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Relationship of Youth Involvement in Diabetes-Related Decisions to Treatment Adherence

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Abstract

The aim of this study was to examine the relationship of youth’s involvement in diabetes-related decisions to adherence. Children and adolescents (8–19 years) and their parents (N = 89) completed the Decision Making Involvement Scale and the Self Care Inventory, a self-report measure of adherence. After controlling for youth age, the degree to which youth expressed an opinion and information to parents was associated with better parent- and youth-reported adherence. The degree to which parents expressed an opinion and information to youth was associated with worse parent-reported adherence. Joint decision-making behaviors (e.g., negotiation; provision of options) also were associated with better youth-reported adherence. Encouraging youth to express opinions and share illness-related information with parents during illness management discussions may improve adherence. Additional research is needed to identify mechanisms of effect and determine associations between decision making involvement and health behaviors and outcomes over time.

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References

  • Angst, D. B., & Deatrick, J. A. (1996). Involvement in health care decisions: Parents and children with chronic illness. Journal of Family Nursing, 2, 174–194.

    Article  Google Scholar 

  • Berg, C. A., King, P. S., Butler, J. M., Pham, P., Palmer, D., & Wiebe, D. J. (2011). Parental involvement and adolescents’ diabetes management: The mediating role of self-efficacy and externalizing and internalizing behaviors. Journal of Pediatric Psychology, 36, 329–339.

    Article  PubMed Central  PubMed  Google Scholar 

  • Ellis, D. A., Templin, T. N., Naar-King, S., & Frey, M. A. (2008). Toward conceptual clarity in a critical parenting construct: Parental monitoring in youth with a chronic illness. Journal of Pediatric Psychology, 33, 799–808.

    Article  PubMed Central  PubMed  Google Scholar 

  • Greco, P., La Greca, A., Ireland, S., Wick, P., Freeman, C., Agramonte, R.,… Skyler, J. (1990). Assessing adherence in IDDM: A comparison of two methods. Diabetes, 39, 108A (abstract).

  • Hafetz, J. S., & Miller, V.A. (2010). Child and parent perceptions of monitoring in chronic illness management: A qualitative study. Child: Care, Health, & Development, 36, 655–662.

    Google Scholar 

  • Kerr, M., & Stattin, H. (2000). What parents know, how they know it, and several forms of adolescent adjustment: Further support for a reinterpretation of monitoring. Developmental Psychology, 36, 366–380.

    Article  CAS  PubMed  Google Scholar 

  • La Greca, A. M. (2004). Manual for the self care inventory. Miami, FL: University of Miami.

  • Laffel, L. M., Vangsness, L., Connell, A., Goebel-Fabbri, A., Butler, D., & Anderson, B. J. (2003). Impact of ambulatory, family-focused teamwork intervention on glycemic control in youth with Type I diabetes. Journal of Pediatrics, 142, 409–416.

    Article  PubMed  Google Scholar 

  • Leonard, B. J., Garwick, A., & Adwan, J. Z. (2005). Adolescents’ perceptions of parental roles and involvement in diabetes management. Journal of Pediatric Nursing, 20, 405–414.

    Article  PubMed  Google Scholar 

  • Miller, V. A. (2009). Parent-child collaborative decision making for the management of chronic illness: A qualitative study. Families, Systems, & Health, 27, 249–266.

    Article  Google Scholar 

  • Miller, V. A., & Drotar, D. (2007). Decision making competence and adherence to treatment in adolescents with diabetes. Journal of Pediatric Psychology, 32, 178–188.

    Article  PubMed  Google Scholar 

  • Miller, V. A., & Harris, D. (2012). Measuring children’s decision making involvement regarding chronic illness management. Journal of Pediatric Psychology, 37, 292–306.

    Article  PubMed Central  PubMed  Google Scholar 

  • Modi, A. C., Lim, C. S., Yu, N., Geller, D., Wagner, M. H., & Quittner, A. L. (2006). A multi-method assessment of treatment adherence for children with cystic fibrosis. Journal of Cystic Fibrosis, 5, 177–185.

    Article  PubMed  Google Scholar 

  • Modi, A. C., Pai, A. L., Hommel, K., Hood, K. K., Cortina, S., Hilliard, M. E.,… Drotar, D. (2012). Pediatric self-management: A framework for research, practice, and policy. Pediatrics, 129, e473–e485.

  • Nansel, T. R., Iannotti, R. J., & Liu, A. (2012). Clinic-integrated behavioral intervention for families of youth with type 1 diabetes: Randomized clinical trial. Pediatrics, 129, e866–e873.

