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The Traditional Account of Ethics and Law at the End of Life—and its Discontents

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Abstract

For the past 30 years, the Melbourne urologist Dr Rodney Syme has quietly—and more recently, not-so-quietly—assisted terminally and permanently ill people to die. This paper draws on Syme’s recent book, A Good Death: An Argument for Voluntary Euthanasia, to identify and to reflect on some important challenges to what I outline as the traditional account of law, ethics, and end of life decisions. Among the challenges Syme makes to the traditional view is his argument that physicians’ intentions are frail and unfairly expose physicians to moral and legal censure. Secondly, Syme argues that physician-assisted dying (PAD) should be framed as a form of palliative care, not as a kind of safety-chute for when palliative care fails. Thirdly, Syme himself is a rare breed: a dissident doctor who has opened himself up for scrutiny and criticism, by reflecting publicly on his experiences at the edge of the law. Syme’s career illustrates that prohibition, just like legalization, is a social policy that carries social consequences. The paper acknowledges the variability and idiosyncratic nature of extra-legal physician-assisted dying, and argues that the best way forward is to attempt to weigh the social consequences of both policies. Advocates and opponents of PAD should recognize that both prohibition and legalization involve trade-offs and impose possible costs on patients and on society.

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References

  • Abernethy, A., D. Currow, B. Fazekas, M. Luszcz, J.L. Wheeler, and M. Kuchibhatla. 2007. Specialized palliative care services are associated with improved short- and long-term caregiver outcomes. Support Care Cancer 16: 585–597.

    Article  PubMed  Google Scholar 

  • Airedale NHS Trust v Bland (1993) AC 789–899.

  • Alcorn, G. 1998. Right to die row returns. Age. 2 November, p 1.

  • Ashby, M. 2001. On causing death. Medical Journal of Australia 175: 517–518.

    PubMed  CAS  Google Scholar 

  • Ashby, M.A. and D. Mendelson. 2004. Gardner; re BWV: Victorian Supreme Court makes landmark Australian ruling on tube feeding. Medical Journal of Australia 181: 442–445.

    PubMed  Google Scholar 

  • Assisted Dying for the Terminally Ill Bill. 2004. (House of Lords) (HL Bill 17).

  • Battin, M., A. van der Heide, L. Ganzini, G. van der Wal, and B. Onwuteaka-Philipsen. 2007. Legal physician-assisted dying in Oregon and the Netherlands: evidence concerning the impact on patients in “vulnerable” groups. Journal of Medical Ethics 33: 591–597.

    Article  PubMed  Google Scholar 

  • Beauchamp, T. and F. James. 1994. Principles of biomedical ethics, 4th ed. New York: Oxford University Press.

    Google Scholar 

  • Bernheim, J., R. Deschepper, W. Distelmans, A. Mullie, J. Bilsen, and L. Deliens. 2008. Development of palliative care and legalization of euthanasia: Antagonism or synergy? British Medical Journal 336: 864–867.

    Article  PubMed  Google Scholar 

  • Bishop, J. 2006. Framing euthanasia. Journal of Medical Ethics 32: 225–228.

    Article  PubMed  CAS  Google Scholar 

  • Bosshard, G., B. Broeckaert, D. Clark, L.J. Materstvedt, B. Gordijn, and H.C. Müller-Busch. 2008. A role for doctors in assisted dying? An analysis of legal regulations and medical professional positions in six European countries. Journal of Medical Ethics 34: 28–32.

    Article  PubMed  CAS  Google Scholar 

  • Burt, R.A. 1997. The Supreme Court speaks. New England Journal of Medicine 337: 1234–1236.

    Article  PubMed  CAS  Google Scholar 

  • Butcher, S. and L. Pryor. 2003. Justice tempered with mercy for husband who helped his wife die. Sydney Morning Herald. 25 July 2003.

  • Campbell, S. 2008. Ten years of “death with dignity”. The New Atlantis 22: 33–46.

    Google Scholar 

  • Cantor, N. 2004. On Kamisar, killing, and the future of physician-assisted death. Michigan Law Review 102: 1401–1449.

    Article  Google Scholar 

  • Caplan, A., L. Snyder, and K. Faber-Langendoen. 2000. The role of guidelines in the practice of physician-assisted suicide. Annals of Internal Medicine 132: 476–481.

