Abstract
Through her stories and mine, my sister and I allow the outside world to see the ways in which we grapple with a critical health incident along her journey of living with lupus. Lupus is a chronic, autoimmune disease that is difficult to recognize and to diagnose. The ambiguous nature of the disease creates considerable confusion for the ill person as well as her support system. Using an illness narrative, I analyze a real life event linked to chronic illness, invisibility, living loss, liminality and family—and more specifically, to social support within the sibling relationship.
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References
Austin, Wendy J. 2008. "Relational Ethics." In The SAGE Encyclopedia of Qualitative Research Methods, edited by Lisa M. Given, 749-50. Thousand Oaks, CA: SAGE Publications. doi:10.4135/9781412963909.n378.
Bedford, V. H. 1993. “Relationships between Adult Siblings.” In Interpersonal Relationships, edited by Ann E. Auhagen and Maria von Salisch, 119-141. Gottingen, Germany: Hogrefe, Verlage fur Psychologie.
Bitner, Mary Jo, Bernard H. Booms, and Lois A. Mohr. 1990. "The Service Encounter: Diagnosing Favorable and Unfavorable Incidents." Journal of Marketing 54:71-84. doi:10.2307/1252174.
Boss, Pauline and Barbara A. Couden. 2002. “Ambiguous Loss from Chronic Physical Illness: Clinical Interventions with Individuals, Couples, and Families.” Journal of Clinical Psychology 58 (11): 1351-1360. doi:10.1002/jclp.10083.
Cicirelli, Victor G. 1995. Sibling Relationships across the Lifespan. New York: Plenum Press.
Cornwell, Erin Y. and Linda J. Waite. 2008. “Social Disconnectedness, Perceived Isolation, and Health among Older Adults.” Journal of Health and Social Behaviors 50 (1): 31-48. doi:10.1177/002214650905000103.
Ellis, Carolyn and Arthur P. Bochner. 2000. “Autoethnography, Personal Narrative, Reflexivity.” In Handbook of Qualitative Research, 2nd ed, edited by Norman K. Denzin and Yvonna S. Lincoln, 733-768. Thousand Oaks, CA: Sage.
------. 2006. “Analyzing Analytic Autoethnography: An Autopsy.” Journal of Contemporary Ethnography 35 (4): 429-449. doi:10.1177/0891241606286979.
Ellis, Carolyn, Tony E. Adams and Arthur P. Bochner. 2011. “Autoethnography: An overview.” Forum: Qualitative Social Research 12 (1): Art. 10.
Frank, Arthur W. 1995. The Wounded Storyteller: Body, Illness, and Ethics. Chicago: University of Chicago Press.
------. 2012. "Practicing Dialogical Narrative Analysis." In Varieties of Narrative Analysis, edited by James A. Holstein and Jaber F. Gubrium, 33-52. Thousand Oaks, CA: Sage.
Gallop, Katy, Annabel Nixon, Paul Swinburn, Kimberly Sterling, April Naegeli, and M. E. Silk. 2012. “Development of a Conceptual Model of Health-Related Quality of Life for Systemic Lupus Erythematosus (SLE) from the Patient’s Perspective." Lupus 21 (9): 934-43. doi:10.1177/0961203312441980.
Goetting, Ann.1986. “The Developmental Task of Siblingship over the Lifecycle.” Journal of Marriage and Family 48 (4): 703-714. doi:10.2307/352563.
Grossberg, Lawrence; Cary, Nelson; and Paula Treichler. 1992. Cultural Studies. New York: Routledge.
Kelly, Angela. 2008. “Living Loss: An Exploration of the Internal Space of Liminality.” Mortality 13 (4): 335-350. doi:10.1080/13576270802383915.
Little, Miles, Christopher F.C. Jordens, Kim Paul, Kathleen Montgomery and Bertil Philipson. 1998. “Liminality: A Major Category of the Experience of Cancer Illness.” Social Science Medicine 47 (10): 1485-1494. doi:10.1016/S0277-9536(98)00248-2.
Lowe, Pauline and Karen McBride-Henry. 2012. “What Factors Impact upon the Quality of Life of Elderly Women with Chronic Illnesses: Three Women’s Perspectives. Contemporary Nurse 41 (1): 18-27. doi:10.5172/conu.2012.41.1.18.
“Lupus.” Center for Disease Control and Prevention. Accessed January 12, 2016. http://www.cdc.gov/lupus.
“Lupus and Depression.” Lupus Foundation of America. Accessed January 12, 2016. http://www.lupus.org/depression.
Nicholas, Cheryl L. 2004. “Gaydar: Eye-gaze as Identity Recognition among Gay Men and Lesbians.” Sexuality and Culture 8 (1): 60-86. doi:10.1080/00224499.2015.1015714.
Richardson, Laurel. 2000. “Evaluating Ethnography.” Qualitative Inquiry 6 (2): 253-255. doi:10.1177/107780040000600207.
Ross, Helgola G. and Joel I. Milgram. 1982. “Important Variables in Adult Sibling Relationships. A Qualitative Study.” In Sibling Relationships: Their Nature and Significance across the Lifespan, edited by Michael E. Lamb and Brian Sutton-Smith, 225-249. Hillsdale, NJ: Lawrence Erlbaum Associates.
Sools, Anneke. 2013. “Narrative Health Research: Exploring Big and Small Stories as Analytical Tools.” Health 17 (1): 93-110. doi:10.1177/1363459312447259.
Troll, Lillian E. 1975. Early and Middle Adulthood: The best is yet to be--maybe. Monterey, Calif: Brooks/Cole Publishing Company.
Turner, Victor. 1969. The Ritual Process: Structure and Antistructure. Chicago: Transaction Publishers.
Waite, Linda J. and Erin Y. Cornwell. 2009. “Social Disconnectedness, Perceived Isolation, and Health among Older Adults.” Journal of Health and Social Behaviors 50 (1):31-48. doi:10.1177/002214650905000103.
White, Carmel P., Jaymi Mendoza, Mark B. White and Christy Bond. 2009. “Chronically Ill Mothers Experiencing Pain: Relational Coping Strategies used while Parenting Young Children.” Chronic Illness 5:33-45. doi:10.1177/1742395309102820.
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Williams, K.M. My Sister’s Keeper: Sibling Social Support and Chronic Illness. J Med Humanit 39, 135–143 (2018). https://doi.org/10.1007/s10912-016-9394-4
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DOI: https://doi.org/10.1007/s10912-016-9394-4