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Health and human rights: epistemological status and perspectives of development

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Abstract

The health and human rights movement (HHR) shows obvious signs of maturation both internally and externally. Yet there are still many questions to be addressed. These issues include the movement’s epistemological status and its perspectives of development. This paper discusses critically the conditions of emergence of HHR, its identity, its dominant schools of thought, its epistemological postures and its methodological issues. Our analysis shows that: (a) the epistemological status of HHR is ambiguous; (b) its identity is uncertain in the absence of a validated definition: is it an action movement, an interdisciplinary field, a domain, an approach, a setting or a scientific discipline? (c) its main schools of thoughts are defined as “advocacists”, “ethicists”, “interventionists”, “normativists”; (d) the movement is in the maturation process as a discipline in which “interface”, “distance”, “interference” and “fusion” epistemological postures represent the fundamental steps; (e) parent disciplines (health sciences and law) competences, logics and cultures introduce duality and difficulties in knowledge production, validation and diffusion; (f) there is need to re-write the history of the HHR movement by inscribing it not only into the humanitarian or public health perspectives but also into the evolution of sciences and its social, political and economical conditions of emergence. The ambiguous epistemological status of this field, the need to re-write its history, the methodological duality in its research, the question of the competence of the knowledge validation, as well as the impact of HHR practice on national and international health governance are the challenges of its future development. To meet those challenges; we call for the creation and implementation of an international research agenda, the exploration of new research topics and the evaluation of the movement’s contribution to the national and global public health and human rights governance.

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References

  • Aagaard-Hansen, J. 2007. The challenges of cross-disciplinary research. Social epistemology 21(2): 425–438.

    Article  Google Scholar 

  • Annas, G.J. 2005. American bioethics: Crossing human rights and health law boundaries, 244. New York: Oxford University Press.

    Google Scholar 

  • Aschcroft, R.E. 2010. Could human rights supersede bioethics? Human Rights Law Review. Doi:10.1093/hrlr/ngq037.

  • Audet, M., and Maluin, J-L. 1986. Production des connaissances scientifiques de l’administration. Presses Université Laval, 390p.

  • Backman, G., P. Hunt, R. Khosla, C. Jaramillo-Strouss, et al. 2008. Health systems and the right to health: An assessment of 194 countries. The Lancet 372: 2047–2208.

    Article  Google Scholar 

  • Beaud, M. 1989. L’Economie mondiale dans les années 80. Paris: La Découverte. 335.

    Google Scholar 

  • Berthelot, J.-M. 2000. Sociologie: Epistémologie d’une discipline textes Fondamentaux, 479. Bruxelles: De Boeck.

    Google Scholar 

  • Beyrer, C., and H. Pizer. 2007. Public health & human rights: Evidence based approaches, 470. Baltimore: Johns Hopkins University Press.

    Google Scholar 

  • Bourdieu, P. 1999. The specificity of scientific field and social conditions of the progress of reason. In The science studies reader, ed. Mario Biagioli, 31–50. New York: Routeledge.

    Google Scholar 

  • Brauman, R. 2001. Questioning health and human rights. Carnegie Council publications 2001. www.cceia.org/resources/publications/dialogue/2_06/articles/643.html.

  • Brenner, J. 1996. Human rights education in Public health graduate schools: 1996 survey. Health and Human Rights 2(1): 129–139.

    Article  PubMed  Google Scholar 

  • Burris, S. 2002. Introduction: Merging law, human rights and social epidemiology. Journal of Law, Medicine & Ethics 30: 498–509.

    Article  Google Scholar 

  • Camirana-Matos, L.M., and H. Afsarmanesh. 2005. Collaborative networks: A new scientific discipline. Journal of Intelligent Manufacturing 16: 439–445.

    Article  Google Scholar 

  • Choi, C.K.B., Tikki Pang, et al. 2005. Can scientists and policy makers work together? Journal Epidemiol Community Health 59: 632–637.

    Article  Google Scholar 

  • Cotter, E.L., J. Chevrier, et al. 2009. Health and human rights Education in US Schools of Medicine and Public health: Current status and future challenges. Plos ONE 4(3): e4916.