    PubMed  CAS  Google Scholar 

  • Chabot, B. and A. Goedhart. 2009. A survey of self-directed dying attended by proxies in the Dutch population. Social Science & Medicine 68: 1745–1751.

    Article  Google Scholar 

  • Chapple, A., S. Ziebland, A. McPherson, and A. Herzheimer. 2006. What people close to death say about euthanasia and assisted suicide: A qualitative study. Journal of Medical Ethics 32: 706–710.

    Article  PubMed  CAS  Google Scholar 

  • Consent to Medical Treatment and Palliative Care Act. 1995. (SA) s. 17.

  • Cook, D., G. Guyatt, R. Jaeschke, J. Reeve, A. Spanier, D. King, et al. 1995. Determinants in Canadian health care workers of the decision to withdraw life support from the critically ill. JAMA 273: 703–708.

    Article  PubMed  CAS  Google Scholar 

  • Cox. 1992. 12 BMLR 38.

  • Crimes Act. 1900. (NSW) s 18 (defining murder and manslaughter).

  • Criminal Code Amendment Suicide Related Material Offences Act. 2005.

  • Cruzan v Director, Missouri Department of Health 497 US 261. 1990.

  • Currow, D. 2002. MEDicine or MADness. Medical Journal of Australia 176: 190–191.

    PubMed  Google Scholar 

  • Currow, D., A. Ward, J. Plummer, E. Bruera, and A. Abernethy. 2008. Comfort in the last 2 weeks of life: relationship to accessing palliative care services. Support Care Cancer 16: 1255–1263.

    Article  PubMed  Google Scholar 

  • Davies, N. 1995. Helping patients to die. Age. 25 March, p 1.

  • Davies, J. 2007. Terminal answer. Bulletin. 6 November, pp 28–31.

  • Davies, J. 2009. Suicide drug of choice in mail; death drug ordered by internet, sourced by friends in underground trade. Weekend Australian. 14–15 March 2009, pp 1, 4.

  • De Beer, T., C. Gastmans, and B. Dierckx de Casterlé. 2004. Involvement of nurses in euthanasia: A review of the literature. Journal of Medical Ethics 30: 494–498.

    Article  PubMed  Google Scholar 

  • Douglas, C., I. Kerridge, K. Rainbird, J. McPhee, L. Hancock, and A. Spigelman. 2001. The intention to hasten death: A survey of attitudes and practices of surgeons in Australia. Medical Journal of Australia 175: 511–515.

    PubMed  CAS  Google Scholar 

  • Dyer, C. 2006. UK House of Lords rejects physician assisted suicide. British Medical Journal 332: 1169.

    Article  PubMed  Google Scholar 

  • Dyer, C. 2009. Peers consider plan to amend UK law over assisted suicide abroad. British Medical Journal 338: b2081.

    Article  PubMed  Google Scholar 

  • Emanuel, E. 2002. Euthanasia and physician-assisted suicide: A review of the empirical data from the United States. Archives of Internal Medicine 162: 142–152.

    Article  PubMed  Google Scholar 

  • Fitzgerald, J. 1999. Bioethics, disability and death: Uncovering cultural bias in the euthanasia debate. In Disability, divers-ability and legal change, ed. M. Jones and L. Marks, 267–281. The Hague: Nijhoff.

    Google Scholar 

  • Gardner; re BWV. 2003. VSC 173 (29 May 2003).

  • George, K. 2007. A woman’s choice? The gendered risks of voluntary euthanasia and physician-assisted suicide. Medical Law Review 15: 1–33.

    Article  PubMed  Google Scholar 

  • Gonzales v Oregon. 2006. 126 S. Ct. 904; 546 U.S. 243.

  • Gostin, L.O. 2006. Physician-assisted suicide. A legitimate medical practice? Journal of the American Medical Association 295: 1941–1943.

    Article  PubMed  CAS  Google Scholar 

  • Gunderman, R. 2002. Is suffering the enemy? Hastings Center Report March-April: 40–44.

  • Hall, F., F. Trachtenberg, and E. Dugan. 2005. The impact on patient trust of legalizing physician aid in dying. Journal of Medical Ethics 31: 693–697.

