, London, UK

    John Tasioulas

Authors
  1. Effy Vayena
    View author publications

    You can also search for this author in PubMed Google Scholar

  2. John Tasioulas
    View author publications

    You can also search for this author in PubMed Google Scholar

Corresponding author

Correspondence to Effy Vayena.

Ethics declarations

Competing interests

The authors declare no competing financial interests.

Rights and permissions

Reprints and permissions

About this article

Cite this article

Vayena, E., Tasioulas, J. The ethics of participant-led biomedical research. Nat Biotechnol 31, 786–787 (2013). https://doi.org/10.1038/nbt.2692

Download citation

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1038/nbt.2692

  • Springer Nature America, Inc.

This article is cited by

Search

Navigation