    Article  PubMed  Google Scholar 

  • Cook, R.J., and Ngwena, C.G. 2007. Health and human rights. 607p. Burlington: Ashgate.

  • Cook, R.J., B.M. Dickens, and M.F. Fathalla. 2003. Reproductive health and human rights: Integrating medicine, ethics and law, 554. Oxford: Clarendon Press.

    Google Scholar 

  • Destexhe, A. 1999. From Solferino to Sarajevo. In Health and human rights: A reader, ed. J.M. Mann, S. Gruskin, M.A. Grodin, G.J. Annas, et al., 75–82. New York: Routeledge.

    Google Scholar 

  • Doucet, H. 2008. Les méthodes empiriques, une nouveauté en bio éthique? Revista Colombiana de Bioética 3(2): 9–19.

    Google Scholar 

  • Dupuy, R. 1979. The right to health as a human right, 500. Alphen aan Den Rijn: Martinus Nijhoff Publishers.

    Google Scholar 

  • Easley, E.C., and S. Marks. 2001. The challenge and place of international human rights in public health. American Journal of Public Health Association 91(12): 1922–1925.

    Article  CAS  Google Scholar 

  • Farmer, P. 2005. Pathologies of power: Health, human rights, and the new war on the poor, 402. Berkley: University of California Press.

    Google Scholar 

  • Faunce, T.A. 2005. Will international Human rights subsume medical ethics. Intersections in the Unesco universal Bioethics Declaration. Journal of Medical Ethics 31: 173–178.

    Article  PubMed  CAS  Google Scholar 

  • Favre, P. 1995. Retour à la question de l’objet ou faut-il disqualifier la notion de discipline. Politix 29: 141–157.

    Article  Google Scholar 

  • Garcia, S. 2005. Expertise scientifique et capital militant. Le rôle des médecins dans la lutte pour la législation de l’avortement. Actes de la recherche en sciences sociales 3(158): 96–115.

    Article  Google Scholar 

  • Garvin, T. 2002. Analytical paradigms: The epistemological distances between scientists, policy makers and the Public. Risk Analysis 21(3): 443–456.

    Article  Google Scholar 

  • Gayon, J. 2004. La génétique est-elle encore une discipline. Medecine Sciences 20(2): 248–253.

    PubMed  Google Scholar 

  • Gevers, J.K.M., E.H. Hondius, and J.H. Hubben. 2005. Health and human rights and the Biomedicine Convention, 271. Leiden-Boston: Matinius Nijhoff publishers.

    Google Scholar 

  • Gibbons, M., C. Limoges, H. Nowotny, et al. 1994. The New production of knowledge: The dynamics of science and research in contemporary societies, 179p. London: Sage.

    Google Scholar 

  • Gingras, Y., and B. Gemme. 2006. L’emprise du champ scientifique sur le champ universitaire et ses effets. Actes de la recherche en sciences sociales 4(164): 51–60.

    Article  Google Scholar 

  • Gostin, L.O., and Z. Lazzarini. 1997. Human rights and public health in the AIDS pandemic, 212. New York: Oxford University Press.

    Google Scholar 

  • Gostin, L.O., J.M. Mann, and L. Gostin. 1994. Towards the development of a human rights impact assessment for the formulation and evaluation of public health policies. Health and Human Rights 1(1): 58–80.

    Article  PubMed  Google Scholar 

  • Granger, G.G. 1992. A quoi sert l’Epistémologie? Droit et société 20(21): 35–42.

    Google Scholar 

  • Gruskin, S., and L. Ferguson. 2009. Using indicators to determine the contribution of human rights to public health. Bull World Health Organ 87: 714–719.

    Article  PubMed  Google Scholar 

  • Gruskin, S. 2006. Rights-based approaches to health: Something for everyone. Health and Human Rights 4(32): 5–9.

    Article  Google Scholar 

  • Gruskin, S., Grodin, M.A., Annas, J.G., and Marks, S.P. 2005. Perspectives on Health and human rights. 609p. New York.