    Article  PubMed Central  PubMed  Google Scholar 

  • Nansel, T. R., Rovner, A. J., Haynie, D., Iannotti, R. J., Simons-Morton, B., Wysocki, T.,… Laffel, L. M. (2009). Development and validation of the Collaborative Parent Involvement Scale for youths with type 1 diabetes. Journal of Pediatric Psychology, 34, 30–40.

    Google Scholar 

  • Osborn, P., Berg, C. A., Hughes, A. E., Pham, P., & Wiebe, D. J. (2013). What mom and dad don't know can hurt you: Adolescent disclosure to and secrecy from parents about type 1 diabetes. Journal of Pediatric Psychology, 38, 141–150.

    Google Scholar 

  • Palmer, D. L., Berg, C. A., Wiebe, D. J., Beveridge, R. M., Korbel, C., & Upchurch, R. (2004). The role of autonomy and pubertal status in understanding age differences in maternal involvement in diabetes responsibility across adolescence. Journal of Pediatric Psychology, 29, 35–46.

    Article  PubMed  Google Scholar 

  • Quittner, A. L., Modi, A. C., Lemanek, K. L., Ievers-Landis, C. E., & Rapoff, M. A. (2008). Evidence-based assessment of adherence to medical treatments in pediatric psychology. Journal of Pediatric Psychology, 33, 916–936.

    Article  PubMed Central  PubMed  Google Scholar 

  • Rausch, J. R., Hood, K. K., Delamater, A., Shroff Pendley, J., Rohan, J. M., Reeves, G.,… Drotar, D. (2012). Changes in treatment adherence and glycemic control during the transition to adolescence in type 1 diabetes. Diabetes Care, 35, 1219–1224.

    Google Scholar 

  • Ricker, J. H., Delamater, A. M., & Hsu, J. (1998). Correlates of regimen adherence in cystic fibrosis. Journal of Clinical Psychology in Medical Settings, 5, 159–172.

    Article  Google Scholar 

  • White, F. (1996). Parent-adolescent communication and adolescent decision-making. Journal of Family Studies, 2, 41–56.

    Article  Google Scholar 

  • Wiebe, D. J., Berg, C. A., Korbel, C., Palmer, D. L., Beveridge, R. M., Upchurch, R.,… Donaldson, D. L. (2005). Children’s appraisals of maternal involvement in coping with diabetes: Enhancing our understanding of adherence, metabolic control, and quality of life across adolescence. Journal of Pediatric Psychology, 30, 167–178.

    Google Scholar 

  • Wills, T., Blechman, E., & McNamara, G. (1996). Family support, coping, and competence. In E. M. Hetherington & E. Blechman (Eds.), Stress, coping, and resiliency in children and families (pp. 107–133). Mahwah, NJ: Lawrence Erlbaum Associates.

    Google Scholar 

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Acknowledgments

This research was supported by Grant K23HD055304 awarded to the first author from the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD). The content is solely the responsibility of the authors and does not necessarily represent the official views of the NICHD or the National Institutes of Health. We thank the children and parents who participated in this study. We also thank the Diabetes Center for Children at The Children’s Hospital of Philadelphia for their support of this research.

Conflict of Interest

Authors Victoria A. Miller and Abbas F. Jawad declare that they have no conflict of interest.

Human and Animal Rights and Informed Consent

All procedures followed were in accordance with the ethical standards of the responsible committee on human experimentation (institutional and national) and with the Helsinki Declaration of 1975, as revised in 2000. Informed consent was obtained from all patients for being included in the study.

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Authors and Affiliations

  1. Department of Anesthesiology and Critical Care Medicine, The Children’s Hospital of Philadelphia and Perelman School of Medicine at the University of Pennsylvania, 34th St. and Civic Center Blvd., CHOP North Room 1425, Philadelphia, PA, 19104, USA

    Victoria A. Miller

  2. Department of Pediatrics, The Children’s Hospital of Philadelphia and Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, 19104, USA

    Abbas F. Jawad

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  1. Victoria A. Miller
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  2. Abbas F. Jawad
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Correspondence to Victoria A. Miller.

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Miller, V.A., Jawad, A.F. Relationship of Youth Involvement in Diabetes-Related Decisions to Treatment Adherence. J Clin Psychol Med Settings 21, 183–189 (2014). https://doi.org/10.1007/s10880-014-9388-1

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  • DOI: https://doi.org/10.1007/s10880-014-9388-1

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