    Article  PubMed  CAS  Google Scholar 

  • Herranz, G. 2004. Euthanasia: An uncontrollable power over death. (Translated from the Spanish by Lilia Ceballos; published in Spanish as La Metamorfosis del Activismo Pro-eutanasia. Persona y Bioética 8: 16–21. English-language version published 2006. The National Catholic Bioethics Quarterly 6: 263–270. Available at: http://www.lifeissues.net/writers/her/her_01euthanasia.html (accessed 27 February 2009).

  • House of Lords, Select Committee on the Assisted Dying for the Terminally Ill Bill. Final Report. 2005. (HL Paper 86–1, 4 April, at: http://www.publications.parliament.uk/pa/ld/ldasdy.htm) (accessed 12 March 2009).

  • Hudson, P., L. Kristjanson, M. Ashby, B. Kelly, P. Schofield, R. Hudson, et al. 2006. Desire for hastened death in patients with advanced disease and the evidence base of clinical guidelines: A systematic review. Palliative Medicine 20: 693–701.

    Article  PubMed  Google Scholar 

  • Hurst, S.A. and A. Mauron. 2003. Assisted suicide and euthanasia in Switzerland: Allowing a role for non-physicians. British Medical Journal 326: 271–273.

    Article  PubMed  Google Scholar 

  • Hutchings, B. 1997. Andrews won’t stop me, doctor vows. Australian. 26 March, p 2.

  • Huxtable, R. 2004. Get out of jail free? The doctrine of double effect in English law. Palliative Medicine 18: 62–68.

    Article  PubMed  Google Scholar 

  • Kade, W. 2000. Death with dignity: A case study. Annals of Internal Medicine 132: 504–506.

    PubMed  CAS  Google Scholar 

  • Kaldjian, L.C., J.F. Jekel, J.L. Bernene, G.E. Rosenthal, M. Vaughan-Sarrazin, and T.P. Duffy. 2004. Internists’ attitudes towards terminal sedation in end of life care. Journal of Medical Ethics 30: 499–503.

    Google Scholar 

  • Keizer, B. 1997. In search of a decent death. Guardian Weekly. 13 April 1997: 24.

    Google Scholar 

  • Kelly, B., P. Burnett, D. Pelusi, S. Badger, F. Varghese, and M. Robertson. 2004. Association between clinician factors and a patient’s wish to hasten death: Terminally ill cancer patients and their doctors. Psychosomatics 45: 311–318.

    Article  PubMed  Google Scholar 

  • Keown, J. 2002. The case of Ms B: Suicide’s slippery slope. Journal of Medical Ethics 28: 238.

    Article  PubMed  CAS  Google Scholar 

  • Kuhse, H., P. Singer, B. Clark, and M. Rickard. 1997. End-of-life decisions in Australian medical practice. Medical Journal of Australia 166: 191–196.

    PubMed  CAS  Google Scholar 

  • LaFrance, A.B. 2008. Physician assisted death: From rhetoric to reality in Oregon. Wyoming Law Review 8: 333–346.

    Google Scholar 

  • Lewis, P. 2007. The empirical slippery slope from voluntary to non-voluntary euthanasia. Journal of Law, Medicine & Ethics 35: 197–210.

    Article  Google Scholar 

  • Little, M. 1999. Assisted suicide, suffering and the meaning of a life. Theoretical Medicine and Bioethics 20: 287–298.

    Article  PubMed  CAS  Google Scholar 

  • Lo, B. and G. Rubenfeld. 2005. Palliative sedation in dying patients: “We turn to it when everything else hasn’t worked”. Journal of the American Medical Association 294: 1810–1816.

    Article  PubMed  CAS  Google Scholar 

  • Lowey, E. 2001. Terminal sedation, self-starvation, and orchestrating the end of life. Archives of Internal Medicine 161: 329–332.

    Article  Google Scholar 

  • McCabe, H. 2008. End-of-life decision-making, the principle of double effect, and the devil’s choice: A response to Roger Magnusson. Journal of Law and Medicine 16: 74–84.

    PubMed  Google Scholar 

  • McStay, R. 2003. Terminal sedation: Palliative care for intractable pain, post Glucksberg and Quill. American Journal of Law & Medicine 29: 45–76.

    Google Scholar 

  • Magnusson, R. 2002. Angels of death: Exploring the euthanasia underground. Melbourne: Melbourne University Press. New Haven, Connecticut: Yale University Press.

