Abstract
Following the collapse of the Soviet Union, former Soviet countries inherited a widely developed network of residential social care institutions intended for persons who have intellectual disabilities. Monitoring inspections carried out by disability and human rights organizations in these regions reveal fundamental human rights violations at the institutions concerned. The aim of this article is to analyze one of the most severe and under-reported human rights violations experienced by women who have intellectual disabilities, while residing in social care institutions: the violation of their sexual and reproductive rights. Authors of this article employ Foucault’s viewpoint with regard to disciplinary society and understanding of control of sexuality as an expression of power. The institutional culture that prevails in residential care institutions and allows room for hiding serious human rights violations is also discussed in this article. Restrictions imposed on sexuality in care institutions are not merely limited to a number of individual cases, but they are connected with broader systematic issues. Above all others, the system of residential care institutions itself allows for violations of most of its residents’ rights to occur, including violations of sexual and reproductive rights. None of these rights can be safeguarded and promoted sporadically or partially; therefore, systematic changes are needed, as well as shifts in public mentality and amendments in mental health policy.
Similar content being viewed by others
Notes
Some parts of the analysis apply to both males and females WHID and in the text will be referred to as ‘persons WHID’.
The analysis mostly covers the situation in Lithuania, however, some examples from fifteen successor states of the SU and other former communist countries of Central and Eastern Europe are brought in where relevant.
"There is no sex in the Soviet Union on television" was the whole phrase, however its second part is usually skipped when quoting.
References
Bernstein, F. L. (2007). The dictatorship of sex: Lifestyle advice for the soviet masses. DeKalb: Northern Illinois University Press.
Bogner, A., & Menz, W. (2009). The theory generating expert interview: Epistemological interest, forms of knowledge, interaction. In A. Bogner, B. Littig, & W. Menz (Eds.), Interviewing experts. Palgrave: Macmillan.
Braun, K. (2007). Biopolitics and Temporality in Arendt and Foucault. Time and Society, 16(1), 5–23. doi:10.1177/0961463x07074099.
Cole, S. S. (1988). Women, sexuality, and disabilities. Women and Therapy, 7(2–3), 277–294. doi:10.1300/J015v07n02_22.
Davies, S. P. (1923). Social control of the feebleminded: A study of social programs and attitudes in relation to the problems of mental deficiency. New York: National Committee for Mental Hygiene, Inc. Retrieved April 13, 2013, from http://babel.hathitrust.org/cgi/pt?id=mdp.39015063049681;view=1up;seq=11.
Dotson, L. A., Stinson, J., & Christian, L. (2003). People tell me i can’t have sex: Women with disabilities share their personal perspectives on health care, sexuality, and reproductive rights. Women and Therapy, 26(3–4), 195–209. doi:10.1300/J015v26n03_02.
Essig, L. (1999). Queer in Russia: A story of sex, self, and the other. Durham NC: Duke University Press.
Foucault, M. (1977). Discipline and punish: The birth of the prison. New York: Pantheon Books.
Foucault, Michel. (1978). The history of sexuality. New York: Pantheon Books.
Foucault, M. (2003). Society must be defended: Lectures at the College de France 1975–1976. New York: Picador.
Freyhoff, G., Parker, C., Coue, M., & Creig, N. (2003). Included in Society. In European research initiative on community—based residential alternatives for disabled people. Community Living. Brussels: European Commission.
Germanavicius, A., Puras, D., Sakaliene, D., Rimsaite, E., Malisauskaite, L., & Povilaitis, R. (2005). Zmogaus teisiu stebesena uzdarose psichikos sveikatos prieziuros ir globos institucijose, [Human rights monitoring in closed mental health care institutions]. Vilnius: Global Initiative on Psychiatry.
Goffman, E. (1968). Asylums. Essays on the social situation of mental patients and other inmates. Harmondsworth: Penguin.
Gutting, G. (2011). Michel Foucault. In E. N Zalta (Ed.), The Stanford encyclopedia of philosophy (Fall 2011 Edition). Retrieved May 16, 2013, from <http://plato.stanford.edu/archives/fall2011/entries/foucault/>Foucault.
Healey, D. (2004). Bolshevik medicine and Russia’s sexual revolution in past and present of radical sexual politics: Working papers (pp. 69–79). Amsterdam: George Mosse Foundation.
Iarskaia-Smirnova, E. (2008). Gendernaja indentichnostj invalidov. [Gender identity of people with disabilities]. In: Slovar gendernyh terminov. [Dictionary of gender terminology] (in Russian). Retrieved April 1, 2013, from http://www.owl.ru/gender/309.htm.
Kallianes, V., & Rubenfeld, Ph. (1997). Disabled women and reproductive rights. Disability and Society, 12(2), 203–222. doi:10.1080/09687599727335.
Kell, P., Kell, M., & Price, N. (2008). Two games; one movement: The Paralympic movement versus the Olympic movement. In K. Gilbert & O. J. Schantz (Eds.), The paralympic games: Empowerment or side show? (pp. 155–166). Maidenhead: Meyer & Meyer.
Kon, I. S. (1997). Russia. In R. T Francoeur (Eds.), The international encyclopedia of sexuality. New York: The Continuum Publishing Company. Retrieved May 1, 2013, from http://www2.hu-berlin.de/sexology/IES/russia.html.
