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Clarifying Values and Preferences for Care Near the End of Life: The Role of a New Lay Workforce

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Abstract

Community health workers (CHWs) can engage elderly persons in advance care planning (ACP) conversations. We report how trained CHWs used Go Wish cards (GW R cards) to identify patients’ highest priority preferences and evaluated whether engaging in ACP conversations was associated with subsequent health care utilization. A one-year long, pre-post longitudinal design was used to evaluate our educational intervention using mixed-methods. 392 patients (mean of 73.3 years, 82% women, 48% African American, 43% Caucasian) enrolled in the Aging Brain Care (ABC) program and participated in ACP discussions with CHWs. We expanded the role of the ABC’s CHW, who work directly with individuals and caregivers during home visits to monitor bio-psycho-social needs, to include ACP conversations. The CHWs received ACP training, practice with tools such as GW R cards, and support from an electronic health record (EHR) clinical decision support tool. Quantitative measures of patients’ ACP preferences and health care utilization were abstracted from the EHR. Qualitative data about patients’ perceptions of CHWs in facilitating ACP discussions was obtained through semi-structured interviews. Eighty-six patients’ data indicated that they had engaged in a preferences-for-care process using GW R cards. The top-three card choices by patients was attending to spirituality and religious concerns, preparing for end of life, and maintaining personal wholeness. CHWs were able to effectively engage in ACP conversations with patients and GW R cards were a positive way to stimulate discussion of issues previously undiscussed.

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Author information

Authors and Affiliations

  1. Regenstrief Institute, Inc., 1101 West Tenth Street, Indianapolis, IN, 46202-4800, USA

    Debra K. Litzelman, Thomas S. Inui & Kathleen M. Schmitt-Wendholt

  2. Department of Medicine, IU School of Medicine, Indianapolis, IN, USA

    Debra K. Litzelman, Thomas S. Inui & Ann H. Cottingham

  3. Indiana Clinical and Translational Sciences Institute, Indiana University Center for Healthcare Innovation and Implementation Science, Indianapolis, IN, USA

    Anthony Perkins

  4. Indiana University Health, Indianapolis, IN, USA

    Wilma J. Griffin & Steven S. Ivy

  5. Charles Warren Fairbanks Center for Medical Ethics, Indianapolis, IN, USA

    Steven S. Ivy

Authors
  1. Debra K. Litzelman
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  2. Thomas S. Inui
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  3. Kathleen M. Schmitt-Wendholt
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  4. Anthony Perkins
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  5. Wilma J. Griffin
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  6. Ann H. Cottingham
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  7. Steven S. Ivy
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Correspondence to Debra K. Litzelman.

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Litzelman, D.K., Inui, T.S., Schmitt-Wendholt, K.M. et al. Clarifying Values and Preferences for Care Near the End of Life: The Role of a New Lay Workforce. J Community Health 42, 926–934 (2017). https://doi.org/10.1007/s10900-017-0336-5

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  • DOI: https://doi.org/10.1007/s10900-017-0336-5

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