  • Gruskin, S., J.D. Mills, and D. Tarantola. 2007. Health and human rights 1: History, principles and practice of health and human rights. The Lancet 370: 449–455.

    Article  Google Scholar 

  • Hervey, T.K., and J.V. McHale. 2004. Health law and the European Union. London: Cambridge University Press. 469 p.

    Book  Google Scholar 

  • Hirst, P. 1993. Education, knowledge and practices. In Beyond liberal education, ed. R. Barrow, and P. White, 184–199. London: Routledge.

    Google Scholar 

  • Hollingsworth, R., and H.K. Müller. 2008. Transforming socio-economics with a new epistemology. Socio-economics Review 6: 395–426.

    Article  Google Scholar 

  • Hunt, P., Steward, R., de Mesquita, J.B., and Oldring, L. 2007. Neglected diseases: A human rights analysis. WHO, Geneva, Social, Economic and behavorial Research, Special topic No. 6, Geneva, 53p.

  • Iacopino, V., and R.J. Waldman. 1999. War and Health. From Solferino to Kosovo- The evolving Role of physicians. JAMA 281(5): 479–481.

    Article  Google Scholar 

  • Jenkins, K. 2003. Refiguring history: New thoughts on an old discipline, 74. London: Routledge.

    Google Scholar 

  • Jimba, M., Y. Nomura, K.C. Poudel, et al. 2005. Increase of Health and human rights Research articles in Japan. JMAJ 48(11): 545–549.

    Google Scholar 

  • Journès, C. 1979. Les idées politiques du mouvement écologique. Revue Française de science politique. 29ème année(2):230–254.

  • Kennedy, I., and A. Grubb. 1994. Medical law: Text with materials, 2nd ed. London: Butterwoods. 1423.

    Google Scholar 

  • Klein, U. 2001. Tools and modes of representation in the laboratory sciences, 259. Dordrecht: Kluwer Academics Publishers.

    Google Scholar 

  • Kopelman, M.L. 2006. Bioethics as a second-order discipline: Who is not a bioethicist? Journal of Medicine and Philosophy 31: 601–628.

    Article  PubMed  Google Scholar 

  • Kuhn, T.S. 1992. La structure des révolutions scientifiques, 246. Paris: Flammarion.

    Google Scholar 

  • Leclerc, B.-S. 2005. L’épidémiologie contemporaine en crise de paradigme. Ruptures 10(2): 178–198.

    Google Scholar 

  • Leclerc, M. 1989. La notion de discipline scientifique et ses enjeux sociaux. Politique 15: 23–51.

    Google Scholar 

  • Lézé, S. 2007. An exploration of the possibility of sociology of mental health: An historical epistemological examination of the subfield in France. Journal of Mental Health 16(3): 319–331.

    Article  Google Scholar 

  • Mann, J.M. 1996. Health and human rights. Editorial. BMJ 312: 924–925.

    PubMed  CAS  Google Scholar 

  • Mann, J.M., L. Gostin, S. Gruskin, et al. 1999. Health and human rights 1. In Health and Human rights: A reader, ed. J.M. Mann, S. Gruskin, M.A. Grodin, and G.J. Annas. New York: Routeledge.

    Google Scholar 

  • Marks, S.P. 2002. The evolving field of health and human rights: Issues and methods. Journal of Law, Medicine & Ethics 30: 739–754.

    Article  Google Scholar 

  • Martino, L.C. 2008. Epistémologie de la communication: Scepticisme et intelligibilité du savoir communicationnel. On line. www.archivesic.ccsd.cnrs.fr/docs/00/41/12/82/…/THESE-HADDAD-2008.pdf.

  • Mpinga, E.K., Verloo, H., Leslie, L., and Chastonay, P. (in press). Health and human rights in scientific literature: A systematic Review 1999–2008.

  • Neirinck, C. 1994. De la bioéthique au bio-droit, 171. Paris: LGDJ.

