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Management of Prader-Willi Syndrome

Under the Sponsorship of The Prader-Willi Syndrome Association

  • Book
  • © 1988

Overview

Editors:
  1. Louise R. Greenswag

    1. College of Nursing Program Consultant for Prader-Willi Syndrome Iowa Child Health Specialty Clinics, University Hospital School The University of Iowa Hospitals and Clinics, Iowa City, USA

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  2. Randell C. Alexander

    1. University Hospital School, The University of Iowa Hospitals and Clinics, Iowa City, USA

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    You can also search for this editor in PubMed   Google Scholar

  • The newly revised and thoroughly updated MANAGEMENT OF PRADER-WILLI SYNDROME provides the full range of information needed to both understand and manage this complex disorder.
  • Undertaken with the cooperation of the Prader-Willi Syndrome Association of America, this is the most complete resource available on the topic.

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Table of contents (21 chapters)

  1. Front Matter

    Pages i-xix
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  2. Physiological and Genetics Considerations

    1. Front Matter

      Pages 1-2
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    2. Overview

      • Randell C. Alexander, James W. Hanson
      Pages 3-14

    3. Differential Diagnosis in Prader-Willi Syndrome

      • Hans Zellweger
      Pages 15-22

    4. Hypogonadism and Osteoporosis

      • Karen Rubin, Suzanne B. Cassidy
      Pages 23-33

    5. Genetics Evaluation and Counseling for Prader-Willi Syndrome

      • Elizabeth J. Thomson
      Pages 34-38

  3. A Case Presentation

    1. Front Matter

      Pages 1-2
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    2. A Case Study: A Chronology of Hope

      • Jack Sherman, Gerald Ente
      Pages 41-51

    3. A Team Approach to Case Management

      • Louise R. Greenswag, Randell C. Alexander
      Pages 52-54

    4. Medical and Nursing Interventions

      • Randell C. Alexander, Louise R. Greenswag
      Pages 55-67

  4. The Interdisciplinary Process

    1. Front Matter

      Pages 69-69
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    2. Dental Manifestations and Management

      • Arthur J. Nowak
      Pages 71-75

    3. Nutritional Management

      • Diane D. Stadler
      Pages 76-98

    4. Psychological and Behavioral Management

      • Stephen Sulzbacher
      Pages 99-112

    5. Education of the Child with Prader-Willi Syndrome

      • Marsha H. Lupi
      Pages 113-123

    6. Speech and Language Development

      • Joyce A. Munson-Davis
      Pages 124-133

    7. Physical and Occupational Therapy for Prader-Willi Syndrome

      • Mary Alice Duesterhaus Minor, True Carr
      Pages 134-141

    8. Vocational Concepts in Prader-Willi Syndrome

      • James Timothy Inwood
      Pages 142-153

    9. The Role of the Social Worker

      • James F. Porter
      Pages 154-161

  5. The Socialization Process

    1. Front Matter

      Pages 163-163
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Keywords

About this book

Management of Prader-Willi Syndrome is the first book to provide a comprehensive source of knowledge about Prader-Willi Syndrome and to offer common-sense guidelines for management. It consists of contributions from professionals in many health and allied disciplines who have worked with this special population. The book focuses on clinical, social, familial, and community issues related to care. It is directed to health, education, and other specialists in academic, clinical, and community settings. Management of Prader-Willi Syndrome describes strategies for management which are appropriate to an interdisciplinary approach.

Reviews

From the reviews of the third edition:

"The third edition is a welcome update which includes recent developments in the treatment of PWS … . The layout and illustrations are excellent. … will provide a wealth of information for the geneticist and it will serve as an excellent reference for any healthcare professional, family member or teacher." (Ruth Newbury-Ecob, Human Genetics, Vol. 124, October, 2008)

"This is an excellent … book that cover every aspect and organ system involved in Prader Willi syndrome. … This is an excellent resource for anyone who wants to know more about this syndrome. The prospective audience includes parents, practitioners, and physicians … . This is an essential reference for anyone taking care of a person with Prader-Willi syndrome, whether physician, practitioner, teacher, or parent. It gives excellent and detailed information describing the disease and the problems associated with it." (Pinar Bulut, Doody’s Review Service, March, 2009)

Editors and Affiliations

  • College of Nursing Program Consultant for Prader-Willi Syndrome Iowa Child Health Specialty Clinics, University Hospital School The University of Iowa Hospitals and Clinics, Iowa City, USA

    Louise R. Greenswag

  • University Hospital School, The University of Iowa Hospitals and Clinics, Iowa City, USA

    Randell C. Alexander

Bibliographic Information

  • Book Title: Management of Prader-Willi Syndrome

  • Book Subtitle: Under the Sponsorship of The Prader-Willi Syndrome Association

  • Editors: Louise R. Greenswag, Randell C. Alexander

  • DOI: https://doi.org/10.1007/978-1-4684-0316-9

  • Publisher: Springer New York, NY

  • eBook Packages: Springer Book Archive

  • Copyright Information: The Prader-Willi Syndrome Association 1988

  • eBook ISBN: 978-1-4684-0316-9

  • Edition Number: 1

  • Number of Pages: XIX, 310

  • Additional Information: Originally published under: Greenswag,L.R.

  • Topics: Psychiatry, Rehabilitation, Neurology

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