Cancer Causes & Control

, Volume 16, Issue 2, pp 151-170

First online:

A national framework for cancer surveillance in the United States

  • Phyllis A. WingoAffiliated withCenters for Disease Control and Prevention Email author 
  • , Holly L. HoweAffiliated withNorth American Association of Central Cancer Registries
  • , Michael J. ThunAffiliated withAmerican Cancer Society
  • , Rachel Ballard-BarbashAffiliated withNational Cancer Institute
  • , Elizabeth WardAffiliated withAmerican Cancer Society
  • , Martin L. BrownAffiliated withNational Cancer Institute
  • , JoAnne SylvesterAffiliated withAmerican College of Surgeons
  • , Gilbert H. FriedellAffiliated withMarkey Cancer Center, University of Kentucky
  • , Linda AlleyAffiliated withCenters for Disease Control and Prevention
    • , Julia H. RowlandAffiliated withNational Cancer Institute
    • , Brenda K. EdwardsAffiliated withNational Cancer Institute

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Enhancements to cancer surveillance systems are needed for meeting increased demands for data and for developing effective program planning, evaluation, and research on cancer prevention and control. Representatives from the American Cancer Society, Centers for Disease Control and Prevention, National Cancer Institute, National Cancer Registrars Association, and North American Association of Central Cancer Registries have worked together on the National Coordinating Council for Cancer Surveillance to develop a national framework for cancer surveillance in the United States. The framework addresses a continuum of disease progression from a healthy state to the end of life and includes primary prevention (factors that increase or decrease cancer occurrence in healthy populations), secondary prevention (screening and diagnosis), and tertiary prevention (factors that affect treatment, survival, quality of life, and palliative care). The framework also addresses cross-cutting information needs, including better data to monitor disparities by measures of socioeconomic status, to assess economic costs and benefits of specific interventions for individuals and for society, and to study the relationship between disease and individual biologic factors, social policies, and the environment. Implementation of the framework will require long-term, extensive coordination and cooperation among these major cancer surveillance organizations.


cancer surveillance surveillance incidence mortality survival cancer control survivorship quality of care quality of life