  • Oppenheimer, G., R. Bayer, and J. Colgrove. 2002. Health and human rights: Old wine in new bottles. Journal of Law, Medicine & Ethics 30: 522–532.

    Article  Google Scholar 

  • Packer AAC. 2002. Using Human rights to change tradition: Traditional practices Harmful to Women’s Reproductive Health in Sub Saharan Africa. Intersentia, Antwerpen, 252p.

  • Pellegrino, E.D. 1999. The origins and evolution of bioethics: Some personal reflections. Ethics Journal 9(1): 73–88.

    Google Scholar 

  • Reichlin, M. 1994. Observations on the epistemological status of bioethics. The Journal of Medicine & Philosophy 19: 79–102.

    CAS  Google Scholar 

  • Sandor, J. 2008. Human rights and bioethics: Competitors or allies? The role of international law in shaping the contours of a new discipline. Medicine and Law 27: 15–28.

    PubMed  Google Scholar 

  • Sarrasin, B. 1997. Les coûts sociaux de l’ajustement structurel en Afrique subsaharienne: Evolution des critiques externes et des réponses de la Banque mondiale. Canadian Journal of African Studies 31(3): 517–553.

    Article  Google Scholar 

  • Schmidt, H. 2009. Bioethics, Human rights and universalisation: A troubled relationship? Observations on UNESCO’s Universal Declaration on Bioethics and Human Rights. In Legitimation ethischer Entscheindungen im Recht, ed. S. Vöneky, C Hagedorn, M. Clados, J. von Achenbach (Hrsg.) Beiträge zum ausländischen öffentlichen Recht und Völkerrecht 201(4): 275–295, Max Plank Institut für ausländisches öffentliches Recht und Völkerrecht, Heidelberg.

  • Sen, A. 2005a. Elements of a theory of human rights. Philosophy and Public Affairs 2004 32(4): 315–356.

    Article  Google Scholar 

  • Sen, A. 2005b. Human rights and capabilities. Journal of Human Development 6(2): 151–166.

    Article  Google Scholar 

  • Sen, A. 2000. What differences can ethics make. Paper presented to international meeting on ethics and development. //www.iadb.org/etica/documentos/dc_sen_queimp-i.pdf.

  • Shneider, M.A. 2009. Four stages of a scientific discipline. Trends in Bio medical Sciences 34(5): 217–223.

    Article  CAS  Google Scholar 

  • Singh, S., J. Orbinski, and J.E. Mills. 2007. Conflict and health: A paradigm shift in global health and human rights. Conflict and Health I: 1.

    Article  Google Scholar 

  • Tarantola, D. 2006. A perspective of the future history of health and human rights. APHA, 134th annual meeting and exposition. November 4–8, 2006 Boston.

  • Tarantola, D. 2008. A perspective on the history of health and human rights: From the cold war to the gold war. Journal of Public Health Policy 29: 42–53.

    Article  PubMed  Google Scholar 

  • Tedre, M. 2007. Know your discipline: Teaching the philosophy of computer science. Journal of Information Technology Education 6: 105–121.

    Google Scholar 

  • Teubner, G. 1992. Pour une épistémologie constructiviste du droit. Annales ESC- nov-décembre 6: 1149–1169.

    Google Scholar 

  • Torrance, A.W. 2010. The evolution and development of biolaw. Working Paper, University of Kansas, May 2010.

  • Tomas, A. 2005. A human rights approach to development 2005. www.unifem.org.in/PDF.

  • Tribe, J. 1997. The indiscipline of tourism. Annals of Tourism Research 24(3): 638–657.

    Article  Google Scholar 

  • World Medical Association. 2006. Statutes approved by the general assembly. Toulouse, France.

  • Zins, C. 2006. Redefining information science: From information science to knowledge science. Journal of Documentation 62(4): 447–461.

    Article  Google Scholar 

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Correspondence to Emmanuel Kabengele Mpinga.

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Mpinga, E.K., London, L. & Chastonay, P. Health and human rights: epistemological status and perspectives of development. Med Health Care and Philos 14, 237–247 (2011). https://doi.org/10.1007/s11019-011-9310-7

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