Abstract
Purpose
Music has historically aided health and loss-adaptation, however, cancer patients’ experience of music for self-care is not well understood. This study examines adult cancer patients’ views about music’s role before and after diagnosis.
Methods
Constructivist approach, with grounded theory informed design using convenience, snowball and theoretical sampling. Patients from Australian metropolitan cancer and hospice settings completed demographic questionnaires and participated in semi-structured interviews. Qualitative inter-rater reliability was applied.
Results
Fifty-two patients reported comparable time spent experiencing music pre-post diagnosis. Music may remain incidental; however, many patients adapt music usage to ameliorate cancer’s aversive effects. Patients often draw from their musical lives and explore unfamiliar music to: remain connected with pre-illness identities; strengthen capacity for enduring treatment, ongoing survival (even when knowing “you’re going to die”), or facing death; reframe upended worlds; and live enriched lives. Patients can ascribe human or physical properties to music when describing its transformative effects. Familiar lyrics maybe reinterpreted, and patients’ intensified emotional reactions to music can reflect their threatened mortality. Sometimes music becomes inaccessible, elusive, and/or intensifies distress and is avoided. Families’, friends’ and professionals’ recognition of patients’ altered musical lives and music-based suggestions can extend patients’ use of music for self-care.
Conclusion
Health professionals can support patients by inquiring about their music behaviours and recognising that altered music usage may signify vulnerability. Although commonly recommended, hospital concerts and music broadcasts need sensitive delivery. Patients’ preferred music should be available in diagnostic, treatment and palliative settings because it can promote endurance and life enrichment.
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Notes
“Music” examined here focusses on recorded or live instrumental or human vocal sound.
Memory descriptions were reanalysed in each participant’s interview to determine frequencies of participants who reported them.
To differentiate comments from patients with same age and gender, a, b or c are used.
References
Duffy JD (2011) The clinical psycho-oncology assessment. In: Duffy JD, Valentine A (eds) MD Anderson manual of psychosocial oncology. The MacGraw Hill Companies, New York
Sanson-Fisher R, Girgis A, Boyes A, Bonevsk B, Burton L, Cook P (2000) The unmet supportive care needs of patients with cancer. Cancer 88:226–237
Brearley SG, Stamataki Z, Addington-Hall J, Foster C, Hodges L, Jarrett N, Richardson A, Scott I, Sharpe M, Stark D, Siller C, Ziegler L, Amir Z (2011) The physical and practical problems experienced by cancer survivors: a rapid review and synthesis of the literature. Eur J Oncol Nurs 15:204–212. doi:10.1016/j.ejon.2011.02.005
Zaza C, Sellick S, Hillier L (2005) Coping with cancer: what do patients do. J Psychosoc Oncol 23:55–73
Williams PD, Balabango AO, Manahan L, Piamjariyakul U, Ranallo L, Laurente CM, Cajucom L, Guela D, Kimbrough M, Williams AR (2010) Symptom monitoring and self-care practices among Filipino cancer patients. Cancer Nurs 33:37–46. doi:10.1097/NCC.0b013e3181b0f2b4
Williams PD, Piamjariyakul U, Ducey K, Badura J, Boldts KD, Olberding K, Wingate A, Williams AR (2006) Cancer treatment, symptom monitoring, and self-care in adults. Cancer Nurs 29:347–355
Dissanayake E (2006) Ritual and ritualization: musical means of conveing and shaping emotion in humans and other animals. In: Brown S, Voglsten U (eds) Music and manipulation: on the social uses and social control of music. Berghahn Books, Oxford and New York, pp 31–56
Sloboda J, Lamont A, Greasley A (2009) Choosing to hear music: motivation, process and effect. In: Hallam S, Cross I, Thaut M (eds) The Oxford handbook of music psychology. Oxford University Press, Oxford, pp 431–440
Crafts S, Cavicchi D, Keil C (1993) My music: and the music in the daily life project. Wesley University Press, London
DeNora T (2000) Music in everyday life. Cambridge University Press, Cambridge
Bradt J, Dileo C, Grocke D, Magill L (2011) Music interventions for improving psychological and physical outcomes in cancer patients. Cochrane Database Syst Rev 8:1–73. doi:10.1002/14651858.CD006911.pub2, Art. No.: CD006911
Zhang J, Wang P, Yao J, Zhao L, Davis MP, Walsh D, Yue GH (2012) Music interventions for psychological and physical outcomes in cancer: a systematic review and meta-analysis. Support Care Cancer 20:3043–3053. doi:10.1007/s00520-012-1606-5
O’Callaghan C (2009) Objectivist and constructivist music therapy research in oncology and palliative care: an overview and reflection. Music and Medicine 1:41–60