Laughlin, H. H. (1922). Eugenical sterilization in the United States. Psychopathic laboratory of the municipal court of Chicago. Retrieved from https://dnapatents.georgetown.edu/resources/EugenicalSterilizationInTheUS.pdf.
Leimane-Veldmejere, I., Veits, U., Puce, I., Gravere, L., & Kamenska, A. (2006). Monitoring report on closed institutions in Latvia. Riga: Latvian Centre for Human Rights.
Mackelprang, R. W., & Valentine, D. P. (1993). Sexuality and disabilities : A guide for human service practitioners. New York: Haworth Press.
Malacrida, C. (2006). Contested memories: Efforts of the powerful to silence former inmates’ histories of life in an institution for ‘mental defectives’. Disability and Society, 21(5), 397–410. doi:10.1080/09687590600785720.
McLellan, J. (2011). Love in the time of communism: Intimacy and sexuality in the GDR. Cambridge: Cambridge University Press.
Méndez, J. E. (2013). Report of the Special Rapporteur on torture and other cruel, inhuman or degrading treatment or punishment. Geneva: United Nations. Retrieved April 11, 2013, from http://www.ohchr.org/Documents/HRBodies/HRCouncil/RegularSession/Session22/A.HRC.22.53_English.pdf.
Mental Disability Advocacy Center and the Association for Social Affirmation of People with Mental Disabilities. (2011). Out of sight. Human rights in Psychiatric Hospitals and Social Care Institutions in Croatia. Budapest: MDAC. Retrieved from http://www.mdac.info/sites/mdac.info/files/croatiareport2011_en.pdf.
Meuser, M., & Nagel, U. (2009). The expert interview and changes in knowledge production. In A. Bogner, B. Littig, & W. Menz (Eds.), Interviewing experts (pp. 17–43). Palgrave: Macmillan.
Public Defenders Office of Georgia National Preventive Mechanism. (2010). Human rights situation of persons with disabilities at the state residential institutions. Tbilisi: Public Defenders Office of Georgia.
Puras, D., & Sumskiene, E. (2009). Relations of minor children with parents who are residents in mental health care institutions. STEPP, 2(5), 80–91.
Puras, D., Sumskiene, E., & Adomaityte-Subaciene, I. (2013). Challenges of prolonged transition from totalitarian system to liberal democracy. Journal of Social Policy and Social Work in Transition, 3(2), 31–54. doi:10.1921/6104030204.
Sanger, M. (1920). Woman and the new race. New York: Brentano’s.
Scott, E. S. (1986). Sterilization of mentally retarded persons: Reproductive rights and family privacy. Duke Law Journal, 35(5), 806–865. Retrieved from http://scholarship.law.duke.edu/dlj/vol35/iss5/3.
Shlapentokh, V. (1984). Love, marriage and friendship in the Soviet Union: Ideals and practices. New York: Praeger.
Sobsey, D., & Doe, T. (1991). Patterns of sexual abuse and assault. Sexuality and Disability, 9(3), 243–259. doi:10.1007/BF01102395.
Swader, C. S., Strelkova, O., Sutormina, A., Syomina, V., Vysotskaya, V., & Fedorova, I. (2012). Love as a fictitious commodity: Gift-for-sex barters as contractual carriers of intimacy. Sexuality and Culture, 16(4), 598–616. doi:10.1007/s12119-012-9162-1.
Tennille, J. (2013). Addressing the intimacy interests of people with mental health conditions: Acknowledging consumer desires, provider discomforts, and system denial. Temple University. Retrieved from http://tucollaborative.org/pdfs/Toolkits_Monographs_Guidebooks/relationships_family_friends_intimacy/intimacy.pdf.
The Social Development Team ECSSD. (2001). Social development In Europe and Central Asia region: Issues and directions. Retrieved from http://lnweb90.worldbank.org/eca/eca.nsf/1f3aa35cab9dea4-799f85256a77004e4ef4/7979cd2f8ed149a885256a940073f4e8/$FILE/SD_strategy.pdf.
Tuller, D. (1996). Cracks in the iron closet: Travels in gay and lesbian Russia. Chicago: University of Chicago Press.
United Nations General Assembly. (2011). Interim report of the Special Rapporteur on the right of everyone to the enjoyment of the highest attainable standard of physical and mental health. (UN Doc. A/66/254). Retrieved from http://daccess-dds-ny.un.org/doc/UNDOC/GEN/N11/443/58/PDF/N1144358.pdf?OpenElement.
Wayman, Sh. (2013). We all have a right to love. Irish Times. Retrieved from http://www.irishtimes.com/life-and-style/health-family/we-all-have-a-right-to-love-1.1315194.
Zaviršek, D. (2006). Disabled women everyday citizenship rights in East Europe: Examples from Slovenia. In J. Lukić, J. Regulska, & D. Zavirsek (Eds.), Women and citizenship in Central and Eastern Europe (pp. 62–87). Aldershot: Ashgate.
Author information
Authors and Affiliations
Corresponding author
Rights and permissions
About this article
Cite this article
Sumskiene, E., Orlova, U.L. Sexuality of ‘Dehumanized People’ across Post-Soviet Countries: Patterns from Closed Residential Care Institutions in Lithuania. Sexuality & Culture 19, 369–387 (2015). https://doi.org/10.1007/s12119-014-9262-1
Published:
Issue Date:
DOI: https://doi.org/10.1007/s12119-014-9262-1