    Google Scholar 

  • Magnusson, R. 2004a. Euthanasia: Above ground, below ground. Journal of Medical Ethics 30: 441–446.

    Article  PubMed  CAS  Google Scholar 

  • Magnusson, R. 2004b. ‘Underground euthanasia’ and the harm minimization debate. Journal of Law, Medicine & Ethics 32: 486–495.

    Article  Google Scholar 

  • Magnusson, R. 2006. The devil’s choice: Re-thinking law, ethics, and symptom relief in palliative care. Journal of Law, Medicine & Ethics 34: 559–569.

    Article  Google Scholar 

  • Mendelson, D. and T. Jost. 2003. A comparative study of the law of palliative care and end-of-life treatment. Journal of Law, Medicine & Ethics 31: 130–143.

    Article  Google Scholar 

  • Meuser, T., C. Pietruck, L. Radbruch, P. Stute, K. Lehmann, and S. Grond. 2001. Symptoms during cancer pain treatment following WHO-guidelines: A longitudinal follow-up study of symptom prevalence, severity and etiology. Pain 93: 247–257.

    Article  PubMed  CAS  Google Scholar 

  • Miccinesi, G., S. Fischer, E. Paci, B. Onwuteaka-Philipsen, C. Cartwright, A. van der Heide, et al. 2004. Physicians’ attitudes towards end-of-life decisions: A comparison between seven countries. Social Science & Medicine 60: 1961–1974.

    Article  Google Scholar 

  • Morita, T., J. Tsunoda, S. Inoue, and S. Chihara. 2001. Effect of high dose opioids and sedatives on survival in terminally ill cancer patients. Journal of Pain and Symptom Management 21: 282–289.

    Article  PubMed  CAS  Google Scholar 

  • Name withheld. 1998. It’s over Debbie. Journal of the American Medical Association 259: 272.

    Google Scholar 

  • Neil, D., C. Coady, J. Thompson, and H. Kuhse. 2007. End-of-life decisions in medical practice: A survey of doctors in Victoria (Australia). Journal of Medical Ethics 33: 721–725.

    Article  PubMed  CAS  Google Scholar 

  • O’Connor, M., D. Kissane, and O. Spruyt. 1999. Sedation in the terminally ill—A clinical perspective. Monash Bioethics Review 18: 17–27.

    Google Scholar 

  • Onwuteaka-Philipsen, B., A. van der Heide, D. Koper, I. Keij-Deerenberg, J. Rietjens, M. Rurup, et al. 2003. Euthanasia and other end-of-life decisions in the Netherlands in 1990, 1995, and 2001. Lancet 362: 395–399.

    Article  PubMed  Google Scholar 

  • O’Reilly, K. 2008. Montana court OKs doctor-assisted suicide. American Medical News, at: http://www.ama-assn.org/amednews/2008/12/29/prsa1229.htm (posted 29 December) (accessed 5 June 2009).

  • O’Reilly, K. 2009. Montana judge rejects stay of physician-assisted suicide ruling. American Medical News, at: http://www.ama-assn.org/amednews/2009/01/26/prsd0129.htm (posted 29 January) (accessed 5 June 2009).

  • Palmer, H. 1957. Dr Adams’ trial for murder. Criminal Law Review: 365–377.

  • Parker, M., C. Cartwright, and G. Williams. 2008. Impact of speciality on attitudes of Australian medical practitioners to end-of-life decisions. Medical Journal of Australia 188: 450–456.

    PubMed  Google Scholar 

  • Pattin, M.P., A. van der Heide, L. Ganzini, G. van der Wal, and B.D. Onwuteaka-Philipsen. 2007. Legal physician-assisted dying in Oregon and the Netherlands: Evidence concerning the impact on patients in “vulnerable” groups. Journal of Medical Ethics 33: 591–597.

    Article  Google Scholar 

  • Pollard, B. and R. Winton. 1993. Why doctors and nurses must not kill patients. Medical Journal of Australia 128: 426–429.

    Google Scholar 

  • Pretty v The United Kingdom. 2002. 2346/02 [2002] ECHR 427 (20 April 2002).

  • Quill, T. 1991. Death and dignity: A case of individualized decision making. New England Journal of Medicine 324: 691–694.

    Article  PubMed  CAS  Google Scholar 

  • Quill, T. 1993. The ambiguity of clinical intentions. The New England Journal of Medicine 329: 1039–1040.