Burns DS, Robb SL, Phillips-Salimi C, Haase JE (2010) Parental perspectives of an adolescent/young adult stem cell transplant and a music video intervention. Cancer Nurs 33:E20–E27. doi:10.1097/NCC.0b013e3181d4b671
O’Callaghan C, Baron A, Barry P, Dun B (2011) Music’s relevance for pediatric cancer patients: a constructivist and mosaic research approach. Support Care Cancer 19:779–788. doi:10.1007/s00520-010-0879-9
O’Callaghan C, Barry P, Thompson K (2012) “One of my friends”: music’s relevance for adolescents and young adults with cancer. Support Care Cancer 20:687–697. doi:10.1007/s00520-011-1104-1
Ahmadi F (2009) Hard and heavy music: can it make a difference in the young cancer patients’ life? Voices: a world forum for music therapy. https://normt.uib.no/index.php/voices/article/viewArticle/345/269. Accessed October 15 2013
O’Callaghan C, Hudson P, McDermott F, Zalcberg J (2011) Music amongst family caregivers of people with life threatening cancer. Music and Medicine 3:47–55
Vale-Taylor P (2009) “We will remember them”: a mixed method study to explore which post-funeral remembrance activities are most significant and important to the bereaved people living with loss, and why those particular activities are chosen. Palliat Med 23:537–544. doi:10.1177/0269216309103803
Castle J, Phillips WL (2003) Grief rituals: aspects that facilitate adjustment to bereavement. J Loss Trauma 8:41–71
O’Callaghan C, McDermott F, Hudson P, Zalcberg P (2013) Sound continuing bonds with the deceased: the relevance of music, including preloss music therapy, for eight bereaved caregivers. Death Studies 37:101–125. doi:10.1080/07481187.2011.617488
Ahmadi F (2013) Music as method of coping with cancer: a qualitative study among cancer patients in Sweden. Arts Health 5:152–165. doi:10.1080/17533015.2013.780087
Corbin J, Strauss A (2008) Basics of qualitative research 3e: techniques and procedures for developing grounded theory. Sage, Thousand Oaks
Kuper A, Reeves S, Levinson W (2008) Qualitative research: an introduction to reading and appraising qualitative research. BMJ 337:404–407. doi:10.1136/bmj.a288
ATLAS V.5.5.9 (2009) ATLAS.ti Scientific Software Development, Berlin
Kitto SC, Chesters J, Grbich C (2008) Quality in qualitative research: criteria for authors in the submission and assessment of qualitative research articles for the Medical Journal of Australia. Med J Aust 188:243–246
O’Callaghan C (2010) The contribution of music therapy to palliative medicine. In: The Oxford textbook of palliative medicine. In: Hanks G, Cherny N, Christakis N, Fallon M, Kaasa S, Portenoy R (eds) The Oxford textbook of palliative medicine, 4th edn. Oxford University Press, Oxford, pp 214–221
Cassileth B, Vickers A, Magill L (2003) Music therapy for mood disturbance during hospitalization for autologous stem cell transplantation. Cancer 98:2723–2729
Levitin DJ (2006) This is your brain on music Atlantic, London
Kleinman A (1997) “Everything that really matters”: social suffering, subjectivity, and the remaking of human experience in a disordering world. Harv Theol Rev 90:315–335
Feld S (1994) Communication, music and speech about music. In: Keil C, Feld S (eds) Music grooves. University of Chicago, Chicago, pp 77–94
Levitin DJ (2008) The world in six songs: how the musical brain created human nature. Dutton, New York
Winnicott DW (1971) Playing and reality. Routledge, London
McAdams S (1984) The auditory image: a metaphor for musical and psychological research on auditory organization. In: Crozier WR, Chapman AJ (eds) Cognitive processes in the perception of art. North-Holland, Amsterdam, pp 289–323
Stein A (2004) Music, mourning, and consolation. J Am Psychoanal Assoc 52:783–811
Saresma T (2003) “Art as a way to life”: bereavement and the healing power of arts and writing. Qual Inq 9:603–620
Stein A (2007) The sound of memory: music and acoustic origins. American Imago, Baltimore, 64:59–86
Lamont A, Greasley A (2008) Musical preferences. In: Hallam S, Cross I, Thaut M (eds) The Oxford handbook of music psychology. Oxford University Press, London, pp 160–168
Acknowledgments
The authors thank the 52 people who shared their stories for this research.
Clare O’Callaghan’s contribution was enabled through a National Health and Medical Research Council (NHMRC) postdoctoral fellowship in palliative care (2008-9).
Conflict of interest
The authors had no conflict of interest in this study. They all had full control, that is, access to all primary data, and agree to allow the Journal to review the data if requested.
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O’Callaghan, C.C., McDermott, F., Michael, N. et al. “A quiet still voice that just touches”: music’s relevance for adults living with life-threatening cancer diagnoses. Support Care Cancer 22, 1037–1047 (2014). https://doi.org/10.1007/s00520-013-2059-1
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DOI: https://doi.org/10.1007/s00520-013-2059-1