Abstract
The Pediatric Medical Home Program at UCLA enrolled 41 patients in a primary care model focused on providing intensive care coordination for medically complex, ethnically diverse children with special health care needs (CSHCN) in our Pediatric Resident Continuity clinic. We sought to determine the effect of our program on parental satisfaction, and to compare differences in parental satisfaction between English and Spanish speaking patients. The Medical Home Family Index, developed by the Center for Medical Home Improvement, was administered to a total of 22 participating parents, in the family’s primary language by a native speaker, at various times after enrollment in the program. Survey data and language effects were analyzed. The 36 standardized mean scores for the 15 Spanish speaking families were significantly higher (8.5 points higher) than the mean scores from the seven English speaking families (p = 0.003). Although no statistically significant differences were noted in individual questions between Spanish and English speakers, a trend towards more positive responses by Spanish speakers was noted in questions regarding physician-patient communication (p = 0.054) and family-centeredness (p = 0.053). Our results suggest that a primary care model focused on providing intensive care coordination produces positive parental perceptions of the organization and delivery of primary care services in a medically complex population of CSHCN. The main finding of the study is that utilizing the AAP’s approach to the medical home model, emphasizing family-centered and culturally competent care, can produce higher satisfaction scores in Spanish speaking parents when compared to English speaking parents.
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Abbreviations
- CSHCN:
-
Children with special health care needs
- MHFI:
-
Medical Home Family Index
- CMHI:
-
Center for Medical Home Improvement
- AAP:
-
American Academy of Pediatrics
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Acknowledgments
The Pediatric Medical Home Program at UCLA has been supported by a Healthy Tomorrows Partnership for Children grant from the American Academy of Pediatrics and the Health Resources and Services Administration (H17MC00406), as well as grants from the Skirball Foundation and the Atlas Family Foundation.
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The authors have no financial disclosures or conflicts of interest to declare. No honorarium, grant, or other form of payment was given to anyone to produce this manuscript.
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Hamilton, L.J., Lerner, C.F., Presson, A.P. et al. Effects of a Medical Home Program for Children with Special Health Care Needs on Parental Perceptions of Care in an Ethnically Diverse Patient Population. Matern Child Health J 17, 463–469 (2013). https://doi.org/10.1007/s10995-012-1018-7
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DOI: https://doi.org/10.1007/s10995-012-1018-7