    Article  PubMed  CAS  Google Scholar 

  • Quill, T., B. Lo, and D. Brock. 1997. Palliative options of last resort: A comparison of voluntarily stopping eating and drinking, terminal sedation, physician-assisted suicide, and voluntary active euthanasia. Journal of the American Medical Association 278: 2099–2104.

    Article  PubMed  CAS  Google Scholar 

  • R v Woollin. 1999. 1 AC 82.

  • R (Pretty) v DPP. 2002. 1 AC 800.

  • R v Maxwell. 2003. VSC 278 (24 July 2003).

  • Re A (children)(conjoined twins). 2000. 4 All ER 961–1070.

  • Re B (adult: refusal of medical treatment). 2002. 2 All ER 449.

  • R v Shirley Justins. 2008. NSWSC 1194 (12 November 2008).

  • Re T. 1992. 4 All ER 649.

  • Rietjens, J., J. van Delden, B. Onwuteaka-Philipsen, H. Buiting, P. van der Maas, and A. van der Heide. 2008. Continuous deep sedation for patients nearing death in the Netherlands: Descriptive study. British Medical Journal 336: 810–813.

    Article  PubMed  Google Scholar 

  • Rodriguez v British Columbia (Attorney General). 1993. 3 S.C.R. 519.

  • St George’s Healthcare NHS Trust v S; R v Collins & Ors, ex parte S. 1998. 3 All ER 673.

  • Seale, C. 2006. National survey of end-of-life decisions made by UK medical practitioners. Palliative Medicine 20: 3–10.

    Article  PubMed  Google Scholar 

  • Shipman Inquiry, The. 2005. Shipman: The final report. London: UK Home Office, at: http://www.the-shipman-inquiry.org.uk/reports.asp (accessed 29 August 2008).

  • Singer, P. 2002. Ms B and Diane Pretty: A commentary. Journal of Medical Ethics 28: 234.

    Article  PubMed  CAS  Google Scholar 

  • Smith II, G.P. 1998. Terminal sedation as palliative care: Revalidating a right to a good death. Cambridge Quarterly of Healthcare Ethics 7: 382–387.

    Article  PubMed  Google Scholar 

  • Souter, F. 2008. His life in her hands. Good Weekend. (The Sydney Morning Herald Magazine). 2 August 2008, pp. 18–26.

  • Steinbrook, R. 2008. Physician-assisted death—From Oregon to Washington State. New England Journal of Medicine 359: 2513–2515.

    Article  PubMed  CAS  Google Scholar 

  • Sulmasy, D. 1999. The rule of double effect: Clearing up the double talk. Archives of Internal Medicine 159: 545–550.

    Article  PubMed  CAS  Google Scholar 

  • Syme, R. 1998a. Ending the pain of dying. Age. 2 November, p 15.

  • Syme, R. 1998b. The father, son and euthanasia. Age. 13 April.

  • Syme, R. 1999. Reply from Rodney Syme. Monash Bioethics Review: 34–40.

  • Syme, R. 2008. A good death: An argument for voluntary euthanasia. Melbourne: Melbourne University Press.

    Google Scholar 

  • Tallis, R. 1996. Is there a slippery slope? Times Literary Supplememt. 12 January, p. 3.

  • Vacco v. Quill 521 U.S. 793. 1997.

  • van der Heide, A., L. Deliens, K. Faisst, T. Nilstun, M. Norup, E. Paci, et al. 2003. End-of-life decision-making in six European countries: Descriptive study. Lancet 361: 345–350.

    Google Scholar 

  • van der Heide, A., B.D. Onwuteaka-Philipsen, M.L. Rurup, H.M. Buiting, J.J.M. van Delden, J.E. Hanssen-de Wolf, et al. 2007. End-of-life practices in the Netherlands under the Euthanasia Act. New England Journal of Medicine 356: 1957–1965.

    Article  PubMed  Google Scholar 

  • Washington v. Glucksberg 521 U.S. 702. 1997.

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The author would like to thank the reviewers for their helpful comments.

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Correspondence to Roger S. Magnusson.

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Magnusson, R.S. The Traditional Account of Ethics and Law at the End of Life—and its Discontents. Bioethical Inquiry 6, 307–324 (2009). https://doi.org/10.1007/s11673-009-9169-y

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